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Been told I have lung disease but what now

CHRISpor profile image
4 Replies

Hi all I have interstitial lung disease had my second scan in April told all is the same as the first scan will have another scan in December I have no medication so I'm a bit at a loss anyone had the same.

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CHRISpor profile image
CHRISpor
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4 Replies
Makobel profile image
Makobel

Hi,

My name is Belinda.I was diagnosed with Interstitial lung disease in 2015.The main feature in my case is persistent cough which unfortunately is not responding to any medication that I'm given now.It would be interesting to hear from you how you got the illness.

CHRISpor profile image
CHRISpor in reply to Makobel

Hi i went to the doctors with a small lump on my testicle was sent for a mri then they found other things so was booked then in for ct scan as it happens the small lump i went for is no problem it has gone now but they found a small growth on one lung colon disease and interstitial lung disease i get out of breath easily and find i get very tired but been told as it hasn't got worse over the past six months that my next ct is December I'm on no medication so at the momen I'm at a bit of a loss to whats going on

Stephend profile image
Stephend

Hi morning I have acute intestinal pulmonary emphysema which means I have holes all over my lungs as long as you look after yourself it'll be ok I was 47 when they told me this I'm fine I have other illnesses as well going on .you need to see your doctors asthma nurse she or he will sort your meds out if needed good luck but don't worry

Stay happy stay alive

luckyackerl profile image
luckyackerl

I was given the same diagnosis along with chronic lymphocytic leukaemia. However having had 5 sessions of chemo, Bendamustine and Rituximab, all signs of lung fibrosis have vanished! Conclusion is that it was probably related to C.L.L.

Good luck to you.

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