I have had 4 Adrenal Crisis' this year

Is this a record?

Until the 3rd episode in early July I didn't actually realise what was happening. I have always been wiped out with a 'flu / bug' for a couple days about once a year but after 3 times I did some research. I found this link to these symptoms.

Warning signs include:

severe nausea

headache

dizziness

extreme weakness

chills or fever

confusion

addisons.org.uk/index.php/a...

A decent list, I ticked everyone!

I tried to move my appointment with the endocrinologist forward from November but the best I could do was mid September. A bit too late, I was laid low again 1st of September. I've always tested OK in the past. Not sure what's gone wrong this year?

When illness strikes, it's a chronic shortage of cortisol, I double my hydrocortisone dose, 20 to 40 on a morning, 10 to 20 on an afternoon. However, as it usually presents during the night it's a bit late to fight off the worst. I ended up in hospital overnight this time, my worst incident and my good lady was worried.

Obviously my Addison's disease is linked to AMN. So I was wondering if anyone else is suffering in silence?

Thanks Keith

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  • Hello Keith,

    Sorry to hear you've been battling our illness more intensely than ever recently!! I also have had more crises within the last year than since before my Addison's was diagnosed. It was pretty consistent that every couple of years I would have a crisis and end up in the hospital needing solu-cortef, mostly because I couldn't keep any meds down, but also because it needed to get into the system more directly. Usually when anything seems to be coming on I will double my hydrocortisone and fight it off before it gets bad, but sometimes the bugs work to fast and I don't have time. The last one was brought on by what I think was food poisoning. Do you have an idea of what was the initial cause of the crises each time?

    Be well and have a great day,

    Jeff

  • Hi Jeff,

    There doesn't seem to be a common cause. The previous 3 episodes were more or less same bar one came on about 5PM so I caught it quickly and was only off work one day.

    On the latest occasion I again woke up ill but I only had stomach pain. Within an hour I had the normal headaches, nausea and fever. I actually vomited which has never happened before.

    I have never used my emergency injection before and as I'd taken my double medication at least 2 hours before being sick I didn't use it this time either.

    At hospital they did give my hydrocortisone intravenously. My water tested fine but my blood did show some infection but even after an ultra sound they couldn't pin it down.

  • Hi Keith,

    I can't even imagine having four adrenal crises in one year! I've been highly fortunate in 38 years of having Addison's with having only one ER experience. My endo wrote on my prednisone Rx "3 x 3", whereby you triple your dosage for three days with fever and other illnesses. It is also recommended that you have a Rx for Solu-Cortef, an emergency corticosteroid injection when having an Addisonian crisis which can be life-saving.

    I also subscribe to an Addisonian community board on inspire.com and have learned so much from other Addisonian patients. This has helped me to open up my dialogue with my endo for treatment which he has highly supported.

    Please let us know if there was any particular stressor aside from illness, perhaps stress, for example, that can lower your immune system.

  • Off to the docs shortly as I have a bit of an ear, nose and throat infection. Never had any symptoms after any of my previous problems.

  • Thanks for sharing your experiences, Keith, and I am so sorry that you haven't been feeling well.

    I also have adrenal insufficiency secondary to AMN, but I'm not sure if I've ever had an adrenal crisis. I don't even know exactly what that would look like for me. It sounds like everyone describes it as being nauseous or diarrheal and not being able to keep down hydrocortisone, but few people actually explain what the crisis is or how it is different from just having the flu. I experience dizziness, weakness, and mild confusion fairly frequently, but these are such non-specific symptoms that may have a variety of causes.

    At any rate, I hope you are feeling better.

  • Hi Aaron,

    I can only describe my usual symptoms (2 out of 4 attacks this year and previously). I awake hot, sweating but with the shivers. I have a blinding headache, my stomach feels off, sickly and if I stagger to the toilet I'm so weak my legs almost or actually give way. I'm tired and listless and I can barely manage a conversation, 1 or 2 word answers.

    Unfortunately I've been having these episodes for at least a dozen years so I know these symptoms well. However, until July this year I didn't actually know what they were.

    It isn't pleasant but I hope this helps :-)

  • Hi Keith,

    When I'm feeling really ill I take 3 X or 4 X dose of Hydrocostisone I've taken this for a week in the past, it what your body does naturally! Do you have a injection kit? I have Dexamethasone but I've never used but when I was in crisis last year the paramedic gave it to me!

    I hope your endo will get you sorted soon

    All the best

    Steve

    PS I take Hydrocostisone 10mg on waking 5mg 1pm and 5mg 4pm

  • Hi Steve,

    Treble your daily dose is 60mg, that is only double mine. I'll have to see what the endocrinologist has to say before going above 60mg a day as I don't know if I would be doing any long term damage.

    Thanks Keith

  • Hi Keith,

    I would see your endo to check your blood levels?

    All the best

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