Received an email from ULF with the following message:
Hey Leukodystrophy Community!
Would you like your first name to be listed with other leukodystrophy families on the back of a t-shirt?
We would like to include as many names as possible to show the strength of our community! A variety of shirt colors and styles will be available for purchase through Bonfire.com in the coming weeks, but first we need to gather the names for the design!
Please send the names that you would like included on the back of the shirt to tatum@ulf.org by Saturday, July 13, 2019 at 5 pm CST. We cannot accept names after that date as the design will be finalized.
Stay tuned after that date for ordering details.
(What a wonderful way for one to wear and show support for the fight on Leukodystrophy!)
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Genetic testing woes
