Still Waiting On DLA .....

Hi all, I've now been waiting since mid Jan for a deciession on shanes DLA claim. Was wondering if anyone else had such a long wait for a decession ? This is a first time claim.

Sharyn x

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Just heard

Hi there,

I put my claim in for Jay at the end of Jan and got a decision last week. I sent quite alot of info with the claim pack but they still decided to get report from cons. They requested it on March 15 and gave up waiting for replay at end of April and made decision on original info. Not sure if this was a good thing or bad thing.

You can always ring to find out what is happening and what they are waiting on, especially after having waited so long.

hope all goes well and that Shane is OK at the mo.

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Hi thanks for replying casper. You didnt say what they decided, but I hope it was in faver. Phoned them today, they was waiting for the school tosend bk the form, althou didnt decide to send it untill the during the easter hols, so took some time for the SENCO to reply. They recieved the form today so hopely should know either way by mid-end of next week. His resp nurse, consultant and believe it or not GP sent the forms back realivitly quickly, but they felt they needed more information, hense sending out the form at easter to school.

Shanes not to bad, thank you, was off school yesterday, but in today with nebs lunch time, didnt get a phone call so all went well.

Hopefully not much longer to wait now.

Sharyn x

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Glad to hear they got all the info they needed. Jay was given higher rate care as he needs attention both day and night to make sure he is safe. a big problem with him is that he pays little attention to his symptons and carries on doing things until he can't breath. He needs to be watched to make sure he takes his meds especially pred as this has ended up down the sink a few times! He pushes his peak flow reading up with his finger (he thinks I am stupid) so i won't stop him doing activites or staying at friends houses. He is his own worst enemy - and HATES having Asthma and being different. If he is not monitored during the day and over does it we have really bad nights.

Hope your decision is favourable - don't hesitate to appeal if you think he is entitled to more. I went as far as tribunal last time and won my case - I was originally told Jay was not entitled to help at night as I said he on average he needed help 3 - 5 times a week. I argued this averaged out at 4 and sometimes he needed help 7 nights a week. They turned him down saying that on the weeks he only needed help for 3 nights, there were 4 nights he was ok which meant he was alright more often than he was ill!! Just goes to show that being honest and not exadurating does you no favours.

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Thanks again.

Glad to hear things went in your's and Jays faver. Shane is very much like Jay by the sounds of things. He has day and night care, and tries to cheat his way thru his p/f readings, first time he tried to convince me he went from an average reading of 100-150 to 250 over night even while still coughing lol. Shane needs regular nebs both day and night and also has a nebuliser in school to try and inable him to have less time from school. He struggles with walking at average speed for any real length. He has a SEN teacher in his class that monitors him and another little girl whom is wheelchair bound and we have 3 monthly meetings with his resp nurse , school nurse, SENCO, SEN teacher, first aiders and class teacher.

It is very hard on them, missing out on the fun things and not being able to do the same things as their class mates. You can sort of see why they try to make out they are much healthier than they really are.

Thanks again for your words of incouragment

Sharyn xx

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hi

from memory about 6 months. often they refuse but appeal i did and my son went from a refusual to award anything to higer rate

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Yey !!!!!

Finaly got the reply thru. They have awarded Shane the higher rate care but nothing on mobility. Now the waiting is over I can sign with relief.

Sharyn xx