So fed up and don't know what to do next......

After Molly's review a few weeks ago we started on the new regime but to no avail we had several terrible nights and then got a call from nursery who were very worried about her. Took her to docs who changed her on to Seretide and Cetirizine alongside salbutamol and montelukast. There was a few days reprive and then last night was sa total nightmare.

She couldn't catch her breath and although she doesn't go very blue her lips turn blue with coughing. She gets into a cycle where she coughs so much she can't catch her breath and then so tired that she falls back to sleep and breathes really shallowly so then she starts coughing again. 10 puffs of salbutamol help but not for long and we have to start all over. I did think it would be best to drive tot he hospital and then wasn't sure whether they would class it as an emergency. The nights are like this at least 3 times a week and I am sleep deprived and so is she. The days are hit and miss although she's never as bad as at night. She has anti-allergenic bedding, sleeps propperd up, I damp dust, hoover and waSh bedding religiously.

I am going back to docs this afternoon but am feeling like banging my head against a brick wall. Is there anything that is goin to make this better... had anyone else got through this stage with success? What is the best step? Would you bring her to the hosp when she gets that bad so they can see it in all its glory?

Thanks

Annie x

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Hi Annie, Does she have nebuliser at home and if so do they help better than the inhalers? If she is having so much trouble then please do not hessitate in taking her to the hospital. Even if you feel like your wasting there time, they certainly wont. Not knowing what doesage she has i can not say whether another review would help.

Shane at the age of 3 was very poorly with many admissions and even more visits to A&E. After the local cons' had tried everything he could think of, shane was refured to the brompton. There he had a vigerious amount of tests done and it was there he was provided with a home neb, and by the cons who point blanky hates home use of them, so our resp nurse keeps telling everyone. His view was if Shane needs a neb he needs admitting, but over time he has settled and we now have a plan on home nebs, ie how many to give and when before taking him A&E.

Shane management has got alot better over the past 3-4 years, although he still has bad times. He has a care plan for school and has a nebuliser in school aslo, arranged by his resp nurse, for those days where he is ok but not brill, unlike today where he is, yet again, off school due to his asthma.

Bring your concerns up with your doctors and please dont ever think whether they feel its an emergancy or not, if she is unwell, and a parent knows there child better than anyone, take her there, even if to give you peace of mind. Best to be safe than have regreats later, as they say.

I hope all is well with Molly and she recovers and you both have a restful night.

Take care and thinking of you both.

Sharyn xx

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Hi Annie,

I can only talk through experience...

When our middle child (Michael) was an infant he had quite bad wheezy/rattley asthma and he was always worse in the evening. We had had Michael at the GPs on numerous occasions and we were always told that Michael had a recurring chest infection and they kept on prescribing Amoxil (s.p.). On the very day of his first birthday he was particularly bad during the day and got progressively worse as the evening went on. So I decided to bypass the GP and took him straight to A&E to get him checked out because we were becoming very anxious about his breathing and his inability to clear his lungs. The A&E staff were excellent and recognised straight away the Michael was in fact suffering from asthma and this was treated immediately.

My point is, trust your instincts and take Molly to A&E (any time) if you are becoming concerned. And as BlueAngel says – please raise your concerns with your GP.

Take care,

Derek

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Thanks

Thanks for your messages - I think you are right and I have to trust my instincts. I took her to the GP again who suggested yet another inhaler but I have no idea if this will work any better - She's three and as of today, her regime is:

Salbutamol

Seretide 50 (2 puffs twice a day)

Intal (2 puffs 4 times a day)

Montelukast

Cetirizine

It seems like a lot of medication to me!

Have you tried these combinations??

Thanks again for the advice!

Annie x

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Hi, I know how you feel with seeming like alot of medication for such a small/young child. Shane currently takes Ventilin 100 2 puffs 4 times a day and when needed, seretide 250 2 puffs twice aday, montulaske 5mg. He also can have upto 3 nebs a day and takes anti-allergy medication during the spring/summer months. He is fairly short for his age, 7 and still gets in 4-5 clothing,which we put down to high doesages of steriodes. The cons' even considered having him take a low dose of pred every other day, but i felt he wasnt that much out of control and asked if we could leave that step untill i felt i couldnt keep his asthma controled, and they agreed as he is well monitored both day and night.

I do hope things ease up for Molly and yourself and let me stress again on how not to worry over wasting hospital staffs time, if your concerned it is more than enough to warrent a trip.

Sharyn xx

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hey, the main thing for me to say is - take her to a&e - that wsay they can see her when she is presenting these symptoms and judge what needs to be done rather than muddling through for days and weeks on end, especially if she is better during the day (when you visit the GP) than at night.

my sonwho is 3 takes

montelukast 4mg

intal 2puffs 4x a day

atrovent 2 puffs 6 hourly

flixotide 125 2 puffs 2x day

serevent 2 puffs at night

theophyllin 3.75 mls 3x day

sodium chromoglycate 100mg 4x day

azithromycin 6.25 mls 3x week

cetirizine 2.5 mls 2x day

and salbutamol as required via neb

so as you can see he is on some of the same meds as your daughter.and i do know how it feels to see the list get longer and longer you may need a bit more time for the meds to really sink in(both literally and mentally) but a review may help, both to ease your concerns and to make the cons aware of them. but the main thing to do is take her to the hosp, people go there with stubbed toes so im sure they wont mind you taking her, honest!!!!

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oh and he also takes pred every 2nd day but that is hopefully going to be cut out soon!!!!!!