Nervonic acid Have you tried it: I have several... - AMN EASIER

AMN EASIER

1,326 members1,186 posts

Nervonic acid Have you tried it

jayxie profile image
15 Replies

I have several PATIENTS with AMN and try Nervonic acid", said to have seen obvious effects, I am going to try it recently, I want to ask you, do you understand.

en.wikipedia.org/wiki/Nervo...

Written by
jayxie profile image
jayxie
To view profiles and participate in discussions please or .
15 Replies
COwithAMN profile image
COwithAMNAdministratorAMN EASIERVolunteer

From the Wikipedia entry I can only see that Nervonic acid is a form of VLCFA and related to erucic acid, a component of Lorenzos' Oil. We know that the latter does not work except possibly for a percentage of presymptomatic boys. At least part of the reason is due to the blood-brain barrier which means that the VLCFA's don't get as far as the Central Nervous System to be useful.

I would not expect this therefore to be any different and hence I wouldn't place any expectations at all on it.

Djp1989 profile image
Djp1989

link.springer.com/article/1...

3WheelWonder profile image
3WheelWonder in reply toDjp1989

this looks interesting. monkeybus any thoughts?

monkeybus profile image
monkeybus in reply to3WheelWonder

Don't know if it'll slot into my "We are saved again (again)" category.I like how this report is dated 2022. Plenty of old reports about Lorenzo’s Oil.

One of the reasons I never drank the mustard oil is how it's poisonous. I was offered Lorenzo’s Oil a while back, but the neurologist said it would nullify my health insurance.

3WheelWonder profile image
3WheelWonder in reply tomonkeybus

“ we are saved again”To be continued.🙃

monkeybus profile image
monkeybus

I should dig through all my old posts and make a compilation to prove how 100% cured we all are.

This Nervonic Acid actually looks very promising.

Here is a report on our disease:

pubmed.ncbi.nlm.nih.gov/353...

And here is one about Nervonic Acid and remyelination:

pubmed.ncbi.nlm.nih.gov/807...

It's done, let's pack it all up. We are done here. I'll get the drinks in tonight.

3WheelWonder profile image
3WheelWonder in reply tomonkeybus

fantastic. Save a seat for me, Mate!

3WheelWonder profile image
3WheelWonder in reply tomonkeybus

why have there not been any studies on this?

monkeybus profile image
monkeybus

The more I read about this, the more I like it.

healthbenefitstimes.com/nut...

Not cheap, something of a niche supplement.

sinavita.shop/en/p/nervonic...

Food sources of nervonic acid.
3WheelWonder profile image
3WheelWonder in reply tomonkeybus

damn, interesting, Monkey. I just ordered a boat of swordfish.

3WheelWonder profile image
3WheelWonder in reply tomonkeybus

healthline.com/nutrition/bl.... what color sesame seeds is the best monkey get on it

3WheelWonder profile image
3WheelWonder in reply tomonkeybus

we have elevated VLCFA compared to the regular human, so why would we want more?

monkeybus profile image
monkeybus in reply to3WheelWonder

Swordfish is damn tasty, can't say I've made a habit of eating it. I never could get my head around the Lorenzo's Oil theory. It plainly doesn't work for AMN, I'd be swilling it down if it did.

I'm happy to be proved wrong though.

I had high hopes for Valproic Acid, took it for two years, didn't make a blind bit of difference to my VLCFA levels.

And the high dose vitamin regimen. Works for rodents, not for humans.

3WheelWonder profile image
3WheelWonder in reply tomonkeybus

are you going to look into this further?

monkeybus profile image
monkeybus in reply to3WheelWonder

I'll hunt around, but these reports are pretty recent. Not too much hard info out there.

I often turn to Multiple Sclerosis research. As far as I am concerned, enough of the symptoms are close enough to ours (or mine at any rate).

There is earlier research into Nervonic Acid for MS remyelination.

pubmed.ncbi.nlm.nih.gov/313...

And a report from this year, linking Nervonic Acid to MS and Parkinson's Disease.

pubmed.ncbi.nlm.nih.gov/371...

It looks good as a remyelination agent, as usual, no human trials. I made a list several years ago of drugs/supplements that foster remyelination. I'll re-post it.

Not what you're looking for?

You may also like...

Nervonic acid

Have anyone tried taking Nervonic Acid? The following article showing benefits from NA...
Yevgenii profile image

Anyone tried FES?

Hi everyone, I am a 39 year-old male with AMN and associated walking difficulties. My specialist...
wilburlois15 profile image

4-ap- anyone tried it?

Hi Just wondering whether anyone has tried 4-ap? If so how did you find it? Benefits/side effects....

Acid Reflux

Do any men with AMN have problems with acid reflux and do you know if it is related to the disease?...
cdp71 profile image

Valproic Acid

I've just persuaded my neurologist to prescribe me some Valproic Acid. Surprisingly easy, but...
monkeybus profile image

Moderation team

COwithAMN profile image
COwithAMNAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.