Fellow AMN sufferers.
I have said this before, but I'll post one more time.
Why don't we do a crowdfunding to send one of us to Panama for some stem cell treatment?
This is the place, Mel Gibson sent his Father there.
An emerging treatment, not available in the USA. We can choose one of us to be the treasurer and announce it on the other AMN forums. Costs $15,000. Pain, neuropathy, spasticity, fatigue.
There is definitely something in it, but whether it could help our disease, I know not.
If we raise the 15K + flight + hotel, et al was can have a lottery to see who goes
But then again, as I am about to post this, I'm thinking if it's a good idea.
Anyway, discuss.
(Declaration, I'd go.)
Monkeybus,
I have already tried to go to that clinic they will not treat our condition.
That is why I went to Mexico and had 25 million stem cells injected into me on July 25th, 2018. I have tried to make a post on here explaining that I have tried it and it has 100% helped me. Two other guys I have met and have been on this website have gone and had the treatment as well. I plan to go back in January 2019, just waiting for my parent's passports to come in.
If you would like more information about the place we all went I would love to help anyone out with this!!
Mvruggink
Yeah, I never got back to you about your treatment. I have been away from this site.
Can you write it up, the entire process?
Exactly where is the hospital? Does it have a website? Who are the doctors? What are their names? Nationality, qualifications, etc
Hospital, location, standard of care, length of the procedure, etc, and so on?
Immediate after effects, medium to long term effects, and so on.
I'm sure we'd all love to hear.
It isn't so much treating our disease, as ever it's treating the symptoms. The hospital I contacted said yes to me, no to you. We have to get this all documented.
Hospitals all over the world are offering stem cell treatment now. A lot in China, India, central America. Emerging treatment? Non-approved? Dangerous? We should get a discussion started on all of this. It is expensive stuff, I'm sure most of us don't have $15-$20,000 lying around, but we could do a crowdfund and send a volunteer/guinea pig over to one of these hospitals.
I'd go, but it wouldn't be my choice.
We are all taking different drugs, different standards of care, some of us have access regularly to the absolute best hospitals (me, for example), others just visit our local GP.
Modafinil, 4-AP, 4-AP-3-MeOH, Lyrica, Gabapentin, Baclofen, Soma, on and on.
Then again, there is that current clinical trial.
My recent brain lesion scare really woke me up. I look on other forums and there are men in their 30's dying of our disease. I have spent years treating my symptoms (quite effectively), but I am slowly getting worse. I am nearly 50, I project 10 years from now and wonder what state I'll be in.
That's it, folks. Just some random thoughts.