Daughter still waiting to hear... - Action on Postpar...

Action on Postpartum Psychosis
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Daughter still waiting to hear...

RedRosie36
RedRosie36

My daughter was told she would hear today if she was accepted for the M&BU only to then be told the decision wouldn't be made till Wednesday...then she had a nurse on the unit tell her to be prepared to be disappointed as they weren't going to take her..you can only imagine her state of mind..she found another bobby pin and has scratched her legs and belly really badly..what kind of staff are on these units..its like they have no idea what kind of patients they are dealing with...!! Even if she doesn't get in..surely its up to either the Dr or her care worker to tell her..I am livid with this member of staff..how bloody dare she decide to say anything to my daughter!!

Sorry.. rant over..just feel like we are banging our heads on a brick wall..

13 Replies
oldestnewest

Hi RedRosie36,

I’m so sorry to hear about your daughter and the current situation. I can’t really offer much in terms of practical advice but just wanted to say that your daughter is very lucky to have you fighting her corner! Keep doing so and questioning/following up on all of the decisions and appointments so that she can get the best care as soon as possible. I hope you don’t have too much more of a wait and that an MBU can be found. Where are you hoping she goes? I was at the MBU in Bristol after having PPP with my 1st son in 2013 and they were brilliant. Hoping that your daughter can receive the care she needs asap! Don’t be afraid to remind the nurses of the standard of care you expect your daughter to receive - they may need reminding of how to phrase things for your daughter so as not to trigger a negative response. You still know her best in this situation.

Sending you both lots of love xx

Lilybeth
LilybethVolunteer

Hello RedRosie36

I'm sorry your daughter now has to wait until tomorrow to hear about the MBU place. What awful words for your daughter to hear in her fragile state of mind! Rather than making such comments the nurse and staff should be more vigilant, ensuring that there are no sharp objects in reach. They do have a duty of care and your daughter should be a priority for monitoring.

Hopefully your daughter will be accepted into the MBU as she is so distressed and needs specialist care. I hope your persistence will be rewarded as you are a great strength in your daughter's time of need. I remember what a comfort my family's input was to me when I was unable to speak up for myself under general psychiatric care.

Please remember to take care of yourself too. We are all here to listen ....

Hi

I m so sorry for your struggle to get the right care for your daughter., my knowledge of criteria, bed nos etc relating to MBU is non existent. However each authority has an patients advocacy group who could support you and advise you on getting the whole process to speed up.

My other thought would be to approach your local MP. They do carry a lot of clout. Also it might be worth contacting the press. Health authorities like many other organisations don't like bad publicity and it can open doors with their help .

Your doing a fantastic job supporting your daughter in such unbearable difficult circumstancesx

Hidden
Hidden

Dear Red Rosie , i have been following your posts about your poor daughter and my heart goes out to you I really hope and prey she gets the help she needs ASAP and as for the nurse I would complain about her some of them are very unsympathetic and don’t seem to have any knowledge and to say that to someone who is already in a state of distress is awful .

I hope tomorrow brings good news for you best wishes and much love she is so lucky to have you my Mum was my hero when I was poorly I don’t know what I would have done without her xxx

Hidden
HiddenVolunteer

Dear RedRosie36,

I am so terribly sorry about the unreasonable behaviour by that nurse towards your daughter.

I do not keep quiet anymore about the way I have been treated. One of the reasons why I feel so passionate about appropriate and humanistic support for women with mental health issues before, during and after pregnancy & we are talking long term in some aspects.

You have received some marvellous response and good advise...voices have to be heard, so that drastic changes are being implemented.

My partner had to be very persistent and kept on complaining and evidencing treatment. If you are not being listened to, I do feel that the advise given by littlemiss85 maybe a step forward.

Wishing you well and immensely touched by the love for your daughter.

x

She didn't get in..not sure where we go from here..

Lilybeth
LilybethVolunteer

Hello RedRosie36

I'm so sorry to hear that your daughter didn't get into the MBU. You must be exhausted and very worried about how to move forward. i'm not sure whether the charity Mind would be able to offer any advice. They have a page about advocacy in mental health to help you explore options.

I'm sure it's of no comfort to you at the moment but I was under general psychiatric care with self harm issues during my recovery from PP. It took some time for me to find my place again but I did eventually recover.

Sorry I can't be of more help .... it must be so difficult to know where to turn and I hope your daughter is being monitored more closely.

Take care.

Hidden
HiddenVolunteer

Dear RedRosie36,

me, too! I am so sorry that your daughter did not receive an MBU place.

I was very poorly and often in seclusion in the mixed gender psychiatric unit, but can reassure you once the Psychosis was under control, I was released and the after-care at home was closely monitored by professionals and my partner full time. I recovered, too from this traumatising illness.

Mind has been a very good starting point during my recovery.

Thinking of you...

x

Ellie_at_APP
Ellie_at_APPAdministrator

I’m so sorry to hear your daughter hasn’t got a place at the mbu. Did they say why? Perhaps it is somewhere she will go at a later date? Will she stay in the general psychiatric ward for the moment?

You must be so worried, I know it is so difficult but you are all going to come through this.

Thinking of you and I hope your daughter can get the support she needs

Ellie

Hi Ellie, its because she is self harming...they dont have the safeguarding in place to help her..it may be the push she needs to stop it but I'm not holding my breath xx

Jocelyn_at_APP
Jocelyn_at_APPAdministrator

Hi RedRosie,

I am so sorry for what you and your daughter are going through. There is nothing I can say to make any of it better, but I am thinking of you both and sending positive vibes and love. xx

Ellie_at_APP
Ellie_at_APPAdministrator

Ah redrosie

I’m really sorry to hear that. I am thinking of you all, how is your daughter doing at the moment?

Take care and do write on here whenever you want to, to offload or ask us anything xx

Hidden
HiddenVolunteer

How are you RedRosie36? We are thinking of you and your daughter.

Please, do look after yourself. It is such an emotionally difficult time.

x

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