hi everyone, i well write my questions first in case someone is not interested in reading all of this but can help answering, My questions are;
1/ does anyone have bad Palpation that stays for days after an Asthma attack!!
2/ do you have dizziness! Feel unsteady and dissociated especially in crowded areas?? Or have any kind of vistubular issues after an Attack?
3/ have you been diagnosed with non allergic asthma and turns out it’s allergic one?
I've been dx with non allergic asthma in October. I want to see if anyone has similar symptoms as mine, i am really suffering and about to lose my mind !! When the first asthma attack happened i suffered from dizziness and increased HR (150 in regular activity) for days and weeks after the attack subsided, meanwhile my breathing was not so good also but I experienced high Heart rate even in setting and breathing normally. I struggled until my Symptoms are controlled. Got dx also with BPPV and got treated for it and everything was ok for about week after 2 months of suffering. Ive had a chocolate present for Christmas and i ate it and felt immediate mild chest tightness. Stopped it, after few days was there in front of me and i ate a portion like without thinking and boom, a more serious attack, took the inhaler 2 times and went away, sadly im so dizzy, jittery, high HR AGAIN, like im back to Zero!! I am so confused that my blood test(not skin) for allergies are normal!! I am allergic to pollen and dirt and having Sinusitis since i was a kid!!
I am so so so confused, i even got a vision problems and corrected them with glasses, brain CT normal, blood tests normal. At the begging thought it was probably i viral infection induced all of these MYBE! But now i can think of food allergies! Please do not hesitate sharing your Symptoms that you thought in first were not asthma related but turns out it’s related, or if you have any an explained or wierd symptoms that comes in your bad days. Thank you in advance.
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My heart rate goes up when asthma is bad or if an infection is present too but tends to return to normal whn asthma settles,or infections resolved. I see u have BPPV which could account for Yr dizziness.I'd write down foods and other things that trigger u to discuss with gp. A friend of mines reacting to foods she's always eaten,and some spices .she takes an antihistamine daily.
Some people feel jittery and off with higher steroid use.
I would see your GP to check out these issues. Like Patk1 I also get high HR when asthma is playing up but not all the time.
Re allergies - it is possible to have negative allergy tests to things you react to in real life. Sometimes it's because you were on medication for the tests (they don't always make it clear what to stop when). But sometimes things just don't show up! I have hayfever and react to birch pollen and it never does. Sometimes allergy blood tests can show up more than skin prick, if you haven't had them. (But I had both and was careful re meds and still nada).
I once happened to be seen by a consultant while in hospital who was an allergy specialist. He asked me about allergies and I told him all this. He said it was frustrating because negative allergy tests aren't that uncommon and he knows it could mean no allergy or a false negative. I remember someone at work (not asthmatic) having allergy tests and she came out as super allergic to things she didn't have an issue with (eg some seafoods she ate with no reactions) and supposedly not allergic to things she reacted to strongly.
I'd also say sometimes you can have an unusual reaction that isn't in the standard tests as they often just test for the most common allergens. And sometimes you can think it's one pollen but it's another one.
Also, some asthma triggers, even in food, aren't 'allergic' as such. By which I mean they aren't working to trigger asthma in the way that would show on an allergy test as that tests for a specific biological reaction. I have some reactions to fruits and flowers that are quite odd and act sort of like an allergy but sort of not. They only trigger asthma for me, not other allergy symptoms, and antihistamines don't seem to do anything for them.
I get them from eating or smelling the plant/fruit or from anything reasonably pure made from them eg rose hand cream - so I don't think it's pollen. But like an allergy, my first reaction was mild then it got worse.
I know my way round medical literature due to my work (not a medic but work with medical research) and I can't find anything on this. I don't think my doctors know either as they can be dismissive that these are triggers.
So I have no idea why but I wanted to share to show there's still plenty we don't know about asthma and asthma triggers, and plenty that won't necessarily show on tests! Especially the non-allergic ones and the less common ones. But if you think something is a trigger then obviously be careful with it it whatever the tests.
Hi,So sorry to hear you are struggling. Asthma is scary and will make you anxious. I'm 73 and started my asthma journey in my early 40s. In July of last year I had my first dose of BPPV. It hit me at 3am and was absolutely terrifying. I have a lovely chiropractor who did the eply (i think that's spelt right)maneuver which sorted it. I had another, milder attack during a pilates class in December.
It is all scary and nerve wracking.
If you're on steroids, they will make you feel strange also. Many inhalers have side effects.
What i am saying is I completely understand how you are feeling. Anxiety is a horrible feeling that makes us feel unsafe and insecure, particularly when in crowds where we may feel out of control of our feelings.
Be kind to yourself and try to relax as much as you can. Slow deep breathing can help lower your heart rate and help you feel calmer. It's upsetting when you feel you are going backwards and not forwards. Do things that make you happy.
In relation to food allergies or intollerancies, I would recommend removing foods one at a time to test your reactions. I'm intolerant to lactose, and I do find nuts tighten my chest.
I too have right sided vestibular disease since my 40s, it's helped by the Epley Manoeuvre too. There's now a clear NHS video of the manoeuvres (for right or left ear). Mine was diagnosed by the GP.
I have no idea why this happened after an asthma attack, went to ENT and he wasn’t so sure why, could be the stress of attack triggers the Vestibular issue.
I suspect mine happens after a bout of stress and a friend who also has it is positive that hers comes with stress. I've found doing the Epley Manoeuvre early works better, if I leave it then it may take 2 or 3 goes to shift. The physiotherapist told me that keeping eyes downcast - not closed or still & staring as I usually did - is preferable and that deffo helps. Is a pain in the a*** for sure. I usually go to balance class weekly too.
I've had allergies for years. The first time was to penicillin, then I've developed more over the years. It sometimes takes time to work out what is affecting you. It is a complicated subject and some people have what is called oral allergy syndrome. The best book I've read on the subject is "The Allergy Bible" by Prof J Brostoff and Linda Gamlin. He explains about different types of allergy and how to manage them. He was a leading Consultant in Allergies.
Hi Sorry to hear that youve had all these symptoms. Have you tried cutting out sugar ( as hard as it can be) but since I cut out chocolate, sugar in my coffee, biscuits etc my asthma has improved
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