What a great set of people on here! - Atrial Fibrillati...

Atrial Fibrillation Support

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What a great set of people on here!

Dangerousdriver profile image
19 Replies

Just wanted to say this is one of the best forums/help groups around. You are all very helpful, polite and courteous even though many including me I’m sure ask questions when search function could have been used.

There are regular posters on here that continue to share their knowledge and experiences which have proven to be invaluable to some of us.

But importantly, it’s good to know that you aren’t alone.

So from me a big big thank you and keep up the good work.

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Dangerousdriver profile image
Dangerousdriver
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19 Replies

Hi, that is a nice thing to post, thanks.

I hang around here despite being in NSR for the last 2.5 years after my ablation.

I learned a lot in the 3 years before that, and as you say this place is brilliant.

I felt scared and alone before I found this forum, so I hope that my small input may help others to not feel like that

Dangerousdriver profile image
Dangerousdriver in reply to

Hi Mike, thanks 😊

Yep same here, I guessed once I had the ablation I’d maybe stop coming on here, but I haven’t. And it’s great to be able to pass on your experiences to others who are in the position you once found yourself in.

Padayn01 profile image
Padayn01

Fantastic Forum, helped me so much

diminished7th profile image
diminished7th

Absolutely agree. I don't post much but I read most comments almost every day. 😁

jeanjeannie50 profile image
jeanjeannie50

Your words are so true.

Despite suffering from it, I knew little about atrial fibrillation, flutter, or any other heart rhythm abnormality, until I joined this forum. Now I feel we're all part of one big AF family. Other members understand exactly how you are feeling when having an attack, or suffering the anxiety that goes with the condition.

Lets face it, although they mean well, those with normal heart rates haven't a clue just what it's like.

I'll forever be grateful to everyone here for their fantastic support.

Jean

Dangerousdriver profile image
Dangerousdriver in reply tojeanjeannie50

Hi Jean,

Yes, before I was diagnosed I’d heard of fib/flutter etc but didn’t really know much about it.

It’s funny because we are from different walks of life, we all share a common disease/condition, but so many of us have different symptoms to the next person. What works for one doesn’t for another, but those on here are the glue that sticks us together as one!

wilsond profile image
wilsond in reply tojeanjeannie50

Very true Jean xx

Mouchkin profile image
Mouchkin in reply tojeanjeannie50

I appreciate you Jeanniejeannie50 very much.

Finvola profile image
Finvola

Totally agree Dangerousdriver. I came here knowing nothing except fear and the knowledge that my heart wasn’t right. I really could not have coped alone nor learned so much about a condition which so many people dismiss as ‘nothing’ or ‘Oh, I have that and I just ignore it’. 😩😩😩

Just knowing there are others who understand and will help makes the whole thing less of a burden.

Dangerousdriver profile image
Dangerousdriver in reply toFinvola

Hi Fin,

Yes, even now people look at me and see me as for and healthy because of my appearance, but lurking under that exterior is a condition that reminds you that everyday that it’s there waiting to pounce. It’s a sentence sometimes, where you never feel free to live how you want to, but I came to accept this and adapted accordingly to live the best life I can!

ETFCfan profile image
ETFCfan in reply toDangerousdriver

I love your attitude and try to live for the present and have adapted my life accordingly. Only yesterday I could have screamed, I was feeling very dizzy and breathless after negotiating the London Underground and was greeted by a lady telling me ‘well you look alright to me!’

dedeottie profile image
dedeottie

Thank you for reminding me how lucky we are. This forum literally saved my sanity when I first found it and continues to do so at fairly regular intervals. It is wonderful to be part of something so helpful. X

siouxbee19 profile image
siouxbee19

Welcome, & thank you very much! I am relatively new here, and those are my sentiments as well!

Best wishes...😀

Tudee profile image
Tudee

I agree very strongly, it like a warm safety net of wonderful help and support often when there is no one else around to help and reassure, these folk have helped me through some very worrying dilemmas, .....thank you all. X Dee

wilsond profile image
wilsond

What a nice post! I found the forum so valuable ,our condition is so variable and I felt quite isolated when I had to have periods off work

I like to give something back if I can help someone make a bit of sense of what's going on in their heart or just a support I will.

Take care DD!!

Twosticks profile image
Twosticks

I'll second that great careing group of people.

Tyson4ever profile image
Tyson4ever

Great forum

Great people

Great support

Thankyou

Eastwick profile image
Eastwick

Completely agree. Don’t always post but do read all stories.

irene75359 profile image
irene75359

Almost four years (after my diagnosis) since I found this site and still read every post- sometimes a couple of days later but the knowledge that I have gained is so valuable I don't want to miss something crucial! Love your post.

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