Been sick this time for 9 months, 2cardioversions, 3rd ablation 5wks ago. Had a few complications and still have the asthma I left hospital with.
Until yesterday I’d been NSR but the asthma is not letting up. The inhalers, steroids etc have put the heart rate up to continuous 100-117 which is now exhausting me again, can’t walk any distance without puffing and panting out of breath. Yesterday GP noticed the heart is pausing/skipping beats and air entry in one lung not moving as it is in the other. Sent for chest X-ray await results - if get worse see EP or GP again
I don’t feel I’m an A&E case but just feeling so dispondant today and it’s the last day of the year and no better than I was at this time
I hope the majority of you all are beginning to feel positive that you’ll have a better new year
All the best everyone xx xx
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Afibflipper
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Dear flipper, I'm sorry to hear you're in the thick of it with the asthma and low energy, and awaiting test results for new symptoms. The despondency is no surprise, but hold in there because this is a temporary place and in the end what we can't change we adapt to and you're equipped with a lovely supportive heart and sense of humour, so take these with you (along with everything else you are!) into 2023. I hope the clouds soon lift and wishing you good health in the coming year.
Thank you Rainfern, I do try to see a funny positive side, I’m the type that does the fairly good cover up ( you know when you say answer the door knock or phone - mid argument inside - “oh hi haha yes great oh lovely…..“ and on “bye” the dramatic ensue no one would ever have known. Or I can be mid crisis but stop mine to help someone - “it’ll all come out in the wash” said my gran.
That is for your uplifting wishes and may 2023 be kind to us all (2023 Let’s get the party started 🎉🎊 try to make a clean 🧹 remain strong 💪 and win 🥇 this marathon run 🏃 🏃♀️ 🏃♂️ xx
So sorry to hear about how you are and the suffering you have and are going through. Let’s hope the asthma is just passing through I know what it’s like as my wife has asthma and has taken steroids off and on for over 25 years as well as injections every six weeks you need to get the clinicians to control and eradicate now. Do hope your heart settles down after all the treatment you have undergone and I wish you and your family a happy and healthier new year. xx
I’m sorry to hear of what you’re going through. I’ve just read another post mentioning the end of the year - and I do think it’s a bit of a hard time. I had such high hopes for my ablation two weeks ago, but went back into persistent A Fib after two days.
I know it is still early days, but I have been feeling low - and extra low today. Somehow I don’t want it to carry on into the new year. Which is all very silly as it’s just an arbitrary day on the calendar really.
Hoping that you get this all sorted and have a happy and healthy 2023.
my thoughts exactly - 2 weeks ago EP said I just needed more time and rest, I thought the date today and tomorrow had to be the magic cure as the NSR continued. I’m still okay in not depressed just flat/fed up no end in sight .
Perhaps you and I are having a blip due to overconfidence- getting above ourselves 😆
I’ll toast your good health and recovery tonight - Warburtons or Wholemeal toast (😂sorry couldn’t help the cracker joke) take care keep soldiering on xx
Ah, those non-alcoholic toasts. A slice of sourdough for me. (Though the Tanqueray 0.0 will be out tonight. Edinburgh fireworks are back, so I will get a wee peek at them over the rooftops for Hogmanay.)
I’m usually an optimist, and think I had decided that I would be one of those for whom an ablation worked magic. Over-confidence indeed. Though I’ve just had an uphill walk and didn’t keel over, so small steps.
May I suggest that you ask the doctors about possible phrenic nerve damage post ablation whch can affect the daiphragm amd could be the reason for the different lung sounds. I think I mentioned this elsewhere earlier.
I will do Bob thanks, I’m going to get back in touch with the EP for another review and send over the pausing ecg traces - it’s not all the time but different to as was -puffed out again just going round the house xx
Aw I’m sorry you’re having such a tough time, and sometimes you can’t help but feel despondent. You sound a bit like me in that I always try to help others when I feel awful. I suffer from asthma too and have to have steroids from time to time, and it’s horrible, and it sounds like Bob D has a good point. I hope you get some relief from it soon, and have a happy, healthy new year. Xx
Ps I fell on the ice 2 weeks ago and cracked a rib, which is nagging away, and gets sharp at times. My own fault, I shouldn’t have gone out, but as hubby says, I am a bit of a stubborn idiot. Good luck and take care.
ouch sounds painful - yes I get stubborn- helps you kick some AFibutt hope you feel better soon - we can be the asthsteroid team of 2023- I’ll def get checked out asap
Yes I hope this year and soon will settle down for you.I know everything can get so tiring...I now have a number of issues which slow me down and my husband has passed away.Now I'm contending with unpacking after finally moving and it is exhausting. I asked him for help and I feel he said to me.Just do what I feel happy doing so I am just doing a little at a time then going for a walk or talking to someone or finding something nice to think about.It's Self preservation!.
Maybe start thinking about something you like .At least most of us here understand what you are feeling and you're ok.🙂
Thank you Raewynne - yes it is easier when people do understand - no matter how much the family see I don’t think they actually really get it’s affects
I’m so sorry to hear about your husband, must be so hard at any time of the year but this is so pointed at togetherness I do feel for you. You’re obviously stronger in that you’ve been able to move on a little - I’m sure he’d be so proud of you. I’m glad you’re getting out netting people & doing little walks, taking time and finding things that make you happy if definitively the right key - as I’ve not really got out much at all this year I’ve taken up making very intricate models - literally start as bits of grey plastic and end up as very detailed painted landscaped pieces. I zone out for hours on them during days I can’t do much. Do you have hobbies you like? Hope you’ll be very happy in your new home and thank you for helping lift my spirits 🤗
That's fine.Any time.i have a little garden.I cook a little. Read a little.Cant do too much with my eyes as I have Prednisolone induced Glaucoma. I can't focus for too long.I have to rest too.
Do hope you surface well as its the start of 2023 and you will have made promises to yourself.
I've been busy making turkish base pizzas and tking them around to a friemd who has his niece staying.
One simple and the tomato paste at the bottom. Loved this one topped with mint and ...cheese and topped with tasty cheese with pesto around outside. I never told her about the tomato paste under!!!
The other two had anchovies in middle with orange cooked kumara under and nint ..cheese with my acid free little toms and tasty cheese with pesto as above.
My 2019 stroke, AF rapid and persistent and 4 days later found to show shadow on thyroid so 4 months later all papillary cancer removed. Declined RAI Radio Activw Iodine and suppression of TSH.
So 2019 - Feb 2020 difficult but in 2021 a private cardiac specialist introduced CCB Diltiazem. Immediately I was controlled.
But a year later I exchanged it for 5mg Bisoprolol as heart rate am was 67 before Diltiazem.
With a 24 monitor always showing average night rate of 47 regardless of what I was taking it was the day heart rate to control only.
I was able to have a different operation in March this year.
Asthma was diagnosed in my adopted boy when he was 3 as we stayed near privet hedging.
Asthmatics have it worse now in NZ and I see Italy are growing it without fullyt realising the reprucussions of the horrid stuff.
You will get there in the end.
I was asked how many pillows, what strenuous exercise dis I do so do keep exercising. It's good for your heart.
I cant have so haven't had cardiversions or ablations. But my heart has changed.
Thank you - I can hardly talk let alone exercise right now so I’ll need a reassessment next week I thinking have friends in NZ - Tauranga Bay of Plenty
are you born/bred NZ? My friend emigrated from UK some 17 years ago now - they love it - however people from NZ that come here say it was too quiet for them - no pleasing some is there 😆
Do you have private health care system there?
If you’re doing the incline regularly you’re obviously fairly fit - we’ll continue to enjoy your summer while it lasts - I can’t imagine being in Australia on a summer Christmas Day - a friend their says they have 43’C sometimes at Xmas
Had 3 ablations and 2 cardioversions in 2022. Hard going isn't it?
None were successful. Still in persistent AF. But at least we've all agreed to draw a line under those procedures now. Change of meds in short term. Pacemaker longer term.
It has been a trying year. Had to have 7 months off work. Not just AF, other complications. Some of which are, thankfully, settling down. Learning to be in a new pace and rhythm.
Can't say I anticipated all this at my (relatively young) age. But I sure have learnt a lot. And though at times I've felt overwhelmed, I retain hope. Or at least have tried!😉
Wishing you all the best through the challenges and, hopefully, through lighter times this year ahead. 🌸🌼
I am struggling as I actually feel worse but currently unsure if it’s asthma or heart or meds - the exhaustion and fatigue are probably worse as I’d pinned so much hope on it being sorted. Keep going xx
Your heart is still very much healing. It's early days. I've recovered well this time but last one took quite a while and definitely felt worse before feeling better. Give yourself time x
it’s been 10 months since I was able to work, I had the breathlessness at the beginning but this breathlessness doesn’t feel like the asthma - I actually feel like I’m walking with a lead suit on and 10-15 steps I feel vacuumed out - no wheezing etc I can’t help worry that “is this it?” Despite the heart being pretty strong & steady today the breathlessness remains - no point trying to second guess I know just annoying. Hope you continue to do well & thanks for your feedback much appreciated x
When I felt like that, it was underactive thyroid, alongside menopause, alongside AF. Do you think something else is going on? Firing off each other? Worth a chat with your doctor. You know your body best. Please keep us posted and PM if helpful x
it’s got to get better right? It’s a new year I’m hoping it’s just slow starting. I pretty much feel exactly like you. If I don’t lay like a lump my heart tries to get out my chest and I feel sick. Except for 3 1/2 weeks after my first cardioversion in October I have been miserable like you since April when I had my VOM plus additional. I don’t want to go to the ER either because I do have an EP appointment Wednesday but last night I felt ready to keel over. My cardioversion two weeks ago failed after 3 shocks. All I got out of it was soreness and trouble swallowing because I had a TEE.
try to hang in there, I am on Wednesday I should know what else he’s thinking. I also have a second opinion the end of the month with a doctor I had been trying to get in with. Best of luck you are far from alone there’s more of us feeling like this then there should be but here we are. Something’s Gotta give, hopefully it’s the new year and it will give us health and some feeling of quality of life
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Tacycardia - how long before I go to A and E?
Permanent a fib
