Share your experiences - the listening space

[Dave381]

Hello all, hope this is ok to post here. My wife, Danielle works at Jeans for Genes - it’s the charity that raises awareness of genetic conditions and runs an annual fundraising campaign. The money raised is given to small genetic condition charities (like Alex TLC - they have received a grant towards the community weekend this year).They are currently working on a new project: The Listening Space. The Listening Space is a safe space where people can share in their own words, about their experience of living with a genetic condition and supporting or caring for those that do. There is no set agenda, no structured questions, no word counts, just a space to freely share experiences and opinions. The insights people contribute will help them ensure that Jeans for Genes is an authentic, informed grant-maker, funding projects that address issues that really matter to those with a genetic condition, their families and caregivers. The link to the Listening Space online platform is here:

jeansforgenes.org/listening...

If anyone in this group is willing to take part, it would be incredibly helpful and she would be very grateful. They have received many contributions so far but most from those with children living with a genetic condition and so it would be great for them to have some insights from adults who have a genetic condition.

Thank you!