So it’s been an ‘entertaining’ few weeks. Go home to parents for Christmas and find that I’m no longer fully immune to my cat 😭😭😭 (I’m allergic to cats but cause been around him so much I’ve never really reacted to him before). I was a naughty asthmatic over Christmas and took the principle of ‘its Christmas’ to cover my abuse of home nebuliser (by Boxing Day I needed 6 nebs a day, plus ventolin to top up at 3hr Mark, as well as 4 fexofenadine a day and pred 35mg - i won’t go to 40 unless I’m made too).
On 27th I was ready to admit that it was no longer Xmas and so I needed to do something. Contacted my local hosp team for advice (as was out of area) and told to see a GP to see if I needed hosp. Newsflash, I needed hosp 😂😅.
Go to a hosp I’ve never been to before and don’t exactly have a good experience. Long story short after 2 nights I felt safer to be at home self-managing than in that hospital where they didn’t know me and the 2 resp Cons hadn’t heard of my biologic 😬 (this was the cherry on top of a very badly made cake). Get discharged knowing I’d be needing 3-4nebs a day anyway (seeing as I meant to hosp if I need more than 2...) but having fought to stay the extra day, and been in contact with ANs I just accepted. At least at home I can do what I need when I need it!
Follow up call from ‘my’ AN team and I’m encouraged to try and manage at home til they can get me in to hot clinic (appt 16/1) because a&e is hectic (they’re in the bottom 3 nationwide for meeting targets in Nov/Dec I think. But that’s cause they won’t send home unless you’re defo safe too, plus we have a lot of elderly in my area... to the point they have their own a&e just like the kids do 😅). I hold on, doing 3-6 nebs a day depending on activity, and ‘play’ with steroid dose (cause was too high too long and couldn’t deal with the side effects much longer. Esp as I was trying to work and they were making it a lot more difficult).
Got to see my con in hot clinic and defo worth the wait! Could tell she wanted to admit but didn’t want to say... til I told her that’s what I’m expecting and came prepped with PJs, chargers, and a change of clothes etc. ‘Oh good. Let’s see if they have a bed on gunthorpe’ (the ‘lower priority’ resp ward). They do!!! Now in over the weekend for a couple days hydrocortisone therapy to see if that stops the limbo and gets me back stable and able to do! Review on Monday from my con but should be discharged maybe with azithromycin to see if that helps. I must remember to ask for a possible letter explaining if I say I need more please give me more (cause fed up of having to wait x amount of days before someone listens if i don’t have my con 😒)
Frustrated cause had first hosp been good I probs wouldn’t need to be in now, but on plus I have been listened to and I am getting what I need to get sorted (and with no fight either 🎉🎉). My con has won yet more stars from me 😂
Hope everyone else is doing ok
Severe asthma and support in the community & Oxygen
