Hi everyone, first post.. And it's on behalf of my Fiance who ive been with for 7 years now.
This is going to be a longish post but I'm hoping for some help finally! from anyone!.
My partner (Diane) is her name, has had asthma since her early teens (she's 24 now) and it's always been pretty severe. However she did eventually receive an operation to remove polyps from her nose which helped her for all of a month and then she basically went downhill again, she has always struggled to breathe and when she's in her worst state she constantly has a tight chest cough really severely and can't walk to the kitchen without being out of breath.
She takes so many tablets every day im talking 6 or 7 on a morning and 3 on a night, this has went on for years and i think personally she is just being fobbed off by the hospital etc. She did get accepted for the Xolair injection which actually did seem to help for a few months but now it simply doesn't help. She hasn't seen a consultant for around 3 years now and everytime she mensions to the nurse who gives her the Xolair she just ignores her and sends her on her way.
It's getting to the point now where she can't take it anymore. she did lose 4 stone at one point (she takes steroids everyday) as pretty much all of you will of guessed, however she ended up pregnant with our beautiful daughter who is 2 now, she is still on all of the tablets she takes which don't help to be honest. and weve finally got a doctor to write a letter of complaint to the hospital about the consultant business.
Anyway to get to my point, were stuck... we have no clue where to go now, we know Xolair isnt working her tablets dont help and we just simply dont know who to turn to or where to go from here for some help for her. shes a perfectly healthy 24 year old woman (yes shes gained the weight she lost back now thanks to the constant cycle of steroids) this is baffling.
Thank you for any help you may suggest!! we really appreciate anything that may help her out at all.
Stuart