PoTS and Long COVID - Dysautomnia - Atrial Fibrillati...

Atrial Fibrillation Support

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PoTS and Long COVID - Dysautomnia

CDreamer profile image
8 Replies

Those who already receive the AA Newsletter may already have read this very interesting article.

All I can say is that it resonates with my experience of COVID and I suspect that it also was the reason for the ECG which landed me in A&E last week.

A must read for anyone who has had COVID and arrythmias

heartrhythmalliance.org/sta...

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CDreamer
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8 Replies
Coco51 profile image
Coco51

Thank you. Really interesting advice. Hope you are on the mend.

jeanjeannie50 profile image
jeanjeannie50

Very interesting CD, thank you for sharing. X

Physalis profile image
Physalis

Thank you so much. I have sent it to my grandson and his mother. They are doing an awful lot themselves but this gives even more detailed advice.

bassets profile image
bassets

Thank you. Hope you are feeling better :)

CDreamer profile image
CDreamer in reply tobassets

Thanks - now I am able to eat and retain meds I am feeling a lot better and on the road to recovery. I have some follow up appointments such as chest X-rays, neurology appointments and various tests through November but very pleased to have come through.

bassets profile image
bassets

That's fab- keep it up! x

Auriculaire profile image
Auriculaire

Thanks for posting this interesting article . Glad to hear you are starting to improve. When I first read about long covid I was astonished at how similar the symtoms were to those of floxing - I even thought that many of the cases could be due to that as some hospitalised patients were being given Fluoroquinolones to deal with bacterial co infection in the lungs. But when it became clear that many of those suffering had never had any medical treatment for their covid I realised this was not an explanation . I think mitochondrial damage ought to be investigated more as this could be an important factor especially with the intense fatigue and post exertional malaise. The advice on pacing in the article is spot on. It has taken me years to learn to listen to my body and stop fretting over what I think I should be able to do ( comparing what I can do now to what I could do easily 5 or 10 years ago) and settle for more modest goals . And if I can't manage those - tough maybe I will tomorrow!

CDreamer profile image
CDreamer in reply toAuriculaire

So agree about the Mitrochondria connection - which is why I believe nutrition is SO important and the right nutrition for you which can only really be determined but testing. Trouble is very difficult to find people to do the testing and analysis.

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