Anyone know why that post was taken down?
Last time I looked there was nothing out of the usual there. Did I miss something? I just got reply to one of my comments in my email and the whole thread has disappeared.
Concerned About Statins - Post taken ... - Atrial Fibrillati...
Concerned About Statins - Post taken down
Written by
CDreamer
To view profiles and participate in discussions please or .
Read more about...
80 Replies
•
BobDVolunteer
No Idea CD. Not heard anything from our admin.
• in reply toBobD
Neither have I…..totally unaware!
Strange. Can you see it?
• in reply toCDreamer
I scrolled back and cannot see it either, is the missing post yours, there is nothing showing on your history
CDreamer• in reply to
Not my post - Keswickman. Someone posted the following reply to my comment - to which I was unable to respond as thread removed - possibly just as well I was not able to respond TBH as there was some rather dubious, to my way of thinking, suggestions. Maybe the was it?
• in reply toCDreamer
Thanks, it certainly appears to have gone…
BobDVolunteer
No just scrolled back a few days. Not going to trouble Tracy as I know she isn't there but suspect it goes higher though can't see why.
I think that anybody would be forgiven for thinking th Censorship is indeed at play. Discussion of vaccine and statins appear to be off limits.
A quick search shows lots of posts for statins and vaccines. I imagine one or two have been in breach of the forum’s posting guidelines.
Steve
I don’t know if you had the chance to see my very unofficial and unscientific post about who does and doesn’t want the vaccine Steve but it was taken down for no other reason than it was discussing the vaccine. I was told this directly by admin. If you did get the chance to read it I think you’ll agree there was literally no other reason to remove it other than the results upset people. There was no nastiness. No opinion from me personally one way or another. Everyone who commented (apart from one individual who knows who she is and still continues to say the results completely incorrectly 🤣) was respectful and polite. I made sure to keep it that way. Still taken down and me banned for 7days! (turned out to be more like 10 even when told distinctly it would be 7) Tell me why if you can? 🤔🤔🤔
I like your comment
I did see the original post, and your reply CDreamer
Makes one wonder and doubt about sensible freedom of expression on this site. Disappointing. I have been recommending this site to others for about 10 years but should I continue to do it? Maybe there is a better one.
If the main game is named depopulation, than any attempt to help people preserve their health is against the mainstream agenda. No wonder people can contact the doctors only per telephone, no wonder there are for months long waiting lists, no wonder people are in general not satisfied with the time and attention given to them by Drs, no wonder we are being given incorrect statistical data etc. New normal, lol!
CDreamer• in reply to
Now that might be interpreted as conspiracy theory so I couldn't possibly comment!
Only viewers of the original House of Cards may understand the reference.
OK Maddy?
Francis Urquhart in the 1990’s TV series.
And the girl he said it to was Maddy. Ian Richardson was brilliant.
Singwell• in reply to
I'm not dissatisfied. Yes, it was tough during the pandemic getting to see one's GP but even our little surgery in rural Wales has pulled its socks up and is doing much better on follow up. I also actually got to physically see a doctor at our surgery yesterday- after 3.5 years. And I'm pleased with the care. Older doctor has to be said. Much more balanced approach. I wonder if it's the training or the admin that's causing the changes - like in schools? And lack of funding too. So at that level of course, it is political.
• in reply toSingwell
Unfortunately, everything is political nowadays. Who has pushed the vacc for Cov?! Governments and politicians. Have you heard what was said in USA ?! "We have not forced anyone to get the jab!" And people were threatened to loose their jobs (existence), to loose the right to travel, to be denied to come to hospitals etc. if not jabbed. Shame, nothing less!
Ppiman• in reply to
There is solid evidence for the safety and effectiveness of the latest Covid booster:
It’s convinced me.
I'm going to stick with my immune system..........
covid spike antibody score after 2nd jab in 2020; 600 (out of 2500 max) professional Roche test
Covid spike antibody score after bout of real covid, 2022; 2500 ! (same test)
Interesting. The science behind the effects of the vaccine on the immune system and the effects of the disease on the immune system is where the complexities mount up. I have read that there is plenty of evidence that the combination of vaccine plus the illness creates a solid and useful immune response against severe covid -and that is where most people "are at". So why have another booster? It's because the evidence is that the booster, for older people and those whose whose immune systems are far less effective, will benefit from it. And I suppose the rationale is to keep our hospital ICU units there for other people than covid patients.
Steve
My surgery was in a mess well before covid and my inability to get an appointment is why I developed chronic fatigue and paroxysmal AF!!
Our GPs have simply taken on too many patients; masses of new housing and no extra infrastructure.
That’s so correct! In my area there must be a few thousand new apartments built in the past several years and there are no more GP surgeries, no more dentists or opticians opening up. The local population has increased quite considerably but it’s placed a higher demand on all aspects of healthcare.
Same here with schools, doctors, dentist totally impossible. It's all very well the government wanting more housing but the structure needs to be there too
KMRobbo• in reply to
Will this disappear tomorrow?
Billblue• in reply to
Advise us if there is a site 👍
Why take the whole thing down? I thought it was interesting.
Hence my post asking ……I always learn something from these discussions or am enlightened on something I knew nothing about.
• in reply toCDreamer
That was one of the strongest reasons I joined… people on here are searching for information… reassurance and peace of mind… but to take away information..makes
It difficult to arrive at informed choices.
Scientific reasoning is achieved by discussion and open minds to new ideas… the world is in a mess because … open debate is being moderated.
Allowing one side of a story is by nature self limiting… this is where I finish telling mine.
I assumed that was said TIC when I first read your post - now I am worrying that you meant what you said? Surely not?
Big brother is real and is alive and kicking 😂😂😂
Hello CD if you can then have a read of Dr Joseph Chandy’s book from Amazon, it explains what happens from a proactive B12 GP’s perspective when prescribing our elixir of life 👍🥰
Also I got email with a response from you which I now cannot see?
Did you delete “Seems like this hub is particularly over managed…. there goes free speech....”?
I would be tempted to say that everything in this 'cyber world' is filtered for the strangest reasons. As an example, I was waiting for my cardiologist's account - it is sent first to my Medical Aid Society who settle their portion and once that is credited by the Cardio's bookkeeper, a statement is sent to me showing the balance I must pay. I had a notice from the Society showing it had been processed by them. I waited for the account, nothing happened, I phoned the Cardio's office, it had been sent they would send again, nothing!. To cut a long story short, I phoned my Service provider and discovered that all sorts of mail was put into a junk folder when they received it without my being told. A beautiful photo from a from a friend had been junked for no reason (it was a view of the river from her flat). Anyhow, they took me through the steps to minimise this overzealous filtering, so hopefully it will now be OK, but I suspect this happens a lot
On email - I get that - on this forum - not so much. But maybe there is a big junk folder somewhere on HU - who knows?
No it would appear to be just a big delete button perhaps-so well used that the button got stuck maybe 😂😂😂
It would appear that filtering is working a treat and spoon feeding the chosen method of education perhaps 😂
I couldn’t agree more 🥰
Same thing happened a couple of weeks ago on a Blood Pressure Monitor post by loafinabout. He deleted the post himself.
If concerned, may want to contact Keswickman Some posters prefer "peace and quiet" vs the contention that may occur on a subject with many opinions. 😊
I understand that not everyone wants to hear other opinions - then why ask? To others who may not want to read other opinions pass over.
However, when you report and have other members posts deleted you take away that freedom of choice for everyone who may want to engage in debate and hear others’ views and experiences. If the OP wants to delete a post I think it would be reasonable to post that they don’t want anymore opinions rather than delete without comment.
I always try to make it very clear that whatever anyone else says or has experience of is no predictor of what may be your experience - but people want certainty and with AF - there is no certainty, no predictable outcome, no ‘right’ or ‘wrong’ answer or way of being.
What we do have here is each other to help pick our way through. I have always believed the group being more than the sum of the parts.
It greatly disturbs me that ‘we’ only want to hear the views of people who think and behave as ourselves - that is a root cause of division and war. In my view the internet is perfect for encouraging this which is why I get SO upset when views and experiences different from yours or mine are not heard and considered on this forum which I always have considered to be a temperate and supportive corner of the internet which actually supports and encourages debate of the merits and downfalls of various strategies, or so I thought. Obviously I was wrong.
Best wishes.
• in reply toCDreamer
Well written… thankyou.
EyesWideNow• in reply to
Don’t worry, please don’t feel alone-I too am feeling very filtered 😂😂🫢
EyesWideNow• in reply to
What’s more is that I think I know whodunnit x Funny how people feel threatened by alternative ideas to theirs that also have credible and uptodate research to back them up. I was feeling attacked by some responses from certain individuals and considered removing myself but then I laughed, saw it for what it was and decided to refuse to be bullied in attempts to baffle with BS and chosen references-though some legitimate but slightly outdated. So keep speaking your truth and know that likeminded individuals do exist to buck the trend 😂😂😂
If I had just one clue as to what you’re talking about it would help! Exactly WHAT alternative ideas concerning AFib are you talking about?
Spot on. People who report posts to get them taken down are not thinking about those who want open debate. Nobody is forcing them to read controversial posts. They want to stop others from reading them. Mary Whitehouse types.
I feel like Enoch Powel 😂😂😂
Auriculaire I’m hugely confused. I have found discussions on AFib on this forum hugely wide ranging. Maybe there is really useful information that you and others are withholding but could you at least give me some clue as to what you’re talking about and how it relates to helping us overcome the awful Afib? Sorry, I feel utterly in the dark!
The posts that are being taken down seem to be those which have anti statin opinions or anti covid vax opinions. These posts are being deemed by some as not really about afib and therefore inappropriate for the forum. At least that is my take on it.
Ah, thank you Auriculaire. I have been very baffled by all the recent excitement about censorship! I have referred to how my Afib started within days of a vax on this forum several times and have never been censored. And I discussed the issue with my EP who said that with such a massive global vaccination programme there was inevitably some shrapnel. (Thanks doc, I’m shrapnel!) Maybe the difference here is that I will only speak for myself and tend to think we can only be experts of our own experience on this forum. I guess if people are anti-vax there are plenty of other platforms for them.
I’d not heard of the statins issue, I shall have a search - sounds fascinating!
Wishing you wellness
Please do not stop being the moderator or the megalomaniacal people who view themselves as oracles will have silenced legitimate debate that does hold weight! Refuse to be silenced like me and always question why 🙏🙏🙏🥰
What exactly are you questioning apart from your right to speak? In which case please do give us a small clue as to what you feel like saying, it could be important to people looking for best route to health!
We need these conversations. Previous threads about statins, including one of mine last year, have been so helpful. Oh, CDreamer, I think I know what it might have been! DMing you
Done!
TracyAdminPartner
Good Morning, Apologies the team has been attending our Patients Day and Heart Rhythm Congress this week . I can confirm that Admin have not been able to monitor or remove posts until today. We are not aware of any of your posts being removed.
Many thanks
TracyAdmin
Hmmmm?🧐
Maybe the poster just got fed up with so many replies and took it down himself.
It might have been the Secret Squirrel’s sleepwalking again then having no recollection of it afterwards? 🧐or🤥
I would like to say something and hope it isn't removed! First of all, many insurance companies have contracted with the government to treat the illegals. At least, that's what I was told. Explains why the wait to see your doctor is sometimes, most of the time, a long way off. Secondly, it seems politics run these forums. We, I'm afraid, are heading to third world ways. The first to go is free speech. No matter how you put it, fact checking is removing our free thinking. I heard once, "Intelligent people have an open mind". Makes sense. Even if you disagree with me, you have every right to speak your mind and choose what you want to believe. It's OK. This is America. Remember? You may be right, you may be wrong, but either way, you are free to voice your opinion and normal people welcome it. You all have helped me through many worrisome times, and I appreciate the information you share. I hope it continues. Have a great day!
I couldn’t agree more. Lots has been taken down in the name of advancing bum-fluffery and I don’t think my trust is instilled within this forum for the advocacy of some treatments negating the detrimental effects that they have on some people and their experiences being hushed. I’ve noted too that there are guard dogs in the pose of contributors which I find a bit laughable 😂😂😂
I agree with you so what I do is go on my search engine and put the name of the medication I'm taking, along with "patient's review" and I find they are very honest reviews. Good and bad are there. When I find someone else is complaining about the same thing with that medication, I ask my doctor to switch it. Works well for me. You find many more side effects to a medication then states on the package and even more than most doctors realize. It's true that our systems are all different so if you have a problem, you just may find another person having the same problems taking the same medication. Doesn't look like anyone's response is removed from that system. And thank you for your response.
This is not America. This forum is an international one.
I didn't think of that. Wonder which country is doing the "fact checking" here. Hope it is the US. I'm sure our country would, and does, allow a wider range of opinions. Thank you for bringing that to my attention.
‘Verify’ is the organisation which fact checks for MSM - in UK & US.
FactCheck UK & Which UK is funded by members and donations so tends to be more accurate and none politically biased but Europe hasn’t quite got the Polarization that US has unfortunately come to.
Thank you for that information. Interesting. I appreciate sharing information and find it interesting. Hope we are always allowed this freedom. Thank you to you for all the good information you share on this forum. You have had much experience on many subjects, and you are helpful to many.
Ha ha ha- I hope you are all ‘Eyes Wide Open’ now too! No you are not conspiracy theorists but freethinking humans that have finally started seeing further. Everything has a political or socio-economic driving force and I did wonder why I suddenly started to get bombarded with emails telling me I had replies and then comparative silence? My mum always taught me to ‘Follow the money , Honey’! Boy was she right! You figure out who wins or loses and by how much should x,y or z happens and then you see how big the push back is and how peer pressure is applied through various mechanisms-media platforms etc I for one am totally not surprised only saddened at the ‘apparent’ censorship of free speech and wondered who was watching? That is exactly why I implore you all into educating yourselves and to fully research by reading everything on a topic and not just what is presented for you to read- that’s called ‘spoon feeding’ in my mind and it is being done to us all. Slowly and stealthily stealing common sense along with freedom of thought never mind speech. You are all the captains of your own ships so please don’t allow someone else to steer as their destination might well be nowhere near where you wanted to go. I rarely ask anyone a question that I don’t already know the answer to but I always consider the answer and it’s validity. I check myself for fair mindedness constantly and fully respect other’s rights to opinions. That is the way I choose to live my life but I am not blind to those that choose to dominate and obfuscate for their own agendas either. We are all individuals but collectively hold phenomenal power and so let that be for the good 👍 🥰
Please can you tell me what this post has to do with AF?
Hello CD, I used to receive many emails bombarding me with reply notifications then all of a sudden zilch. It would seem that only bum-fluffery are acceptable topics for conversation and contrary to sharing lived experiences and having a forum for learning. I’m afraid I don’t think that I have trust in this or the ethics behind it. Fair thee well 👍🥰
What a horrible thing to suggest, to say those of us asking for help with our illnesses are talking “bum-fluffery” You can take that down please.
CDreamer I think either a. somethings up with the system or b. Someone here is out to make mischief. Maybe someone with an axe to grind.
My email this morning showed that I had a response from you concerning that WHO debate and pandemic control. It looked sensible and reasonable (email gives us the first line or two) but when I looked your comment was gone. Please could you let me know if it was you who removed it?
Obviously to have our posts and comments removed when they are within guidelines is unsettling and it’s beginning to feel like we’re part of somebody’s little game! They have certainly got people very worried about censorship!!
Oh dear, and Im not usually given to conspiracy theories! 🤣
Not what you're looking for?
You may also like...
Concerned about procedure
Hello...I have not posted for awhile but I do have a concern about having a colonoscopy. I had one...
Concerned Ablasion post surgery
It's been 4 days. I had difficult ablasion surgery where the went in 5 different caths on the right...
Statins
I've been taking Atorvastin for over 12 months now and I've always had sleep problems and very...
Statins
Back in 2008, I was diagnosed with AFIB and, after an echo, was also told that I had a bicuspid...
On the fence about Statins?
For those on the fence about statins, here's a good current thread on our sister site, The British...
Concerned about coming off medications. ..
Statins
Statins
statins
Concerned
