Hi everyone

[Tracey1972]

Hi everyone hope everyone is doing well, me in royal Brompton hospital in London away from home and family to far for them to come on my second week and down from 40mg prednisone to 20 mg there trying to get me down to 10mg never been that low before but we have hit 20mg today and my chest is struggling big time on it back on 4 hourly nebuliser this evening started last night didn’t feel good and had a neb the. But seemed better this morning went to the gym with the physio done spirometry test but comes tea time i started feeling breathless sats started to fall and my heart rate is going mad went upto 159 earlier then 126 now 120 it just won’t go below 100 and that when I’m sat down doing nothing and no salbutamol all day so got to ride this out now and hope it settles down there saying the reflux not helping meant to b going home on Tuesday24 hope everyone doing ok take care

[Junglechicken]

Hi Tracy. Your obviously very poorly. It’s very sad that your family are too far away to visit. I’d hate not to have my mum and dad with me if I was ill in hospital (although I think my dad would probably break all the hospital equipment as he’s a bit accident prone 😂). Wishing you the very best in your recovery and fingers crossed that you get home on Tuesday🤞

[Tracey1972 in reply to Junglechicken]

Wish my parents were still here or mum anyway miss her big time x

[Junglechicken in reply to Tracey1972]

I’m sorry to hear that. Your strong and will get through this difficult time. There’s always sunshine after every storm ☀️

[hilary39]

I'm so sorry! You must feel miserable. Do you have a book or magazine or TV or something to help you pass the time? I often find waiting for your body to recuperate after an attack to be one of the hardest parts of this disease. Take good care and get as much rest as you can!!

[Tracey1972 in reply to hilary39]

Yea got plenty to do in here and lots people to talk to there very nice in here

[Kitten-kat23]

Keeping you in my thoughts. Hope all goes well. Good luck.Take care and stay safe.

[Karjade]

Hi Tracey. You poor thing! Never mind you are definitely in the right place with lots of people to chat to! Hopefully you are talking to your family on your mobile so they are supporting you that way. Not too long until Tuesday and you will be home. Take care and lots of love and hugs xxxx

[Shellc]

Hi Tracey just wondering why they are cutting pred down so quick , I’ve been on pred base rate only 5 mg and trying to get off , I found if I went below I syufggled as only 20 per cent lung function , so I’m cutting 1mg every 2 months so hopefully my body won’t notice , might take me 6 months or more to get there , can u not do something similar say 1mg every week xx

[Redhots7]

Sounds like you are in a great place!

Don’t rush to get home, hopefully they can stabilize you !!!! Do you play games on your phone ( do you have I-phone ?). I have several I could recommend to help you pass the time if you want 😘

[Tracey1972 in reply to Redhots7]

Hi yea I play loads games I got the iPhone XR be lost with out games etc x