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Trying to stay positive. πŸ™„

Nannadee profile image
Nannadee
β€’23 Replies

Hi everyone. I haven't written on here since I did my 7 day post ablation blog, though I do read and reply to posts on here on a regular basis. So here is my latest update.

I felt great after the ablation, and apart from the odd ectopic beats.

I came off Flecainide in June and the EP said that if everything was ok I could come off the Bisoprolol in September.

I went to the well woman clinic 2 weeks ago for my yearly check up ( though it's actually 3 years since I last went, whoops ) and then received a phone call from the GP to say that my blood contained some small immature red blood cells so further tests were needed. As recently I have felt extremely tired and can be quite breathless even when just sitting down, I assumed it was a combination of lifestyle and coming off all heart tablets. However, it looks like it may be something different.

Then to top it all, I had a 3 hour attack of aggressive AF this afternoon, the first since the ablation. So I rang the AF nurse and I'm now back on Bisoprolol.

So all in all I'm somewhat peed off, after such a promising start I'm not feeling a happy bunny today.

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Nannadee
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23 Replies
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PeterWh profile image
PeterWh

Very sorry to hear this. Hopefully the bisoprolol does the trick and that you get the test results soon.

Nannadee profile image
Nannadeeβ€’ in reply toPeterWh

Thanks Peter, I can tell a difference already.

Rellim296 profile image
Rellim296

Oh, unwelcome complications for you, Nannadee, when it had been going well but surely an unsettling blood test might have been a trigger for the AF? I hope the further tests reassure you and it's something of little consequence or to be watched, and not requiring any treatment. x

Nannadee profile image
Nannadeeβ€’ in reply toRellim296

Me too Rellim. Thank you.

dedeottie profile image
dedeottie

So sorry to hear this. It never rains but it pours. I have had some unsettling blood results this year, mostly low neutrophil counts for no apparent reason. Ive spent weeks worrying only to find that each time the next blood test shows back to normal. Bit of a mystery. I hope your next results at least give you some answers and that A.F. bows out again. X

Nannadee profile image
Nannadeeβ€’ in reply todedeottie

Hope my blood tests are the same as yours deodottie

CDreamer profile image
CDreamer

Very bumpy ride, you think you are getting better and then hit with something else - I can relate to that! My lymphocytes count on my last bloods were up which means my meds aren't holding my condition, it's all a lot to cope with isn't it?

So sorry and hope the episode it just a one off for you and things settle down and do keep us informed as to how you are.

Best wishes CD

Nannadee profile image
Nannadeeβ€’ in reply toCDreamer

Thank you CD. I'm feeling better now I'm back on the Bisoprolol which is ridiculous isn't it.

irene75359 profile image
irene75359

No wonder you are struggling to stay positive after everything going so well. Thinking of you and hoping for some good results, and that the AF was just a blip.

Nannadee profile image
Nannadeeβ€’ in reply toirene75359

Thank you Irene.

My blood results showed high potassium which can lead to arrhythmias and also low red blood cell count. It is a worry. I think I might understand why my potassium is high but can't get to the reason for my low red cell count. I seem to be eating all the right foods, but also might be eating stuff that block the uptake of the needed vitamins, still a work in progress!!

I only found out about my low red cell count by getting online access to my records. Doctors never mentioned it!!!

Hope you get to the bottom of your issue.

Koll

Nannadee profile image
Nannadeeβ€’ in reply to

Thanks Koll. I've had to more blood tests done so hoping these will be ok.

Elaine1951 profile image
Elaine1951

Just take it step by step. You're bound to feel tired after all that. It'll be a better picture soon. Wishing you well

Nannadee profile image
Nannadeeβ€’ in reply toElaine1951

Thank you Elaine.

Polski profile image
Polski

When coming off bisoprolol one can get symptoms while it all settles down. When I came off bisoprolol I was allowed to, on the condition that I used the bisoprolol as a PIP in the event of fast AF. This has worked for me, and I use it less and less. I wonder if they would agree to your trying this?

Nannadee profile image
Nannadeeβ€’ in reply toPolski

Ive only gone back on 2-5 mgs once a day instead of twice daily and my heart is steady again. So will maybe try coming off them every other day when I feel more settled.

BobD profile image
BobDVolunteer

So Sorry to read that. Big cyber hugs>(((( ))))

Bob

Nannadee profile image
Nannadeeβ€’ in reply toBobD

Feel so much better after the cyber hug Bob. πŸ˜„

jeanjeannie50 profile image
jeanjeannie50

So sorry to hear that you have this worry. Do you have an appointment booked for your next blood test?

Jean

Nannadee profile image
Nannadeeβ€’ in reply tojeanjeannie50

It was done yesterday Jean. I had 2 phials taken so will know more in 2 weeks. Hopefully it's just anemia, but I googled it, fatal, should have listened to my son and not done it.

rosyG profile image
rosyGβ€’ in reply toNannadee

hope all goes well- I thought of anaemia- hope all you need is one iron !!

Nannadee profile image
Nannadeeβ€’ in reply torosyG

Thanks rosy, me too. Using the Internet is fatal.

rosyG profile image
rosyGβ€’ in reply toNannadee

you sound like me - but i still look things up!!

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