Xolair is working!: As the pollen count... - Asthma Community ...

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Xolair is working!

MrsCMK profile image
13 Replies

As the pollen count crept from medium to very high over the last week, I went about my daily business in the usual fear of not being able to catch a breath (pollen is my nemesis)!

I don’t want to jinx myself but I’ve experienced what I can only describe as rather mild breathlessness (for me) and have barely used any salbutamol. I’ve come to the conclusion that after 2 doses of Xolair, it’s working!

Who else has experience biologicals working this quickly? I still have some way to go yet to return to normal but this is a breath of fresh air (quite literally!)

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MrsCMK
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13 Replies
paula66 profile image
paula66

Been on it for 2 years now ...still get a lot of breathless days but it's halved my chest infections and my hayfever is so much better xx

MrsCMK profile image
MrsCMK in reply topaula66

I love hearing these success stories. So glad to hear that it’s made things better for you 🤗

angievere profile image
angievere

That’s lovely to hear. Took a few months in my son’s case but it turned his life around. It was like a miracle.

MrsCMK profile image
MrsCMK in reply toangievere

Wow! That’s amazing. So happy to hear this! I was super nervous to start the treatment but really glad that I did now

Mogget profile image
Mogget

I’m really pleased to hear this! I’ve recently started on it again and am hoping it works for me. Had a horrendous night with asthma last night so reading this gives me hope x

MrsCMK profile image
MrsCMK in reply toMogget

Sorry to hear that you had a bad night. Fingers crossed for you that it works for you! I really wasn’t expecting it to work so quickly. The first 3 weeks weren’t too pleasant, I was pretty poorly and was convinced that I was allergic to it. The second dose that I had the other week has been a totally different experience and a real game changer.

Mogget profile image
Mogget in reply toMrsCMK

Thank you. Really great that it’s making a difference for you. May it only get better and better!

Jpbbb profile image
Jpbbb

I'm glad to hear this from you. I'm about to go for my first injection tomorrow. I'm really nervous about side effects but greatful for your posts bc it sounds like the SEs weren't too bad for you.

MrsCMK profile image
MrsCMK in reply toJpbbb

I’m now 5 months in and it’s so surprised at how much better I feel. I’ve gotten through the entire summer without any steroids, no chest infections, no days stuck in bed and barely using salbutamol. It’s also calmed my allergies massively too.

I was nervous before my first dose too but all I can say is to go for it and trust the specialist team around you.

Fingers crossed for tomorrow, I’m sure you’ll be fine :)

Junglechicken profile image
Junglechicken

That’s wonderful news Mrs.CMK. 🤗. I know how difficult things have been for you over the last year.

MrsCMK profile image
MrsCMK in reply toJunglechicken

Thank you so much☺️

When I started Xolair, my fear was being disappointed by it not working. It’s been a game changer though! For me the ultimate test will be how I am when I’m out of shielding because I’ve been shielding since a week before my second dose.

Junglechicken profile image
Junglechicken in reply toMrsCMK

Fingers crossed that all goes well🤞

Steve_B profile image
Steve_B

Absolutely the same as you MrsCMK. I have had two goes and I am exercising, and even pulled some wattle trees (I'm in Australia) which would have normally killed me, and BOOM! I too dont want to jinx it but all signs are great

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