Covid 19 & AF: Just got my letter from... - Atrial Fibrillati...

Atrial Fibrillation Support

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Covid 19 & AF

Suzanne-Cheshire profile image

Just got my letter from Matt Hancock saying :

"We are writing to you because you have previously been identified as someone thought to be clinically extremely vulnerable and at highest risk of becoming very unwell if you catch COVID-19. "

I have never had any other conditions but paroxysmal AF.

Have all other sufferers been identified as such as I have read that lone AF is not putting people in that category?

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Suzanne-Cheshire profile image
Suzanne-Cheshire
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54 Replies
BobD profile image
BobDVolunteer

I have not heard of AF alone being a high risk condition and doubt many members here haave had those letters.

Suzanne-Cheshire profile image
Suzanne-Cheshire in reply to BobD

Thanks BobD. Maybe it's my local surgery putting all 'cardiac' patients in that category...

Buffafly profile image
Buffafly

No, and I also have asthma and a leaky mitral valve and angina!

Suzanne-Cheshire profile image
Suzanne-Cheshire in reply to Buffafly

It's very odd!

PoshLady profile image
PoshLady

i have had a letter . I do have Coeliac also. I don't think that would make me more vulnerable. I am 76 but a few aches and pains I'm fairly fit.

Suzanne-Cheshire profile image
Suzanne-Cheshire in reply to PoshLady

I wonder who makes the decision on these letters. The letter is a bit alarming in tone but I would agree with the letters being sent out but they should be sent out appropriately. I'm in my 50s and haven't got any other conditions so was a bit surprised to get it!

FancyPants54 profile image
FancyPants54 in reply to Suzanne-Cheshire

I'm in my 50's with persistent AF, hypothyroidism, asthma and I'm overweight. I don't have such a letter. I'd ring your surgery if I were you and ask them to explain.

PoshLady profile image
PoshLady in reply to FancyPants54

I have friends and they have quite a lot of conditions. Like you Fancy Pants . Much worse than I have. They haven't had a letter either.

CDreamer profile image
CDreamer

I also received the letter but am on immune suppressants which puts me in that category. I didn’t think AF put you into that category otherwise about 20% of the population will be also.

I was identified by the NHS - GP lists are completely different category. Did you register on any site for help during the 1st lockdown.

Look at the positive - you can register for priority food deliveries.

Suzanne-Cheshire profile image
Suzanne-Cheshire in reply to CDreamer

No, I didn't register on any site for help! So these letters are not generated by GP surgeries? Would they be generated from the hospital ?

CDreamer profile image
CDreamer in reply to Suzanne-Cheshire

No - NHS Direct

CDreamer profile image
CDreamer in reply to CDreamer

digital.nhs.uk/about-nhs-di...

NHS Direct was re-organized circa 2013-14 but there are still too many NHS quangos that it’s very difficult to know what comes from where.

Eadaoin profile image
Eadaoin in reply to Suzanne-Cheshire

Mine came signed by the hospital on NHS/ gov. notepaper. But I had already had a phone call from haematology at the hospital in the first week of the lockdown telling me to shield. I have AF, heart disease and blood cancer. I guess I “qualify”.

Suzanne-Cheshire profile image
Suzanne-Cheshire in reply to Eadaoin

Fair enough as you qualify - it's only right to get the letter. Mine was actually by email and very long and detailed as to what to do and not to do! It's headed Department of Health and Social Care.

MarkS profile image
MarkS in reply to Suzanne-Cheshire

I'm suspicious of any official notifications by email, are you sure it's not a scam? Did they address you in person?

Suzanne-Cheshire profile image
Suzanne-Cheshire in reply to MarkS

Yes full name NHS number and postal address!

PoshLady profile image
PoshLady in reply to Suzanne-Cheshire

Neither did I register for any help.

tunybgur profile image
tunybgur in reply to CDreamer

The best estimate for the number of people who have AF in the UK is about 1 million diagnosed and a further half million undiagnosed, that's 2% ish, but I take your point.

Suzanne-Cheshire profile image
Suzanne-Cheshire

Oh ok. Thanks very much for the info.

Becksagogo profile image
Becksagogo

I have had two texts identifying me as extremely vulnerable but I have other issues apart from AF. I have to say that this time it has put the fear of God into me and apart from taking the dog for a walk I probably won't be going anywhere!

Singwell profile image
Singwell

I'm 64, have AF and hypertension. No letter. But I certainly have been careful and semi shielded voluntarily.

Caro57 profile image
Caro57

Interesting- hubby is the patient. He has asthma, is over 70, has AF (pacemaker dependent for it) - has never been asked to shield and, since first lockdown, has been in hospital with pneumonia and pleural effusion. Still no advice as to risk etc. - it all seems very haphazard

Stay safe

CDreamer profile image
CDreamer in reply to Caro57

Asthma, unless severe, age & AF are not on the Government list, it’s very precise & its advisory, not compulsory. Your husband is obviously vulnerable so whether or not you get a letter or email (I chose to have communication by email & it’s no hoax) is immaterial, take precautions and do what is advised generally to stay well and safe

I think we need to keep this in proportion.

Bowcat profile image
Bowcat

No letter for me also. I have paroxysmal AF tachycardia, asthma and CKD. It's all very confusing, just seems like a lottery ticket on whether you get one or not! 🤔

majjic profile image
majjic

Hi Suzanne-Cheshire, I've had a letter too but i do have several underlying issues as well as AF and my age is factored into it.

Knittinganimals profile image
Knittinganimals

I too had the letter and I have PAF and no other underlying problems at the moment

Suzanne-Cheshire profile image
Suzanne-Cheshire in reply to Knittinganimals

So you have the same situation, the plot gets thicker? How were we selected ?!

Ppiman profile image
Ppiman

It's your GP who has done this, so far as I know. It could easily be an oversight as doctor's practices are overloaded with administrative tasks these days.

Steve

Suzanne-Cheshire profile image
Suzanne-Cheshire in reply to Ppiman

Ok, thanks, that would make sense!

Alfc profile image
Alfc

I too have paroxysmal AF and have not received a letter. I have also been led to believe that I’m not in the vulnerable category.

Cha275rL profile image
Cha275rL

Not heard of that either. I have asthma as well. I wonder if it could’ve been sent to you in some kind of mistake.

Suzanne-Cheshire profile image
Suzanne-Cheshire in reply to Cha275rL

Yes I suspect that is the case!

Shemac52 profile image
Shemac52

I received letter 1st time round and email from DHSC yesterday.

Suhnicat profile image
Suhnicat

I have AF but not been identified.

MartinoH profile image
MartinoH

I had an appointment with my consultant this week, he’s very good and I trust him. He is certain that lone AF does not put you in the high risk category.

Suzanne-Cheshire profile image
Suzanne-Cheshire in reply to MartinoH

That's good to hear!

FancyPants54 profile image
FancyPants54

You say it's an email. If so, hover your cursor over the email address it's come from, or right click on the email address so that you can see it in full, not just the tidy version. If it's come from the government or NHS it will have a clear email address that shows this. If it's a scam the email address will look wrong. If you are unsure, copy the email address (sender only) and paste it in a reply to me and I'll have a look at it for you and tell you if it's genuine or not.

bantam12 profile image
bantam12 in reply to FancyPants54

The government are sending flyers out so it's likely genuine.

FancyPants54 profile image
FancyPants54 in reply to bantam12

I'm used to spam and scam emails. All my work is online. So I'm just saying, to be sure, check the email address. It's surprising how common it is to have something look genuine and still be scam.

If it's scam it's usually addressed to a non specific person in the body of the message too. From banks it's often things like "Dear Sir" or "Dear Customer" or even worse "Dear Valued Customer". It's never by name as "Dear Peter" or Dear Mr Smith" because they don't have that information.

bantam12 profile image
bantam12 in reply to FancyPants54

I'm aware how scams work, this is the government page

gov.uk/government/publicati...

FancyPants54 profile image
FancyPants54 in reply to bantam12

The original poster said she received an email. Perhaps it was an email with a link to this page, or a copy of the page. Fine. I was just offering to help if needed. Seems like you have decided my help isn't needed. Fine.

bantam12 profile image
bantam12 in reply to FancyPants54

Several people have asked about the email they received so I'm merely saying it's likely genuine because the government have sent them out in the past few days and the link is useful as it gives the last advice. No need to take offence, stay safe 😊

Suzanne-Cheshire profile image
Suzanne-Cheshire in reply to bantam12

It wasn't s link but this is the body of text which does contain other links within it....

"On 31 October, the Prime Minister announced new national restrictions to help control the spread of COVID-19. We are writing to you because you have previously been identified as someone thought to be clinically extremely vulnerable and at highest risk of becoming very unwell if you catch COVID-19. This letter contains important advice on how to protect yourself and how to access further support.

Coronavirus cases are rising rapidly across the whole of the UK, and that is why, from 5 November until 2 December, the Government has taken the following action:

Requiring people to stay at home, except for specific purposes.

Preventing gathering with people you do not live with, except for specific purposes.

Closing certain businesses and venues, like hospitality and non-essential retail.

The new national restrictions are rules that apply to everyone and which everyone must follow. The full details of these rules can be found online at gov.uk/coronavirus.

In addition, the Government is issuing new guidance to clinically extremely vulnerable people. This is set out in the following pages. Whilst this is not a return to the very restrictive shielding advice you may have followed earlier in the year, you are strongly advised to follow these extra precautionary shielding measures to help keep yourself safe. This remains advice, not the law.

You should stay at home as much as possible but are encouraged to go outdoors for exercising and attending health appointments. You are strongly advised to work from home. If you cannot work from home, then you should not attend work. You may be eligible for the Coronavirus Job Retention Scheme (furlough). This letter is a formal shielding notification and can act as evidence for your employer to show that you cannot work outside your home until 2 December, including for statutory sick pay (SSP) purposes.

The new national restrictions, and this specific advice will apply across England for four weeks up to Wednesday 2 December. At the end of this period, we expect to return to guidance that is specific to your region, based on the latest data. We will write to you again with further information before then.

Please remember that the NHS is open, and we urge you to continue to access all the NHS services that you need. It is safer for you to use the NHS than to try to manage alone.

If you are concerned about the impact of COVID-19 on your health, speak to your GP, hospital clinician or use NHS111. Further information on how to access help, including how to register for support, can be found in the attached guidance.

We know that this is a difficult time and many people are making significant sacrifices. Thank you for your efforts to keep yourself and others safe.

Yours sincerely,

MATT HANCOCK

Secretary of State for Health and Social Care

ROBERT JENRICK

Secretary of State for Housing, Communities and Local Government

Guidance for clinically extremely vulnerable people

This guidance is for everyone in England who has been identified as clinically extremely vulnerable. The full guidance can be found online at gov.uk/coronavirus. This is additional guidance for clinically extremely vulnerable people, to help you protect yourself from the virus by following these shielding measures.

This guidance applies to clinically extremely vulnerable individuals only. Others living in a household with someone who is clinically extremely vulnerable are not advised to follow this guidance.

Socialising

The new National Restrictions from 5 November, which apply to everyone, mean that you must not leave or be outside of your home, except for limited purposes which are set out in that guidance.

We are advising clinically extremely vulnerable people to stay at home as much as possible, except to go outdoors for exercise or to attend essential health appointments. You may wish to meet up with one other person from outside your household or support bubble to exercise outdoors, for example in an outdoor public place, but we suggest that you always try to do so as safely as possible.

Try to keep all contact with others to a minimum and avoid busy areas. Whenever you go out continue to maintain strict social distancing, wash your hands regularly and avoid touching your face.

You should also try to stay 2 metres away from other people within your household, especially if they display symptoms of the virus or have been advised to self-isolate.

Work

You are strongly advised to work from home. If you cannot work from home, then you should not attend work for this period of restrictions. If you cannot attend work for this reason, you may be eligible for Statutory Sick Pay (SSP), Employment Support Allowance (ESA) or Universal Credit. Other eligibility criteria will apply.

You will be able to use this letter as evidence for your employer to show that you should not work outside your home until 2 December, including for statutory sick pay purposes. You can also use this letter for the Department for Work and Pensions to show that you are advised to follow shielding guidance for ESA or Universal Credit purposes.

If you were on payroll before 30 October 2020 you may also be eligible for the Coronavirus Job Retention Scheme (furlough), which is being extended until 2 December. Please speak to your employer if you think you are eligible.

Other people you live with who are not clinically extremely vulnerable themselves can still attend work if they cannot work from home, in line with the wider rules set out in the new National Restrictions from 5 November.

Education settings

More evidence has emerged that shows there is a very low risk of children becoming very unwell from COVID-19, even for children with existing health conditions. Most children originally identified as clinically extremely vulnerable no longer need to follow this advice. Speak to your GP or specialist clinician if you have not already done so, to understand whether your child should still be classed as clinically extremely vulnerable.

Those children whose doctors have confirmed they are still clinically extremely vulnerable are advised not to attend school whilst this advice is in place. Your school will make appropriate arrangements for you to be able to continue your education at home. Children who live with someone who is clinically extremely vulnerable, but who are not clinically extremely vulnerable themselves, should still attend school.

Travel

You should avoid all non-essential travel by private or public transport, this includes not travelling to work, school or the shops. You should still travel to hospital and GP appointments unless told otherwise by your doctor. If you need help to travel to an appointment, you can speak to your health care professional to arrange transport support. They can arrange this with NHS Volunteer Responders.

Shopping

You are advised not to go to the shops. Use online shopping if you can, or ask others to collect and deliver shopping for you (friends, family, or a volunteer, including NHS Volunteer Responders). If you already have a priority delivery slot with a supermarket that will continue, you do not need to do anything frther.

If you cannot access food, your local council can offer support. This may include helping you to request a priority supermarket delivery slot (if you do not already have one) or help with shopping. See below for details on how to register for support.

Medicines

You are advised not to go to a pharmacy.

You are encouraged in the first instance to ask a friend, family member, carer or a volunteer (for example one of the NHS Volunteer Responders) to collect your medicines for you. If none of these are available, then you will be eligible for free medicines delivery. Please contact your pharmacy to inform them that you are clinically extremely vulnerable and need your medicines delivered, and they will arrange this free of charge.

Accessing care and support

It is important that you continue to receive the care and support you need to help you stay safe and well.

We urge you to continue to seek support from the NHS and other health providers for your existing health conditions and any new health concerns.

You can access a range of NHS services from home, including ordering repeat prescriptions or contacting your health professional through an online consultation. To find out more visit nhs.uk/health-at-home, or download the NHS App at

nhs.uk/using-the-nhs/nhs-se....

Please make sure your GP has your most up to date contact details, including your home address and, if possible, a personal email address, so that we know how to contact you.

If you have an urgent medical need, call NHS 111 or, for a medical emergency, dial 999.

If you need to have a test for COVID-19 then you are able to attend a test site. You may want to think about attending at a quieter time or asking for a home test to be sent to you, in order to reduce your contacts with other people. It is important that you have your test. More information about getting a COVID-19 test can be found at gov.uk/get-coronavirus-test.

If you do need to receive care in person, you can. Your local NHS services are well prepared and will put in measures to keep you safe.

It is also really important to look after your mental health. Go to the Every Mind Matters website for advice and practical steps that you can take to support your wellbeing and manage your mental health during this pandemic. If you or someone you care for are experiencing a mental health crisis, we urge you to make contact with a local health professional immediately.

Any carers or visitors who support you with your everyday needs or those of a child or young person in your care can continue to visit. They should follow social distancing guidance where close or personal contact is not required.

If you need any additional support to help you to follow this guidance, your local council may be able to help. You can contact your council and register for support at the Shielding Support website mentioned below.

You should also continue to access support from local charities and organisations, as well as NHS Volunteer Responders. As well as helping with shopping and medicines delivery, NHS Volunteer Responders can help with a regular, friendly phone call, and transport to and from medical appointments.

Call 0808 196 3646 between 8am and 8pm to arrange support or visit NHS Volunteer Responders website.

Registering for Support

You will be able to use a new online service to register yourself, or on behalf of someone else, to:

request access to a priority supermarket delivery slot (if you have already got priority supermarket deliveries, you will keep them).

tell your council if you need support in order to follow this guidance that you are unable to arrange yourself and cannot be provided by friends, family or other support networks

make sure your details such as your address are up to date

This new online service can be found at gov.uk/coronavirus-shieldin... and is now live for you register for support. You’ll be asked for your NHS number, which you can find at the top of this letter. It is helpful if you register even if you do not have any support needs at this time so we know to focus on caring for others who need it. You can log in and update your needs if circumstances change at any time.

If you need to register your needs by phone, or have an urgent need, contact your local council directly.

Find out what help you might be able to get from your local council at gov.uk/coronavirus-local-help. '

Suzanne-Cheshire profile image
Suzanne-Cheshire in reply to FancyPants54

Thanks for your help, much appreciated

- this is the email address it's sent from

DHSC Clinically Extremely Vulnerable • dhsc.clinically.extremely.vulnerable@notifications.service.gov.uk

FancyPants54 profile image
FancyPants54 in reply to Suzanne-Cheshire

Yes, that's a genuine email address linked to the official information.

It's surprising how good some scams look. But there are always clues. This however, has been sent to you officially.

Suzanne-Cheshire profile image
Suzanne-Cheshire in reply to FancyPants54

Thanks very much for checking that out :) I presume it's been sent to me in error but not much I can do about that!

Suzanne-Cheshire profile image
Suzanne-Cheshire in reply to FancyPants54

It contains my full information!

Suzanne-Cheshire profile image
Suzanne-Cheshire in reply to FancyPants54

Ok thanks I'll try that now.

Suzanne-Cheshire profile image
Suzanne-Cheshire in reply to FancyPants54

DHSC Clinically Extremely Vulnerable • dhsc.clinically.extremely.vulnerable@notifications.service.gov.uk

Aegean56 profile image
Aegean56

I have not received any such notification from my health care provider. However on my annual visit last month, my doctor did say that people with no prior history of any cardiac issues of any kind demostrated abnormal cardiac rhythms, when presenting with Covid symptoms, that were persistent throughout the course of their illness.

Eadaoin profile image
Eadaoin

Yes mine was emailed too.

xr1450 profile image
xr1450

Hi Suzanne, I'm 58 mild COPD, Dilated Cardiomyopathy and Proximal Atrial Fibrillation, recent failed ablation and on the list for ablation number 2 and I haven't had a letter last time or this time....Go figure.

Londonlass profile image
Londonlass

I think it is all a bit haphazard. One friend received a letter first time round and nobody including his GP could say why as although he has treated hypertension , no other issues. Another friend found that she was on the Sainsburys list, despite being fit and well and working full-time.

Equally I read that a number of people who should have been formally told to shield last time round never received any official notification

I just think we need to do our own risk assessment and what we feel comfortable in doing to protect ourselves, whether we are on a list or not.

Hope you keep safe and well.

Suzanne-Cheshire profile image
Suzanne-Cheshire in reply to Londonlass

Yes, I agree absolutely!

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