CHEERFUL: Hi everyone. Can't find any... - Lung Conditions C...

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CHEERFUL

Joneswm profile image
9 Replies

Hi everyone.

Can't find any recent posts about ILD (NSIP). The last was about 3 -4 years ago. I was feeling pretty low last week, but have picked myself this week. The thing is to have positive thoughts !

Hair and nails done, just need my hubby to take me somewhere nice. Hope you are all having a good day.

Take care

Wendy Woo. X

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Joneswm profile image
Joneswm
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9 Replies
Sheilab123 profile image
Sheilab123

Sorry can't help re IDL Joneswm, but pleased you are feeling better, and positive is the way to go! I'm a hair and nails fan, feel naked without nail varnish! Hope hubby takes you somewhere nice. Xx

Joneswm profile image
Joneswm in reply to Sheilab123

Thanks Sheila. He said maybe tomorrow. Fingers crossed. Xx

Bagpuss1972 profile image
Bagpuss1972

Glad you are able to keep positive. reminds us all to do the same.

Joneswm profile image
Joneswm in reply to Bagpuss1972

Hard sometimes Bagpuss, especially when we feeling not so good. Take care xx

Bagpuss1972 profile image
Bagpuss1972 in reply to Joneswm

Completely agree. You take care too x

scorpiolass profile image
scorpiolass

Hi Wendy, sorry I can't help with ILD; it must get frustrating for you. I hope you get taken out later today. I am having nails & facial next week. Wonderful pick me up. X

Joneswm profile image
Joneswm in reply to scorpiolass

Hi Scorpiolass. We girls have to spoil ourselves now and then ! Enjoy your treats next week. X

Salfordlass profile image
Salfordlass

HI there

My consultant thinks I may have NSIP, either that or COP I definitely have an ILD

Happy to share notes/info if it helps

Keep well Sheila

Joneswm profile image
Joneswm in reply to Salfordlass

Hi Sheila. I have been diagnosed for nearly a year now. I had sarcoidosis about 25 years ago and I am convinced that this is related to that, although my consultant says she couldn't say ! All she will say that is old scarring and I've had it a long time. Over these last 25 years, I've been backwards and forwards to the Doctor's with various ailments. Always felt as if my body was fighting an infection.

Basically, last year felt really poorly and returned to the GP who informed me my chest X-ray from the previous year showed fibrotic changes, albeit to me as I was told it was normal. He prescribed antibiotics. I was fortunate enough to work in the local hospital where my consultant has clinics. I have known her many years as professional colleague. She thought I was looking poorly, and from then on things moved swiftly, hence my diagnosis of NSIP.

In March I made the decision to retire as I was struggling more and more with fatigue. I try to remain positive about things, but hard to do when feeling like rubbish.

You take care and get the correct diagnosis soon.

Wendy xx

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