Hi everyone, I'm new to this, was just wondering if anyone else has been assessed for lung transplant if so could they give me some info.

[caz1988]

I've had the big respiratory test and I've to meet with my consultant in june for results of this what's the procedure after this thanks in advance.

[dall05]

Hi Caz,

I have been through the transplant assessment procedure and may be of some help.

Step 1, consultant refers you to transplant team and it takes around 3 months before they see you

Step 2, in the mean time your hospital can do some tests, I had an angiogram, a bone density scan, full respiratory, 24 hour urine check. 6 minute walk test.

Step 3, Ist 1 day visit to transplant hospital for stage 1 assessment, chest x ray, blood tests, 6 minute walk test, another full respiratory spirometry, talk to transplant consultant.

step 4, 4 day inpatient stay at the transplant hospital. Lots of different types of scans, more blood tests, another 24 hour urine test, another 6 minute walk test, an invasive heart pressures test, talk to transplant co-ordinator and consultant.

Step 5, wait for phone call to hear if you have been excepted and confirmation you are live on the list.

Step 6. Return to see transplant co-ordinator every 3 months for chest x ray, 6 minute walk test, bloods, and talk with consultant.

I think that's about all. Good luck Caz

Tony

[caz1988 in reply to dall05]

Thanks Tony

[chrissyk]

hiya caz i cant only agree with tony x my hubby just been put on active list he started his journey 2012 . good luck x tony have you had your transplant ?

[dall05 in reply to chrissyk]

Hi Chris, I've been on the list just over 12 months now but due to an abscess removal operation I'm suspended until I see the transplant team on June 10th when I should get back on.

In the 12 months I've had 1 call which was followed shortly by another call to say the lungs were not a match so the wait goes on.

Tony x