Hi, I was really glad to find this community!! I have been living a quite problem-free life with Addisons disease since 1990. During the last few years I have had some vague problems with my legs, hard to walk downwards in stairs, stiffnes, some problems with my balance etc etc. This summer I was taken into hospital because of severe tiredness, increased problems with my balance and walking problems. After numerous tests I was a few days ago diagnosed with AMN at the age of 43. It's located in my spinal cord and not cerebral (yet), which is a slight relief.
My doctor has given me good information about my syndrom, but I can't help to feel a bit confused, scared and worried about my future. For how long will I be able to walk? Can it spread to my brain? Can I continue my on my job? Will there be a cure? etc etc....
I would love to hear some experiences, tips (and maybe supporting words about what to expect from a life with AMN.