I find it very distressing coughing up blood with bronchiestasis. Any ideas to help

[Jk1957]

Coughing up blood with bronchiestasis

[Mocarey]

Hello there, is this a new thing coughing up blood also how much are you bringing up? If it is seek medical help. I too have bronchiectasis along with other lung complaints. I can bring up blood sometimes with a bad infection but too much is worrying. Please let us know how you get on. M x

[Jk1957 in reply to Mocarey]

Thanks for your reply. I have Bronchiectasis 27 yrs & have regularly coughed up blood with it. I attend a specialist regularly & have IV treatment occasionally & oral antibiotics regularly.

Coughing blood has become more frequent & of late I feel very weak with it & just have to have complete rest for a few days till it settles. My specialist is not too worried about it as it settles itself . I was just wondering do other people find it very weakening. I have diffuse bronchiestasis and at severe end of spectrum

Thank you for your reply. I don't know anyone with this side effect of bronchiestasis

Jk

[Kerrieblue in reply to Jk1957]

Hi,

I have had Bronchiectasis for 35 years. Occasionally cough up blood, but notice it is worse when I do certain physical things. Have a lot of pain in my left side and have been told there is lots of scar tissue here. I think as we age, capillaries weaken and make bleeding more common. It is usually not a serious problem and generally stops by itself. Try not to be too alarmed, as that will make you feel stressed and weak.

[Nikkers]

HI JK

I've had Bronchiectasis for 70+ years. I have occasionally coughed up blood, but not on a regular basis. I have been told by GP and specialists alike, that this is normal for this disease, so I wouldn't worry too much. However, if it's a lot or most of the time, get it checked out. It could be a simple explanation, like strain from coughing, or the results from an infection. Yes, it can be a very debilitating disease, which at my age is just another excuse to sit around and watch the tv all day! Lol. Good luck. XX

[Jk1957]

Thank you both for such reassuring replies and great to hear from other people who have same problem. Just wondering what do you do when it happens . In the last few years I find I just have to almost have complete rest as even taking a few steps sets it off again . I know it has to be more than 600 Mils n 24 hours before it is dangerous. Thankfully when I have a severe one it is probably between 100 & 200 millilitres & on other occasions it is not projectile & much less.

I have worked till a few years ago which is great . Now that I'm retired my hobby is walking and I could walk for an hour a day up till last year but now find after about half an hour my lungs feel tender and fluidy and this brings on a bleed . Just wondering has anybody else noticed this .

This is the first forum I have ever been on and even the few replies I have received have been so beneficial.

Thanks so much

JK

[Offcut]

Sometimes the blood is from the throat because of the coughing.