AF and thyroid meds: For two days now... - Atrial Fibrillati...

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AF and thyroid meds

queseyo profile image
19 Replies

For two days now my BP suddenly drop to normal and without AF symptoms, with only increase a bit my underactive thyroid's meds, by my GP. I'm feeling great!

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queseyo
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19 Replies
rosyG profile image
rosyG

That’s good. Important to keep thyroid at right level. Too much will set AF off too!! Stay well

queseyo profile image
queseyo in reply to rosyG

Yes, thanks, I experienced that over supplementation near kills me last year...my previous incompetent GP increased the meds by 50%. Since until recently I haven't been well at all. Hope this doc helps me by adjusting the meds slowly checking function ever couple of weeks. 👍👍👍

jeanjeannie50 profile image
jeanjeannie50

That's good news to hear. I take levothyroxine too and you've made me think I must get my levels checked out. Mind you I've lost a stone in weight and I'm feeling more energetic and really well now too.

As rosy has said too higher dose of meds for the thyroid can also set AF off.

CDreamer profile image
CDreamer in reply to jeanjeannie50

Oh well done with the weight loss Jean! 👏👏👏

jeanjeannie50 profile image
jeanjeannie50 in reply to CDreamer

Thank you CD

The weight loss is because of having to avoid eating fatty foods which can trigger my gallbladder infection, it will hopefully be removed soon. Friends and family are telling me not to lose any more weight. I keep telling myself that's about 7 bags of sugar I'm not having to carry around. I feel I have energy again, would recommend to anyone who needs to lose some weight. I thought feeling this well would never happen again, we all blame our AF, but losing weight if needed certainly works wonders.

Jean

baba profile image
baba in reply to jeanjeannie50

Well done!

Tapanac profile image
Tapanac in reply to jeanjeannie50

I hope your operation comes soon for you. I was ill with gall stones from 16 years old when the doctors said it was nerves through GCE’s then when it got near our wedding, more nerves..... eventually when morphine didn’t even work and the pain unbelievably bad (worse than having 10 children labour pains) gall stones discovered and the gravel had spread along to my liver. Anyway took the gall bladder out and cleaned up the liver and all. That was in 1971 so the scar is enormous, so different today, but the relief of the pain amazing. Believe it or not they said people who are fair, fat and forty were more susceptible, but I was at the time of the operation 27, skinny, although blonde!!!!! Surprisingly I discovered it was lettuce which set off an attack.All the best x

jeanjeannie50 profile image
jeanjeannie50 in reply to Tapanac

How strange - lettuce!!! I'm 70 fair and fairly slim. I thought I was having a heart attack the first time my gallbladder kicked off. I'd had a huge fried breakfast at lunch time (never, ever have that usually) and I sometimes wonder if without that my gallbladder wouldn't be infected. Not had an attack for over a month now, too scared to eat much and I certainly avoid fat. Had my pre med for the op a few weeks ago.

Tapanac profile image
Tapanac in reply to jeanjeannie50

If you’ve had your pre-assessment presumably your operation won’t be long - Covid willing! You really feel so well afterwards. Of course our Afib/tachycardia is a pain, but at least you won’t have those awful gallstone pains. All the best and thinking of you. Ps...I’m 77 now, not as slim as I was thanks to lockdown and boredom baking and probably grey under the highlights!!!

queseyo profile image
queseyo in reply to jeanjeannie50

Happy Easter, Jean..., thanks for posting, Still felling well today. Yes, apparently this gland´s hormones is influencing every thing in our body and meds for AF can have a big influence in its function. That is way this GP is trying to adjust its med cautiously. If it works seems a miracle. Some time some docs can err, please have your checked out...it has to be 100% right.

jeanjeannie50 profile image
jeanjeannie50 in reply to queseyo

Happy Easter to you too.

I felt that taking Levo gave me my life back, had felt so tired and had little energy before taking that. I'd go for a walk in the morning and then sleep in the afternoon. It was as though I had so much energy for the day and once I used it, well that was it. I thought it was all a part of having AF.

Really hope it will be as good for you and you can enjoy life again.

CDreamer profile image
CDreamer

So good to keep on top of these things.

Lilypocket profile image
Lilypocket

Hello, At last a post combining two pathologies that I am trying to balance! In a nutshell I have nodules and am taking Levothyrox as the endocrinologist wants to keep my TSH levels very low to avoid the risk of malignancy. On the other hand I have PAfib which I have had since 2012. My cardiologist wants me to halve my dose of Levo as he says low TSH is bad for my heart . My T3 T4 is normal. I feel like a tightrope walker 🤔. Are there actually dr's who deal with this under one umbrella so to speak? Both dr's feel I should follow their instructions.

So pleased you are feeling great again quelseyo and well down Jean that is a quite an impressive 7 bags of sugar to lose!

Xx

queseyo profile image
queseyo in reply to Lilypocket

I think you have to find a doctor who look at all your medical conditions (a holistic approach) and try to balance all meds interactions with everything that is affecting you health. All the best. I have been there and have learned. Of course, we are all different.

rosyG profile image
rosyG in reply to Lilypocket

I have been diagnosed with hashimotos but no supplements as blood results normal. Seems logical to not intervene if normal but you’ve also got to listen to doctors!! Tough I think

CDreamer profile image
CDreamer in reply to Lilypocket

There is a good paragraph in The AF Cure - see PanetaryKim’s post - about balancing Thyroid meds & tests & numbers you need to aim for to keep in control & balance AF. Evidently it is similar to walking a tightrope & small difference either side will affect AF.

Lilypocket profile image
Lilypocket in reply to CDreamer

That's very interesting - I'll get the book. Thanks for replying 😊

Auriculaire profile image
Auriculaire in reply to Lilypocket

The low TSH mantra seems to be par for the course with cardiologists here because actually they know zilch about the thyroid. As it is thyroid hormone that acts on the tissues of the body if they are well in range how can they be acting adversely? Perhaps it is because TSH is usually the standard test and a low TSH might signify high thyroid hormones that this mantra has arisen. If you had the PAF before the nodules then it has not been caused by low TSH. I have had a similar problem and have never felt that great since my Levothyrox was lowered and my T3 stopped. Also I have had alarming rises in TSH to above the top of the normal range. My own cardiologist admitted he knew nothing about the thyroid! It was the hospital one when I was first admitted with with afib who made all the fuss about my low TSH.

Lilypocket profile image
Lilypocket in reply to Auriculaire

Hi I've had thyroid nodules since 1988. My Afib started around 2012 but I think it is definitely to do with my Levothyroxine level . And obviously Afib begets Afib.

I'm followed by head of Endocrinology at Pitié Salpêtrière but I had to find out for myself the fine line connection between TSH and Afib that I think is very common.

Have you managed to get the levothyroxine increased again?

X

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