Nebuliser

[Time_2_drink]

I am buying a nebuliser the loan machine I got after coming out of hospital helped bring up mucus nod it going back how often should I use only when very sob or daily I am not very good either ventolin inhaler

[Hidden]

I use my daily, except when I forget, then a build-up occurs which takes a while to shift.

[Time_2_drink in reply to Hidden]

Thanks I don't want to be dependent may use it on mornings and at night

[Damon1864 Volunteer]

I was told to only use it when needed,. 😊 xxx

[Time_2_drink]

Its knowing when I thought morning and night but may be wrong maybe just when can't shift mucus. Xx

[clematis5932]

You should not be using a nebuliser every day unless told to be respiratory nurse or doctor. I also had a loan machine for quite a while but only used it when I had an infection. They then supplied me with a smaller machine which is mine to keep. Please talk to them first before ordering one yourself.

[O2Trees in reply to clematis5932]

Totally agree with you Clematis.

[O2Trees]

Personally I think that's for you to discuss with your GP T2d. Generally speaking my understanding is that with copd nebulisers are reserved for when we have infections or at the very severe stage - that's what I was told by my healthcare people. But we are all different which is why you should discuss this with your GP. Presumably you would need to get the prescriptions from them, though maybe you can buy saline OTC, not sure about that.

[Time_2_drink in reply to O2Trees]

The matron arranged for salbutamol to be prescribed by . Gp He has put it on repeat so must think I am severe it just get worse 😒

[O2Trees in reply to Time_2_drink]

This is a bit confusing. Do you mean salbutamol inhalers T2d, or salbutamol nebules? If it's nebules, then they obviously shouldn't be taking your nebuliser away - that's not logical. Unless the NHS is no longer supplying nebulisers in some areas, in which case please do let us know as that would be very unfair to you.

With copd, being severe means you are at stage 3 which is worked out by spirometry tests. It's not to do with whether you have medications on repeat, which Ive had ever since I was newly diagnosed with copd 16 years ago.

If you're so breathless then Id have thought you need a new medication review with your GP or respiratory nurse. Or you could phone the BLF helpline on 03000 030 555 office hours.

[Time_2_drink in reply to O2Trees]

The nebulas the matron said not to take the inhaler when using nebuliser I have the loan nebuliser but will be buying my own because they are not supplied in our area so I believe

[mmzetor]

I was put on one for a trial by the consultant told to use it 3 times aday after a while I stopped using it every day and told them I was only using it when I was very breathless as I didn't want to get use to it they said that was fine ,but they did tell me to make sure I use it when I have a chest infection which I do , they lent me one to start with then I had to buy my own I got one from lidil £20.00 and to be honest it was better than the one they lent me , worked quicker and was quieter

[Time_2_drink in reply to mmzetor]

Thanks I will use it on morning and night for now I think then probably do what you are doing I have just got rid of infection now noticed some green gunk now and then but not all the time

[Nitap in reply to mmzetor]

Yes I got mine from Aldi and it is better, even the Respiratory Team said how good it is. When I don't think I have an infection but loads of gunk to bring up I use it with plain saline, the doctor subscribes xxx

[Time_2_drink in reply to Nitap]

Lots of good reviews for Aldo nebuliser wonder why I got sabutomel not saline

[Nitap in reply to Time_2_drink]

Hi Time2drink, I think they give you Salbutamol for help with infection. If chest is full of mucus then use Nebuliser with plain Saline - if that makes any sense. Wish you well xx

[Hidden]

People with bronchiectasis often nebulise salbutamol regularly, those with copd generally don't. Why is that?

[O2Trees in reply to Hidden]

Cos people with bronch - especially people who've had it long term - produce more gunk and it's thicker and stickier so harder to get up. I have fairly recently dxd bronch too as you know but, why i don't know, i don't so far produce that much mucus and it comes up ok (it's more than when i just had copd though).

[Hidden in reply to O2Trees]

Precisely, I'd have a steam room built if I had the space and money.

[Hidden in reply to O2Trees]

That's true O2Trees . It's the stickiness which makes it so hard to shift, it's like glue! Nebulised ventolin + 7% saline helps, but even then it takes at least 2hrs a day, & within no time lungs are full of c**p again. So tiring.

[O2Trees in reply to Hidden]

Yes it must be exhausting, Hanne, not to mention the time which could be spent on more creative pursuits. Im sorry you have to go through this.

[Time_2_drink in reply to Hidden]

That is very tiring Hanne such a lot to go through I wish you well

[Hidden in reply to Time_2_drink]

That's kind of you dear, and O2Trees too, but I'm lucky in many ways. It IS a pain, gets me down at times, but I want to live to see my little granddaughter grow up, so I'll do whatever it takes!

[sassy59]

Pete uses his nebuliser morning and evening and it helps him a great deal. Good luck to you. Xxxx

[sassy59 in reply to sassy59]

P.S. should mention that Pete was given his nebuliser by the Brompton in London and has 4 drugs to use. He has sarcoidosis and COPD. Speak to your GP or respiratory nurse. Take care xxxx

[Time_2_drink in reply to sassy59]

Glad it is helping your man best wishes to him xx

[Time_2_drink in reply to sassy59]

That is probably the way to go it is very confusing Im seeing the matron on Wednesday I will speak to her about it xxx

[Channell]

I have to use mine 4 times a day also use when really needed

[Time_2_drink in reply to Channell]

I was four times a day when I had the infection

[Fennella02 in reply to Time_2_drink]

I've been told that I would need to sit for 20 mins 4 times a day if I go down that route. I think perhaps my consultant is trying to deter me!

[moodygirl]

I nebulise a saline solution every morning. It helps clear my chest for the whole day. If it builds up during the day then I may use it again later.

[Time_2_drink in reply to moodygirl]

Didn't get saline solution that sounds like it doing you some good not sure why I wasn't given it

[moodygirl in reply to Time_2_drink]

I've had bronchiectasis all my life (66 years), and nebulising Nebusal has only recently been suggested to me. It's really made a difference.

[Time_2_drink in reply to moodygirl]

Glad it helps you

[Plumbob]

I too have a saline solution and use the Nebuliser first thing in the morning to release the overnight build up of mucus and when I feel it getting thicker during the day normally around tea time. It doesn't reduce the Mucus but certainly makes it easier to release it.

Good Luck

Plumbob

[Time_2_drink in reply to Plumbob]

Thanks did the solution come from Gp

[Plumbob in reply to Time_2_drink]

My BLF nurse issued me the prescription and provided the Nebuliser after instruction from my consultant. She has now informed my GP practise to put it on repeat prescription for me

[sagittar in reply to Plumbob]

What is the solution ratio for using saline with the nebulizer? Can you buy it over the counter already made?

[Plumbob in reply to sagittar]

Hi Sagittar - You get capsulets for the nebuliser and I believe there are different types depending on your condition but the capulets I am taking to ease mucus are 2.5ml Steripoules. As with all meds you should consult your doctor/ nurse before taking them. I don't know whether you can get them without prescription ?

Take Care

plumbob

[Time_2_drink]

That was good the matron I have been seeing can't prescribe only request

[Plumbob]

I think the initial instruction has to come through your consultant or doctor but keep pushing for it if you feel it will benefit you ??

Good Luck

[Time_2_drink]

Thanks haven't seen a consultant and Gp not much cop

[sarcoid123]

I do not have COPD; I have sarcoidosis. I was prescribed Nebusal 7% salt solution in single use ampoules for use in a nebuliser by the physiotherapist at hospital. I had to do a trial first to make sure I was suitable for it. I now empty an ampoule into my nebuliser morning and at bedtime. It helps me cough up some of the phlegm but I then do Active Cycle of breathing technique (Huffing) - lots of explanations on the web - to get up more phlegm. If I don't do that I can't lie down!

[Time_2_drink in reply to sarcoid123]

I found that when I first got loan of nebuliser I had both the saline and the sabutomel and I was coughing up easier than just with the sabutomel I don't as a rule bring up much think it must be lying there that said I have just brought up pea green gunk don't know if it was left from infection finished antibiotics Monday matron did bloods Wednesday and a small sample of mucus haven't heard back or am I brewing another hope not I will have to wait till I see her Wednesday

[Sammie1944]

I'm also on a nebulizer years ago they told me to use it 4 times a day but I've found I can tell when I need it and use it then sometimes my ventolin just doesn't make breathing easier I would ask your gp take care

[Time_2_drink in reply to Sammie1944]

I'm not very good with inhalers oxygen nurse asked my doctor to prescribe breath ease inhaler but he didn't take care

[Sammie1944]

I hope you start to feel better soon I know I get so tired of not being able to do the things I used to take care and let me know how things turn out

[Time_2_drink in reply to Sammie1944]

Thank you Sammie it is awful isn't it the days and nights drag wish I had. A hobby never very good at crafts etc you look after yourself

[Sammie1944]

Oh I wish you were closer I would teach you to crochet it sure makes the time pass faster and my great grandkids are always wanting me to make them something that makes me feel good

[Time_2_drink]

I wish we were to it would be nice to have someone to natter to and pass time with and of course learn a craft

[hallentine47]

After a months stay in Hospital including three weeks in ICU 15 months ago I was given a neutralizer by my community matron. After 12 months it is swapped for a new one as these machines need servicing every year. I did not need to buy my own and if you do then you will pay for the servicing every year. As to how often to use it needs to be discussed with your Doctor or respiratory nurse.

[Time_2_drink]

Thanks still got the loan machine but I will put the questions to the matron x