Was diagnosed with ARVD in August 2008 after checking myself into hospital after fainting. After the condition was finally diagnosed I was given an ICD as insurance against a potential arrhythmogenic issue. In 2017 insurance policy paid out when I had a VT storm where ICD fired 60 times in 45 minutes. Having been taking Amiodarone since then. Have also developed Congestive Heart Failure as a result of the ARVD. Am taking Entresto and a diuretic to 'control' the heart failure. So far the drugs have been effective and there really have been no adverse effects affecting my lifestyle.
New member: Was diagnosed with ARVD in... - Heart Failure Sup...
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emptypockets13
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Hello and welcome to the forum!
Thank you for sharing your story with us, I am pleased that the drugs have been effective for you and there are no adverse effects.
You may like to take a look at the Heart Failure section on our website: heartrhythmalliance.org/aa/... or read some of our patient resources: heartrhythmalliance.org/aa/...
Katrina.
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