Anyone on this if so has it helped?
Carbosysteine : Anyone on this if so... - Lung Conditions C...
Carbosysteine
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Darceydoo
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I could not get on with it. There is another one called Acetylcysteine which is an effervescent tablet.You only need one each day dissolved in a glass of water. It tastes a little of lemon. I am able to tolerate that and find that it works better than carbocysteine. The GP prescribed it for me at my request.Whichever you choose I hope that it works.
I'm going to ask my specialist about Acetylcysteine when I see him in November. I take Carbosysteine and it upsets my stomach but helps thin mucus. Keep meaning to ask him but forget to write the name down when members say about it🙄. Will write it down now! Hope it works ok for you 🤞🙂Darcey xx
Yes I did the same for ages. Then when I did ask her my con seemed cross at being asked to supply it because I had failed to get it elsewhere. Then suddenly 2 boxes arrived from the hospital. I asked my GP if they could get it for me and it turned out to be no problem because our dispensers were already supplying it to other patients. Oh gosh. It is so exhausting just finding out and sourcing the best thing for ourselves. I learned of Acetylcysteine from the folks on here. Not from the docs.
Surely that's part of her job, suppling the correct medication!? Yes I only found out about it from this lovely forum. Not seeing consultant till November but hopefully he will change it for me 🤞xxx
My consultant and I have known each other for 20 yrs so sometimes she probably lets her frustrations out. She is very overworked and in despair at the state of the NHS. I think she thought that the GP should have listened to my problems with carbo and given the NAC to me, which they did after she wrote to them.
no it has not helped and made me feel sick
Can you tell me which made you feel sick? Carbocysteine or Acetylcysteine
I and many 1000s of members take it . It helps to soften any mucus in the lungs making it easier to expel - no-one wants stray mucus hanging around in the lungs just waiting for bacteria to throw a party & multiply. I've taken it for 11 years , it still works.As Swizzy says, there's another med to take NAC (N-Acetyl Cysteine) which can also be bought OTC in health food shops (a reputable brand like Solgar is expensive though).
Write Carbocysteine in tge search bar, you'll find many other posts & replies about it.
Just to clarify peege for Darcydoo.The NAC bought over the counter is, as you say very expensive. They are huge horse pills and smell awful. The effervescent tablet costs the GP very little and it seems to be something that they are happy to prescribe. Your explanation of why we need the help of these drugs is spot on.
Morning. Yes they are huge aren't they! I bought some last year in desperation (gp practice unobtainable at the time). I've been prescribed the effervescent NAC in both Croatia and France in the past, it's much more pleasant to take once per day.
I should have mentioned to the poster that it's always best to take prescribed meds rather than over the counter 😬
Sadly it seems Acetylcysteine is not prescribed in my Health Authority for some reason. I’ve tried Carbocysteine, but I don’t seem to get on very well with it in comparison🤷♀️
I’ve been taking it for two years now with no side effects and it has really helped me.
I've been taking carbocisteine for around 5 years without side effects. Its very helpful for me but it doesn't suit everyone. Good luck with it.
I found that Carbocisteine was great until I tried NACSYS which is much better. There seem to be supply issues with NACSYS and have been for several months. I tried the NAC (N-Acetyl Cysteine) as prescribed by the GP a couple of months ago and found it disagreed with me. The pharmacist has found another one called Mucolight so I will start that tomorrow.
I have tried it. It was prescribed with caution as I have a history of stomach ulcers. Alas, after a few months I have got a flare up of stomach issues and have had to stop the carbocisteine. That was despite being given omeprazole to try to protect my stomach.
Hi, I have been taking Carbocisteine now for about 8 years - I think it helps ??
However, taking plenty of clear fluids through the day eg 7-8 glasses of water a day is a huge help as well. It helps to thin the mucous which makes it easier to expel.
Go well,
Pauline
I take 4 a day and get on with them. Has helped me over the years. Xxx
I am supposed to take 8 a day but I reduced to 2 but don’t think it’s doing anything for me.
yes l have just started them ...l was given them whilst in hospital ..it helps to dry the mucus up from the chest to stop any infections of the lungs ...l am now on them for life
Yes, I was put on this early in the year when I had a range of bacterial infections which led to pneumonia (I have underlying ILD and some bronch). Phlegm was plentiful, thick and an evil colour! The carbocisteine loosened it so I could get rid of it more easily while the ABX did their work. It worked for me, hope it does for you. (I also got into the habit of nebulizing. You don't say what your problem is but this also helped to keep things looser.)
Yes, I have been taking Carbocystine for my latest flare-up. It helps thin the mucus but has given me dreadful diarrhoea. Have now stopped and hoping drinking more fluids will help.
Hi, I’m on two capsules twice a day, really helps with clearing mucus, has really made a difference for me, hope it works for you, good luck 💐🌺
Hi yes been taking it for quite a while now and it really helps along with my nebuliser with saline.
Take care
Xx
I have been on these for a number of years & they have stopped the sputum i had a lot of, plus i am on anti biotics for life, these seem to work for me.
Yes and yes. Started about 10 years ago. Take two in the morning and two in the evening now.
I take Acepiro 600mg (acetylcysteine) as recommended by my consultant. I'd mentioned i struggle to clear my throat, especially when singing in my choir, and he suggested a mucolytic tablet 3x a day - I wasn't interested in more tablets so then he suggested acepiro as it's water soluble- ideal!
I am on the liquid version of Carbocisteine. I only take it when the mucus is worse than ‘usual’. I think it helps somewhat.
Yes been on it for years, it's only purpose in life is to make mucus thin... so if that's what you need... there's no reason it shouldn't help... as others have said its only really well known side effect is it can cause increased stomach acid/stomach upset.
I've been on them for many yrs.they do think the mucous + makes it easier to get up
I found it no help at all when I was first diagnosed, about ten years ago. Was taken off it. However, I should stress that my bronchiectasis is mild. Only thing that helped me was walking and singing. Walking now limited, but singing in two choirs continues to be brilliant help. One odd (and only) benefit of bronchiectasis is that the wider, mis-shapened vessels in my lungs actually mean I can hold a note far longer than anyone else in the choir!!
Hi Darceydoo, I have been taking Carbocisteine 375mg for sometime. I don't take the full dose 2 tablets twice a day, as I find if I do I bring up too much sputum. I just take one in the morning and if need be another in the afternoon. That seems to work best for me.
