How is everyone? : I am struggling... - Asthma Community ...

Asthma Community Forum

21,912 members24,562 posts

How is everyone?

Larrythelathe profile image
23 Replies

I am struggling. Peak flow is 220 so not terriable but not good. I have also been so tired since leaving hospital.

I have dropped to my new maintenance level. I am shatterrd

Written by
Larrythelathe profile image
Larrythelathe
To view profiles and participate in discussions please or .
Read more about...
23 Replies
Tengudreams profile image
Tengudreams

Sorry to hear. I dont have a peak flow but Ive gone from one puff of symbicort to now 5-7 a day. Just randomly last week it started up on me. Im new to asthma. Heart goes out to you. Very tough. Day by day...keep pushing through it.

Troilus profile image
Troilus in reply to Tengudreams

Hi Tengudreams,

It is a good idea to keep a check on your peak flow. That way you can see if you are dropping and can adjust your meds to prevent an attack. Your Dr or asthma nurse will also find it useful when you are reviewed.

Tengudreams profile image
Tengudreams in reply to Troilus

Getting one

Nowwwww

Tengudreams profile image
Tengudreams in reply to Troilus

I got a peak flow meter within hours of you telling me to. Even feeling SOB and not taking puffer, I scored a 700. Frustrating.

in reply to Tengudreams

I usually score 700, but when it drops below 600 I start having problems with SOB. I spoke to a doctor recently and he advised that this was a considerable drop. You might find you're normal is better than 700 when you're breathing okay.

Tengudreams profile image
Tengudreams in reply to

Yeah I saw in another post about your peak flows, and they were kinda like mine. I felt good last night and blew a 700. Didnt feel super great in morning and blew a 700. Lol. Respirologist will see me in a month...yay...a month.

Troilus profile image
Troilus

Hi Larry, Sorry you are feeling so rough at the moment. I hope you get a good nights sleep and recover quickly.

Jimmy-Lyden profile image
Jimmy-Lyden

Phone your GP. What's your normal PF number? If you're shattered it may be that your body is working overtime just to keep going, hence the 220. Do you have a cough? Is there phlegm? is there colour in the phlegm? Again, call your GP.

Poobah profile image
Poobah

Hi Larry. Sorry you're not so well. If you've been discharged from hospital then it's best to speak with your GP about what happens now and about your planned recovery. It's important for you to understand what you can expect and what to do if you're not making progress. GP should also review your meds to ensure that you have everything you need. All the best.

ChrissieMons profile image
ChrissieMons

You should have a follow up appointment with your GP when you've been in hospital, so make one if you haven't already. If you're blowing 700 you are clearly getting better! However, you may have to be patient and give yourself time to recover. Tiredness is inevitable as it takes such a lot of energy to just breathe when you have an attack. Relax and look after yourself, or better still, get someone to look after you!

Maz_87 profile image
Maz_87

Hope your ok

Larrythelathe profile image
Larrythelathe

Hi

I am feeling much better today. Nearly 350 on peak flow. The family and I had a picnic and that cheered me up. I was on the down slope of steriods as well. I have a huge high first day. Then it's all down hill from there.

The problem with GP is she just cannot be expected to know what to do. I normally tell her what hos decide. The hospitals have said they are at the end of what they can do and try.

Ready above people scoring 700. That would be like winning lottery for me.

I'll be ok. I got a good support circle and I know I should relax and let go. But I am not ready yet. If you know what i mean. I never want to be passive patient.

It's weird I like writing on here. No way would I say this my friends

in reply to Larrythelathe

Hi Larrythelathe,

Try not to worry how high your peak flow normally is, I read about 700 which I'm told is normal for a 42 year old at my height, but my asthma is more allergic than general, plus I take 4 puffs of steroid inhalers every day. What I've learnt from numerous docs is that it's not how high your peak flow is, but how quickly it drops when having an attack which is bad. Mine drops to 550 when I experience smoke which I was told was about 18% and was a considerable drop. One thing I've learnt from this forum is how everyones asthma is different, but it's nice to talk to people who share similar experiences. Take care :)

in reply to

PS glad you're feeling better!

lucie982 profile image
lucie982 in reply to Larrythelathe

Ive been in such a similar situation this week, isnt it super scary when you feel so unwell.

Im currently trying to ride through the steroid side effects.

Ive had 2 A&E visits last week, iv pred lots of nebs then a magnesium infusion.

Ive never felt so tired in my life. Ive already decided if this course of steroids doesnt work ill return to hospital and not be so egar to be discharged.

Im feeling a lot less breathless now , hope your on the mend too

Larrythelathe profile image
Larrythelathe in reply to lucie982

I glad to hear you feeling a bit better. Did the magnesium work for you?

I am just the same super keen to go home then I need help again. I know it's not east but relax and go with the flow. I used to try and fight it the stress just made things worse.

Do you have home nebs? I hate pred with a passion. The side effects are the devils work I am sure :-)

Hope you get some sleep

Larrythelathe profile image
Larrythelathe

That's fair enough. We are all different. I can weez like a train but my chest be completely silent.

Tengudreams profile image
Tengudreams

Anyone know if peak flow should increase or decrease after exercise?

EmmaF91 profile image
EmmaF91Community Ambassador in reply to Tengudreams

In the immediate aftermath a well controlled asthmatic/non-asthmatic should find that it doesn’t really change, and if it does it may increase or decrease slightly (usually decrease I think unless the exercise helped with mucus clearance??). For an uncontrolled asthmatic it will normally drop. Over time however exercise may increase best PF for everyone (its the reason people with a history of exercise esp as children tend to have higher than average best PFs)

Hope that helps answer the question

Larrythelathe profile image
Larrythelathe

It should increase. But I doubt that any of us would increase.

Tengudreams profile image
Tengudreams

Does anyones peak flow go higher when sitting down? My chest is tight and I blow a 750 sitting and a 700 standing. Do yours go higher sitting or standing? Also...does anyone feel like they can breathe better after the peak flow? I find it reduces tightness...

AirIsUnderrated profile image
AirIsUnderrated in reply to Tengudreams

You're supposed to do the PF standing. I also find mine is higher sitting down. I guess the chair/angle you sit in plus before/after food makes the seated score inconsistent. Personally using the PFM makes my chest itch worse and get tighter. But any extra breathing exercise has been setting me off - the antihistamine has helped this for me.

Tengudreams profile image
Tengudreams in reply to AirIsUnderrated

Im a life long martial artist and competed extensively. I highly recommend using bas ruttens 02 trainer for lung power. Check it out. It has helped me immensely. Look it up and see if its something youd be interested in:

You may also like...

How long for Clenil to work?

from but think may have been the \\"trigger\\" for the asthma to start. Peak Flow shows...

How long for Prednisone to kick in?

steroids. Today I have started to wind down the steroids as per usual but I still have the tight...

How to take Prednisolone tablets

with covid but for the last few days my asthma has been getting worse so I sought over the phone.

How To Tell If Ventolin Inhaler Is Running Out?

fever… I have been very well controlled since switching from the brown Clenil to the pink Fostair...

How would a rational person deal with this? What would be their thought process?

tell. I have been checked out medically it has been more or less put down to anxiety. I have kept...