I had no idea today is Rare Disease Day. However, for those in the United States, please contact your member of Congress to pass newborn screening in ALL states.
ALD Connect Announcement and Support Calls - AMN EASIER
ALD Connect Announcement and Support Calls
I looked for this announcement and could not find it. Would like to join in the calls.
You can contact them by email: info@aldconnect.org and request that you want to join their email distribution list. Check out all of their videos from the last conference!
Women with AMN: Your breakout session is Monday, April 24 at 7-8 p.m. EDT. Please ensure you join their email list for more information.
Thanks so much for sharing this, Steve! Do you know when the first breakout session for Men with AMN is?
Looks like they haven't announced it yet. I would join their email distribution list and/or contact them directly via email. Hope to join you on a call!
It was recently announced:
Monday, March 18th 8pm ET/7pm CT:
Symptomatic Men
Facilitated by Brian Chandler
Register at: events.r20.constantcontact....