DVT, PEs

[Holliemorris]

Hi! I have just delivered my baby girl through csection, i had to get blue lighted from my local hospital to another hospital that was over 2 hours away, i was 37+6 when i went blind in my right eye, i hadnt had any movement in my right leg for 2 weeks finally got admitted, took weeks for hospital to listen, when i was 38+3 the found i had a large dvt from my groin to my knee cap, had to have an ivc filter fitted then went for an MRI and was found to have bilateral moderate PEs in both my lungs, that is when i got blue lighted to another hospital. Anyway my question is, im on enoxoparin sodium, i have to inject myself every night on the highest dose! Theyre wanting to remove my ivc filter however it was only 2 weeks ago my clots were still life threatning. Do i go ahead and get it removed? Will i be on blood thinners for the rest of my life? How long roughly was your recovery? Ive requested a tranfer of care, due to the fact my mum got neglected of care at this hospital and passed away due to that in january 21, and they are refusing to rescan my clots to make sure they arnt life threatning anymore.

Im only 23 years old too!

Hopefully this makes sense!

Thank you

[Hidden]

Oh dear, poor you. It is frightening when something like that happens, but I'm so glad you survived and have a lovely daughter! Your blood clots may be due to your pregnancy - I gather this can be a risk factor - so they may take you off anticoagulants in six months or so, and in the meantime may well put you on another kind that you can take as a pill rather than as an injection. The clots will dissolve in their own good time, and recovery can and will probably take several months. But we are all different - do what you can, not what you can't, and focus on yourself and your daughter for now!

[Hidden]

Many congratulations on the birth of your baby daughter Holliemorris, even though it was in such stressful circumstances. It sounds as if you have a good knowledge and understanding of your condition and the treatments you are having. Given that's the case I think the most important and useful thing you can do is to ask questions. Make your questions meaningful without being accusatory, but make them count. Such as, "I'm very nervous of having the ivc filter removed so soon, so what are the implications for me if I agree to its removal, and it proves to be too soon?" You may well know what the implications are, and they may know you know, but it focuses attention on the possibility of something going wrong and your having been knowledgeable enough to predict a bad outcome. And as far as anticoagulants are concerned, the aim will be to dissipate your clots so that you won't need to have them on a life long basis, but it's probably a little early to promise you that at the moment. I can understand that you'd be very nervous if you have concerns about your mother's treatment outcome, but unfortunate though that was, it was probably, even if avoidable, quite a rare outcome. Co-operation to as large an extent as you feel you can, will probably result in a better long term outcome for you than raising too many direct objections to the treatments being offered to you. Instead maybe try to focus more on enjoying your new baby daughter while trying to find a workable way forward with your treatment.

[Jumper99]

Congratulations on having your daughter! Please ensure that you have been tested for something called antiphospholipid syndrome (APS). It’s an autoimmune disease which causes blood clots especially during pregnancy. There are 3 blood tests and they should do all three because you only need to be positive on one of them. They should test you for this ASAP and definitely before taking you off your anticoagulation. Warfarin is said to be the best anticoagulant for APS. Some women just get aps during pregnancy but other people have it all the time so it’s important for you to know if you have it. You can look at it in more detail on an internet site called APS Support UK

[MazzyB]

Aww how awful for you! Hope you get sorted.

[MazzyB]

Sorry meant to say congratulations on the birth of your Daughter ❤️