Frontal Fibrosing Alopecia: I have recently... - Alopecia UK

Alopecia UK

1,491 members306 posts

Frontal Fibrosing Alopecia

Nadia21 profile image
5 Replies

I have recently been diagnosed with FFA and was prescribed dermovate but have taken a break from it (on advice of Dr) as I got a breakout of painful acne all over my forehead. What treatments have people found to be useful and any recommendations for shampoo as I have a really itchy scalp all over, not just on my hairline. Thanks

Written by
Nadia21 profile image
Nadia21
To view profiles and participate in discussions please or .
Read more about...
5 Replies
deejames profile image
deejames

Hi Nadia. I went on an agressive treatment course and have only lost about a 1/2 inch disc size lot of hair in 3 years.

i am now starting to reduce the medications. With caution in case it restarts.

Nadia21 profile image
Nadia21 in reply to deejames

Thanks, hope it goes well for you.

Nadia21 profile image
Nadia21 in reply to deejames

I forgot to ask if you get an itchy scalp and if so what helps? Thanks

Magsmaria profile image
Magsmaria

Hi Nadia,I got diagnosed over a year ago after getting a biopsy done and was told it was FFA.

I’ve been on Hydroxychloroquine...one tablet a day and clarelux foam that i apply to the front of my scalp.Ive had no problems on the medication and my dermatologist doesn’t think my hairline has got any worse.Its mostly noticeably at ear area and I can hide it except on windy days.

I’m hoping it won’t get any worse and have been told it can burn itself out so fingers crossed it does.

Regards

Mags

Nadia21 profile image
Nadia21 in reply to Magsmaria

Thanks, that's good to hear and yes, fingers crossed.

Nadia

You may also like...

Frontal fibrosing alopecia

would be nice to have some updates. I have seen a dermatologist who has prescribed Protopic...

Acupuncture for Frontal Fibrosing Alopecia

Hi all. I was diagnosed with frontal Fibrosing Alopecia last august '16 (35 yr old man). I had gone...

Frontal Fibrosing Alopecia and medication/ food intolerances?

problems/hayfever? Do any people with FFA have any food intolerances at all? Sorry for all the...

Frontal Fibrosing Alopecia

wondered if anyone has had success with treatment with scalp injections. I am concerned that it may...

Alopecia

Lost almost 70% of my hair since August last year I have been to city hospital  Birmingham today to...