Frontal Fibrosing Alopecia

[winnipeg]

Hello,I'm new to the site and wondered if anyone has had success with treatment with scalp injections. I am concerned that it may be somewhat of a health risk injecting cortisone into your scalp and then finding out down the road that it actually did contribute to some health problem.

[Seni]

Winnipeg, I have frontal fibrosing alopecia too. I am using hydroxychloroquine sulphate tablets (2 per day). I am in contact with 68 other ladies with FFA on another website. We all have confimed diagnoses of FFA and are using the followings meds:

hydroxychloroquine sulphate

doxycycline (antibiotice)

steroid injections into active area of the scalp (front hairline)

We are using these meds with various success. I have not have the steroid injections myself but some of the other ladies have. Please contact me and I can give you more details.

Seni

[paw1 in reply to Seni]

Hi Seni I have a diagnosis of FFA. Would it be possible to have details to make contact with your group on the other website. I would appreciate sharing with those who have the experience of this particular form of alopecia

Paw

[Countrygirl481]

Seni,

I too have FFA as well as AGA and I would like to know where I can join the other web site you mention.

Thank you,

Countrygirl

[Bettyc4]

Make sure the shot are the correct dosage as it could cause atrophy. I did have shots for about a year and a half until I found a specialist and realized he wanted to do shots but lowered the dose considerably. Mine has since burned out I believe. Has any one ever thought it burned out but then started up again?

[florence5]

Hi, I had cortisone injections 40 years ago. When I was twenty and about to get married I developed alopecia areata. My hair fell out very quickly and I had to wear a wig for my wedding as by that time I was completely bald. Following treatment when my head looked like a hairless doll covered in dots, my hair grew back. There was only minor further loss over the next year and then no problems until three years ago when I again developed bald patches. I have not had to have further injections as a topical steroid scalp lotion has worked for me this time. I am still getting the odd patch but nothing severe. I'm hoping that it will burn out again altogether.