I was just tidying up my browser tabs - when they get to be more than about 20, I feel the need!
I came across this web site which I have consulted a few times to learn more about endocrinology and adrenal issues.
All very useful and well worded for patients, young people and scientists/medical people.
It says "The Society for Endocrinology is a UK-based learned society representing a global community of doctors, scientists and nurses who work with hormones. "
I was pleased to see that under the causes of Addison's disease, that adrenoleukodystrophy is listed. Alex TLC is also listed as a support organisation.
A good resource for understanding adrenals issues.