Fibromyalgia is a pain, isn't it?

[Generic_Person]

So, I'm male and 16 years old, and was diagnosed with fibromyalgia only recently, approximately a month and a half ago. The NHS, as hard as they could manage, tried looking into my immense body pains all over my body, from the top of my head to the toes. I've been unable to do a lot of basic actions throughout my life, using cutlery and writing obviously being two of the most identifiable actions. It's progressively gotten worse throughout the years, and I've gone through the Marfans Syndrome clinic (Due to me being excessively tall) but was discharged, which was the same for the arthritis clinic and connective tissue disorder clinic. But it was what came here at its worse that helped me to gain that diagnosis. It has physically paralyzed me, which I'm not sure if that is normal, which resulted in a week of immobility and I've been restricted to a wheelchair for 2 months. My left leg and back have managed to recover, but my right leg is yet to recover; even the 20 painkillers I'm taking per day that were prescribed to me aren't helping.

But I wanted to have a little rant about the worst of all its capabilities. Mental health. There were two separate periods of how my mental health was affected. The worst period was how I didn't understand these pains prior to my diagnosis. That feeling of being in the unknown was driving me insane, quite literally. But despite being glad that I don't need to worry about that anymore, I'm still badly effected to know that this is something I've got to go through and work on for the rest of my life (At least as it seems), and the amount of prescribed pills aren't making me feel any better.

I think it's safe to say that stress really doesn't help with this condition in mind. Getting stressed causes my body to go into a 'Shaking' sorta thing. My body just has spasms and all that malarkey. If I get over-excited, I get a similar feeling as to being on laughing gas, causing me to be able to not move. It's so confusing as to thinking whether or not this happens to anyone else, but I do know that fibromyalgia is not the same for everyone. With my GCSEs in 1 week at the time of this post, and my ability to focus due to medication becoming more severe, I don't think these side effects are going to be helping me. Thank god for my school for putting an outstanding amount of assistance forward for me.

Eh, thanks for the mini-rant I can post. Just nice (Well, not really. No one should suffer) to see that I'm not alone in this battle, and that there's still ways to get through life.

[Admin_AFMCG Partner]

Welcome Generic_Person!

I understand some of the struggles you've been through and address the content of your post, I just wanted to let you know you're not alone and you've come to the right place.

Unfortunately, I do think that juvenile Fibromyalgia has much less awareness and support than adults with Fibro do - as the system always seems to lean towards the old saying 'growing pains' which I am sure you've heard over and over again !!!

Here you can talk openly in a non-judgemental environment about many of the issues you come across and how you feel, plus you're experiences will be beneficial to other young people diagnosed with Fibromyalgia.

I am a little busy at work atm but promise I'll be in touch later but just wanted to say I hope you find the support you need here

Speak Soon

Emma

[SicklyKato]

I understand what you're going through. I'm 23 and no one understands fibro. They think I'm being dramatic when I talk about how much pain I'm in. I've been very depressed too. It really hits me hard thinking about the future. I just want to live a normal pain free life. I'm sorry I ranted on your rant. I just joined this site. :/

[Admin_AFMCG Partner in reply to SicklyKato]

A very warm welcome to our HU community forum

Oh that's sad to hear - we understand and you can always come here to talk, rant and get support from others going through the same thing

Please remember if you are in the UK, the Samaritans are there to talk at all times not just when people are feeling really low. I've used them a few times - nobody should think they can't talk to someone if they need to

samaritans.org/

Free telephone helpline: 116 123 (UK)

116 123 (ROI)

Emma