841 members552 posts

Call for rare conditions drugs fund (in England)

An important debate is set to occur in the NHS in England about rare disease funding.

This is the BBC link:

The issue is that a ring-fenced budget for rare diseases may be subsumed into the overall NHS budget in England . (Note: Scotland and Wales fund its NHS separately).

The BBC article invites readers to post comments about their rare disease experience, so this is a good opportunity to get some publicity for AMN and ALD. Please reply to the BBC link if you feel OK about doing this.


You may also like...