Viking Therapeutics drug VK0214-102

[Aaron98]

I was recently contacted about participating in a trial for the Viking Therapeutics drug VK0214-102, which is a potential treatment for AMN. Apparently they are looking for 36 participants around the country. I am not sure yet whether I will be able to participate in this study, but I'm wondering if anyone else in this group has been contacted about participating?

[SongStream]

This is the new drug in the pipeline that was announced at the virtual conference: new oral small molecule to treat adrenoleukodystrophy which is a novel small molecule agonist of the thyroid hormone. I remembered the keyword molecule. They just received FDA approval. I'm back with Min-102 using the drug which is to be completed in 2023.

[quilling in reply to SongStream]

Thank you and to all who participate in trials.

[Roker1176 in reply to SongStream]

Min 102 trial is until 2023 that seems long is that what they told you on the extension on Min 102??? Just curious I was told a few different things about that trial

[wilburlois15]

Are you on the MIN-102 trial? I presume you can't do both at the same time

[SongStream in reply to wilburlois15]

Probably not. But the sponsor is paying for my MRI's every 3 months until September and 6 mos. thereafter which will be reviewed by a radiologist familiar with Loes score. Also, all future trial appointments will be with a doctor familiar with adult onset ALD. I am receiving the best in care!

[Roker1176]

I was on the list for that at the Kennedy Krieger location in Baltimore Maryland where are you located for the trial

[SongStream in reply to Roker1176]

Stanford, Palo Alto, California. I live in the Bay Area. I forgot that I received a tentative schedule for the trial and my next visit is 10/21 with an annual visit ending 2/24.

[Lexington40]

How do I learn more?

[fmorgan458]

Nope, but am always open to this kind of thing.

[Tim76]

I have not been contacted but may be due to already participating in MIN-102. I’d be willing to hear more about it to make an educated decision which is more promising.

[fmorgan458]

I am interested in how you all were notified or became aware of MIN-102 and if that same channel was used for the Viking trial. Please share your insights, Thanks!

[KennyInPA in reply to fmorgan458]

I already had been seeing Dr.Eichler at Mass General and since they are also one of the sites for the trial, I was referred that way for MIN-102.

[Coslet]

Any more news on this clinical study? My geneticist gave me info on it today.

[Goodeykam in reply to Coslet]

Hi, Coslet. Right now I’m taking part in Viking medical trials in Seattle, Washington. As I know they still looking for AMN people how will suit this trial.

[Coslet in reply to Goodeykam]

How has it gone? I’m still contemplating sighing up.

[Goodeykam in reply to Coslet]

Nothing unusual, staying at home 90% of time, taking pills. If you need I can ask email of coordinator for you.

[Coslet in reply to Goodeykam]

I’m hooked up with the one out of Gainesville. Weighing whether or not I’m going to sign up. It states no benefit to study patient. With my current work and parenting situation I’m not sure I’m up for that type of clinical study.