Connecting Communities Call 2/25 @ 3pm GMT - AMN EASIER

AMN EASIER

1,312 members1,165 posts

Connecting Communities Call 2/25 @ 3pm GMT

KennyInPA profile image
4 Replies

ALD Connect and Alex TLC are hosting a community breakout call for phenotypes of ALD this Sunday 2/25 @ 3pm GMT/10am EST. Here in the states I help facilitate the AMN Men call at 7pm EST, which isn't very reachable to the rest of the world. We are hoping you will be able to join us get to meet the rest of the world and learn how AMN affects all of us!

Register for the Call: events.r20.constantcontact....

Written by
KennyInPA profile image
KennyInPA
To view profiles and participate in discussions please or .
4 Replies
Karukera profile image
Karukera

Did the meeting go well ?

KennyInPA profile image
KennyInPA in reply to Karukera

It did! They are thinking there will be another one, just figuring out on what time basis. I'll definitely share the next one again.

3WheelWonder profile image
3WheelWonder in reply to KennyInPA

What were the main topics discussed?

KennyInPA profile image
KennyInPA in reply to 3WheelWonder

Well they broke up into phenotypes. The AMN Men call was really just to get to know everyone and our time was up. Hopefully the next one we can dive into more topics!

You may also like...

AMN Symptomatic Men Community Support Call

8pm ET/7pm CT: Symptomatic Men Facilitated by Brian Chandler Register here:...

Chronic fatigue for ladies with AMN/ALD

Hello, I'm new here, I'm a woman with AMN/ALD and my history is complex so I'll go into that another

I saw Ken, Aaron, and Songstream at ALD connect annual meeting today.

How was your experience with the ALD connect annual meeting today? I attended that conference to see

Cell-based Gene Therapy Represents ‘Hope’ for X-ALD Patients, Review Study Suggests

Definitely hopeful for the future of ALD/AMN! https://adrenoleukodystrophynews.com/2019/11/12/cell-

Please let me know names of doctors treating you in the U.K.

into potential treatments and therapies for AMN and ALD. Nathalie wants to know the names of...