I have been diagnosed with SSc-PAH

[Shackackarn]

I have had lots of tests done and they have found i have mild Emphysema and systemic sclerosis associated pulmonary arterial hypertension (SSc-PAH) and would like to talk to someone with similar condition.

[Ergendl]

Welcome to the group, Shackackarn. It's lovely to have you join us.

Sorry I can't help you with your problem. While I have mild ephysema, I don't have sclerosis or PAH.

Hopefully someone will be along soon who will be able to share their experience with you.

[Gingerninjas]

hope you can find someone. I’ve found people to be very informative and supportive .

[Izb1]

Hi Shackackarn and welcome to the site. I dont have any advice for you but perhaps phone the helpline above x Call on 0300 222 5800

[Dottie11]

scleroderma and Raynaud's.are on HU they might be able to help.

[Kate124]

hello I do have moderate emphysema and PAH but not sclerosis. If I can help with anything just ask.

[Will57]

I have severe COPD and have just been diagnosed with Pulmonary hypertension after undergoing a cardiac catherization test at Papworth Hospital and the result means I cannot have the LVR Operation to my right lung as I would not survive the operation. There are only around 6 centres in England which oversee this condition so what test did you undergo and where to confirm your PH. I go back to Papworth in August to see how I'm coping with the new meds. Hope you get the correct follow-up

[watergazer]

Hi and welcome. Alas sorry I can’t advice but wish you well in your journey x

[CDPO16]

Hi and welcome. I have emphysema but not your other conditions. Hope you get the support you are looking for. Best wishes.

[Alberta56]

Welcome to the forum. I don't think anyone here has your combination of conditions, but several folk have one or two of them. i hope you can get some helpful advice.

[watergazer]

Hi and welcome This is a welcoming and supportive site. Hope you find someone to help you x