I'll get started on it over New Year. A decent looking website is no problem at all. Indiegogo allows fundraising for medical purposes, Kickstarter doesn't. PayPal will be OK. Just need to get the word out.
Thanks, dryder, I'll message you later and we can talk about what's what.
There I was bemoaning the fact that there is no research into new treatments for us, then wilburlois15 posted about VK0214. Looks very interesting.
HDAC inhibitor SAHA normalizes the levels of VLCFAs in human skin fibroblasts from X-ALD patients and downregulates the expression of proinflammatory cytokines in Abcd1/2-silenced mouse astrocytes.
These observations indicate that SAHA corrects both the metabolic disease of VLCFA as well as secondary inflammatory disease; therefore, it may be an ideal drug candidate to be tested for X-ALD therapy in humans.
Plenty of reports of various chemicals that reduce VLCFA.
The paper talks about HDAC inhbitors, SAHA, also known by the name Vorinostst.
Prescribed for some types of cancer, currently being investigated for HIV. I like it when drugs have been around for a while. Plenty of information available.
I'm currently taking Valproic Acid to try and lower my VLCFA's, I'd certainly consider Vorinostat next.
We need to be thoroughly investigating any and all of these potential life-savers.
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