For people with bronchiectais ELF/ERS

[cofdrop-UK]

europeanlung.org/en/news-an...

Love cx

[Toci]

Good link, cof, let's hope there are good results.

[cofdrop-UK in reply to Toci]

Thanks Toci - I do hope so. Let's hope after all these years of being in the wilderness this renewed interest in ncfbe will improve treatment, knowledge and hopefully funding.

Love cx

[Hidden]

Please, any bronch people, please get involved! We cannot complain about bronch being an orphan condition if we don't grab this chance. This is so important, if we all do our bit we'll get better care for ourselves all the sooner, and those who come after us too.

Thank you cofdrop for posting this!

[grannyjan]

Just had a quick browse of that, looks very interesting, will peruse at my leisure later, Thanks jan x

[Billiejean_2]

C, I emailed Sarah back in November, when this was last highlighted here. I got a standard welcome email but then never heard another thing.

[cofdrop-UK]

Billiejean I am so sorry to hear this, Sarah is very professional and I am sure she will be more than happy to talk with you. Please don't be put off becoming involved. You might want to contact Sarah again Email: [e-mail] or telehone her on 0114 2672875.

Please let us know how you get on.

love c x

[Hidden]

I endorse the observation above about Sarah and her good work for ELF. She is a dynamo of organisation and an inspiration.