Hello, sorry I forgot to mention my consultant said that when I get an episode I must not take any extra tablets and that I am to ride it out , I questioned this as I have been told so many different things by different consultants and paramedics that it is dangerous if the heart rate gets too high as the heart can stop or I can have a stroke or heart attack.
What do you think on this ?
Thanks electricblue1
Any chest pain or fainting needs attention otherwise ride it out as instructed. AF won't kill you and the anticoagulation will help prevent strokes.
Thank you, do you have any knowledge on the anti inflammatory tablets called colchicine.
For gout so not sure why you have them.
My consultant said it would reduce the inflammation of the heart after ablation. Do you know if it’s safe to take it with edoxaban ( blood thinner) , I’ve read of some awful side effects.
I'm not a doctor so go with what yours told you.
For inflammation of the Pericardium. I started on them yesterday, after a 3 day stint at the R.U.H with Pericarditis
I'm on Colchicine.....off label use post ablation to keep Pericarditis at bay....anti-inflammatory. From what I understand it's more a U.S. based thing.
Hello, what is pericarditis , I’m going to try and push on with the colchicine if I can for my own good.
The pericardium is the membrane enclosing the heart, consisting of an outer fibrous layer and an inner double layer of serous membrane. Pericarditis is inflammation of this 'enclosure'. With inflammation of the heart, or build up of fluid, etc.....the Pericardium can become irritable as can the heart, with nowhere left to expand. Not something to be perseverate over but I was told this is why the colchicine.
By the way, not everybody get the migraine aura and f ew of those actually get pain. It is just the zig zggy light show normally for most. Try to relax more.
Thank you, when do the light show start , like how many days after.
I don't think the light show is a fixed thing so try not to second guess as it'll make you feel more stressed. I had one about a week in after bending down. Then none for months. Oddly I had one at the beginning of this month, which is 6 months after my ablation.
Thank you , it’s so nice to hear other peoples experience.
I had one a couple days before ablation....apparently coming off the beta blockers, then another 9 days after ablation, again was titrating the beta blockers. Scary but kind of cool if you are in a quiet space and can settle into it and enjoy the lights. Tends to drift across field of vision and gone within 30 mins.
Hello, thank you, sounds weird , but nice to be prepared just in case it happens.
As a (very) old hand in this game I know what I would do if I felt really compromised and had heart rate approaching 200 BPM and above with no sign of abating......I would get to AE. Riding it out is fine for lowish rates.
My personal opinion has always been that I know my body best. Possibly your rates are quite low?
Thank you, some times it’s 140 ish but other times it’s high and I feel awful, let’s hope I don’t get too many.
Who knows we are all different. You may not have it. Stop looking for things to worry about. Plenty of time if it happens.
If its not sustained then ride it out. Bob's reply quite apt !
Try not to worry too much about what may happen if you can.
Regards
J
If your EP said not to take extra meds there was no doubt a good reason for that. Take the advice given as it's important at this stage. Is there an Arrythmia Nurse in the department you can chat to? I found mine really helpful.
Hello, yes there is an nurse so I will chat to her. I think when your in a bad episode and it goes on for hours it’s scary .
When I developed reentrant Atrial flutter I was at 140bpm for a month before getting an ablation for it. I was 57 years old at the time. I had no issues with that rate and was running a few months after the ablation.
However if you develop chest pain then seek medical attention .
I’d say that your consultant is the one to listen to, followed by, if you feel there’s some misunderstanding, your consultant once again if necessary via their secretary or an arrhythmia nurse at their clinic.
Only he or she knows the physical and conduction strengths and the weaknesses of your heart and circulatory system and will be working using carefully devised treatment algorithms that ensure the best outcome possible.
Steve
Thank you , I’m am going to call arrhythmia nurse later for information.
I’ve found using the cardiologist’s secretary (Leicester) more successful.Steve
Ablation update......
5 weeks on from 3rd Ablation
Hybrid ablation part 2
Hybrid Ablation Part 2
Positive Update - ablation 
