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Asthma tablets Montelukast & Azithromycin

Julesc12 profile image
35 Replies

my GP has changed my inhaler from fostair 100 mg 4 puffs a day to Trimbow 172/5/9 four puffs a day.

I am giving this ago as every year in the winter I get a chest infection and end up on steroids and antibiotics.

My question is on some tablet form I have been offered above . I have read allot of horrible side effects on them . Has anybody had them and had any side effects and are they any good ? I don’t like the thought of living on an antibiotic tablet 3 times a week . Thank you Jules

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Julesc12
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35 Replies
Chip_y2kuk profile image
Chip_y2kuk

I've been on azythromycin for about 7 months (3 days a week)

Also I was on montelukast a long time ago .... I didn't like montelukast and didn't think it was doing anything attrr many discussions with many doctors it was decided it was "worth trying" to see if it did make a difference (it didnt)

Julesc12 profile image
Julesc12 in reply to Chip_y2kuk

Which one didn’t make a difference the Azith or montelukast ? Any side effects with Azith please . Thank you 🙏

Chip_y2kuk profile image
Chip_y2kuk in reply to Julesc12

The montelukast, I was no better on it and no worse off once I stopped it ( i did take it for years... asking if/how I could stop it and kept getting told no)

The azithromycin has kept me infection free for 5 months, I used to get an infection every 2-3 months, it's also lowered my FENO to normal levels (something about azithromycin being used long term to reduce inflammation, apparently its well tested and researched as a use its just not recognised by the manufacturer... so it's an "off label use" )

Julesc12 profile image
Julesc12 in reply to Chip_y2kuk

Thank you great advice I think I will get the Azith and leave the other 🙏👍🏻

Chip_y2kuk profile image
Chip_y2kuk in reply to Julesc12

Have you been referred to a specialist? ... im surprised your GP is prescribing azythromycin... mine wouldn't give me a rescue pack without the hospital saying so

Julesc12 profile image
Julesc12 in reply to Chip_y2kuk

GP referred me to respiratory specialist and had a CT scan and spirometer test all good , changed my inhaler to Trimbow from fostair and recommend the tablets but I was hesitant as the reviews on side effect and heart scared me

Chip_y2kuk profile image
Chip_y2kuk in reply to Julesc12

They made me have an ECG before I started the azythromycin but a quick Google and its something to do with an elongated something (something to do with electrical pulses) and if they are already elongated azythromycin is likely to make them worse (which they tell me wouldn't be good)

But my heart is normal (god knows I've had enough tests on it) so the ECG returned as normal and I started azythromycin early May this year.

Julesc12 profile image
Julesc12 in reply to Chip_y2kuk

Great I will get it checked before thank you 🙏

Chip_y2kuk profile image
Chip_y2kuk in reply to Julesc12

Good luck, hope it goes well for you

peege profile image
peege

This will be my fourth winter of taking Azithromycin 250mgs on Mon Wed & Fri from November to April as a prophylactic. I've found it fantastic at keeping infections at bay as my asthma comes with a high propensity to chest infections. I'm thrilled not to be getting any more damage to my lungs and very happy to take them. Azith seems to have the added bonus of drying any mucus in my lungs. No side effects so far especially as I had severe acid reflux already and its no worse. I used to have endless infections then abs and more abs, 5 times they turned in to pneumonia.

Addendum, I've been taking montelukast for about 10 years with no issues.

Julesc12 profile image
Julesc12 in reply to peege

thank you for that , I’m the same acid reflux and mucus in throat so throat clearing allot . Chest infections every winter I’m so sick of them . I want to try the Azith but the side effects after reading them bothered me so I appreciate the feedback

Julesc12 profile image
Julesc12 in reply to peege

just wondered which inhaler you are on ?

peege profile image
peege

Fostair & Salamol (Salamol I've not used yet, it's replaced my ventolin without explanation 😡).

Julesc12 profile image
Julesc12 in reply to peege

Thank you , I was on fostair but they now trying me on Trimbow so will see and after reading your story I think I will try the Azith 👍🏻

peege profile image
peege in reply to Julesc12

Forgot to say, I always take the Azith during or just after brunch as I do with any antibiotics regardless of whatever the leaflet say(s as advised by a good GP). I cant take any meds, vets or supplements onnan empty stomach

Julesc12 profile image
Julesc12 in reply to peege

Thank you 🙏 great feedback I have just asked my GP for some 👍🏻

discoballs profile image
discoballs in reply to peege

Me too on Ventolin

Danielmystar profile image
Danielmystar

I'm on trimbow and Azth since April 2018 no side affects and have only had one infection since the Azth I'm on they daily and I'm so glad I'm on them x

Julesc12 profile image
Julesc12 in reply to Danielmystar

Thank you 🙏 that’s great to hear

Danielmystar profile image
Danielmystar in reply to Julesc12

Let us know how you get on x

Julesc12 profile image
Julesc12 in reply to Danielmystar

I will do , it was the side effects with heart that scares me to start it that’s all

Danielmystar profile image
Danielmystar in reply to Julesc12

It's nit nice when new medication scares you but it's understandable hopefully you will be fine good luck x

Collienut profile image
Collienut

I'm not on Trimbow, but I've been on Montelukast and Azithromycin for many years. Montelukast stopped the coughing during the night, only side effect I get is hot for a little while an hour after taking it-but I've only read of one other person having this as well 😂. Azithromycin, I take it 9 out 12 months a year as I have tinnitus,certain brands give me an upset tummy for about half an hour a couple of hours after taking it. So I do vary the time I take it if I need to go out, but it's worth it as I used to produce copious amounts of sputum but now I hardly produce any and I can walk up hills again. I'm on Fostair 100/6 which works well for me.Maybe agree to trial them and see how it goes? xx

Julesc12 profile image
Julesc12 in reply to Collienut

Thank you this is really helpful 👍🏻

Julesc12 profile image
Julesc12 in reply to Collienut

Have you ever had any ECG check ups ? I was told if on Azith you have to as they can interfere with the electrical impulses to your heart . Reading side effects they sound scary

Collienut profile image
Collienut in reply to Julesc12

No, I've not had an ECG, but I've only spoken to not seen my consultant since COVID happened. I'm waiting for an in person appointment this time, but I'm guessing it will be a long wait. They sometimes run blood tests though, which I think is because of the Azithromycin.

Julesc12 profile image
Julesc12 in reply to Collienut

Ok , good luck 🤞

Biggles2612 profile image
Biggles2612 in reply to Collienut

I get hot after montelukast too. I have also been moved recently onto Trimbow

Julesc12 profile image
Julesc12 in reply to Biggles2612

Thank you . Use a spacer for the Trimbow and don’t breath in to fast or can cause thrush on back of throat . Always gargle after and spit out . Good luck 🤞

Patk1 profile image
Patk1

Azithromycin is v gd 4 many people.as well as being antibiotic,it has anti inflammatory benefits.Montelukast is a gamechanger for some people - it was for my 5yr old grandson.neither of us have side effects x

Julesc12 profile image
Julesc12

thankyou for this , the Azith is just scary reading about how can change your heart rhythm etc so the feedback helps thank you 🙏

Naturesvalley profile image
Naturesvalley

I took azithromycin for over a year until my chest stabilized. Once it started to work I was very good and stable. I stopped it in December last year. Have just been put back on it for the winter months as I tend to have flare ups during winter. It is important to have regular liver function tests with it.

Julesc12 profile image
Julesc12

thanks for advice 👍🏻

Horsemadfamily profile image
Horsemadfamily

I've been on Montelucast for well over a year, zero side effects and a month ago I was escalated to Azithromycin daily, again zero side effects. However zero long term improvement as well. I did get some relief for a month or so from Montelukast but it was short lived. As some people have commented I had to have an ECG before respiratory would prescribe long term Azithromycin. Really hope they work for you.

Julesc12 profile image
Julesc12

thank you

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