Have a great weekend : So many positive... - Atrial Fibrillati...

Atrial Fibrillation Support

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Have a great weekend

Kennyb1968 profile image
15 Replies

So many positive, caring and kind people on here have supported and comforted me over the last few months since my AFib progressed. It was a nightmare - daily 3 hour interuptions to my life, broken sleep, anxiousness.etc. I am lucky in that I am asymptomatic but still it was a concern. I was placed on a daily dose of 200mg of flecainide but for weeks it just did not seem to work. However I stuck with the daily dose of flecainide and bisoprolol and lo and behold - this week, no daily attacks and sleeping through the night! I do feel a odd rhythm occasionally but it's very mild (70-80bpm) and its more like clusters of ectopics than AFib. Feel like I've got my life back! Still on waiting list for ablation but now seriously considering whether it's worth it. Thought I'd spread some good news! Have a wonderful weekend you splendid lot!

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Kennyb1968
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15 Replies

Good to hear Kenny but unfortunately AF tends to progress and medications can become less effective over time. Think very seriously before making any changes to your treatment plan but don’t let it spoil your weekend 😉

Kennyb1968 profile image
Kennyb1968 in reply to

I know mate - I'm just ecstatic after 5 full nights sleep on the bounce!!!!

jeanjeannie50 profile image
jeanjeannie50

That's certainly good news to hear Kenny. Enjoy being well and just see how you get on.

Jean

Threecats profile image
Threecats

Really pleased to hear that Kenny, keep up the good work😊 Like you, I found it such a relief when the med I was given knocked my AF on the head after lengthy episodes every couple of days. I’ve only had two relatively mild ones in 5 months since, so a big improvement. I’ve been put on the ablation list but my own view is that I want to hang on for as long as I can to see if new and improved techniques, such as pulsed field ablation, come along. That’s just my take on it, of course!

Kennyb1968 profile image
Kennyb1968 in reply toThreecats

Yup - iam in the same space mate

MummyLuv profile image
MummyLuv

Brilliant news! Enjoy your new freedom 🎉

bassets profile image
bassets

Great news!

Cat04 profile image
Cat04

So pleased for you but I would stay on the ablation waiting list. The waiting lists are so long you may find you have slipped back to AF by the time you are offered one.

And if you are still happy not to have one when you reach the top of the list someone else will benefit from your space.

secondtry profile image
secondtry

Ablation or not, I would say the only time to take the decision is when you receive your 'call-up papers'!

wilsond profile image
wilsond

Have a good weekend too!

My advice would be,stay on list if ablation has been offered it is obviously considered to be a good idea by your consultant.

You can take your time observing your symptoms and thinking about your response.

I ,like you, swung between should I/ shouldn't I for ages.

Meantime Covid struck and gave me even longer to think and observe.

At first the meds held,starting on Bisoprolol and flecanide as a PIP,then small daily dose.....and so on .

Kept AFib mostly at bay but nit the flutter as resistant to meds.

Eventually I had two 5-6 weeks continuous AF and AFL and I jumped at the chance of fast track ablation.

Just saying,don't assume it's going to stay away and behave !

You may go for several years, as I did but it's such a random condition no guarantee.

Stay well x

Flyer2820 profile image
Flyer2820

Hi Kenny,Glad you are on the up from af.

I was very poorly when in af from 2017 to 2019.

I ended up on 100mg of flechanide three times a day and eventually that stopped it completely. I started to think I was cured and like you, wondered if I needed an ablation until the cardiologist told me to stop one of the 100mg of flechanide and take a bisoprolol instead. I went straight back into af which stopped my dought. I had an ablation on November 5th 2019 and after a period of about 3 weeks have not had af since. It worked for me. Don't be thinking you don't need an ablation, even if it doesn't work first time it is worth trying. My quality of life is far far better than before. I'm hoping it doesn't come back but am enjoying the good health.

If you get the chance of an ablation, take it. You will feel so much better if it works and if it doesn't then remember it's better to have another than keep suffering af.

Af doesn't get better, it goes worse in time.

Good luck for the future.

Regards Flyer.

MalcolmCClark profile image
MalcolmCClark

Meds can take a few days to kick in. For me they are too effective so I have to stick to a minimum dose. I was booked for an ablation but it was cancelled last minute so now waiting for a new appointment. The ablation was supposed to have been done by March this year. Anyway I understand why it was postponed and like you start to think do I need it......then I ended up in Kings College Hospital forest of Easter because of a fast heart rate which they struggled to reduce. The episode lasted nearly a week so it was a reminder that yes an ablation is still the right option even though I've also started a new job in the last month.Stick with meds and if your body says the treatment is not as effective speak to your cardio team or GP.

Good luck.

KMRobbo profile image
KMRobbo

When I first got Afib wild horses could not have dragged me to an ablation. 20 + months and 22 high rate afib attacks layer ( last one 8 days long) and wild horses could not have kept me away from one! It is (or certainly was for me) progressive. Afib Begets Afib- the more you have it the more you will have it. Nor medically trained just my history. Also I no longer take ANY drugs, so have no side effects!

.

Lal531 profile image
Lal531

Excellent news Kenny, I have been on Bisoprolol 10mg for 8 years now and it works for me. But if a Ablation had been suitable for me I would have taken it

Better than drugs, take care Ahmed be safe

Anth

paulalex1313 profile image
paulalex1313

I remember the utter relief when the AF attacks stopped. It is difficult to advise anyone else when everyone has their own symptomatic experiences. However, my AF attacked only stopped after three ablation procedures , the last one 2016. I still take Flecainide - 2 x 100mg per day, but I have been symptom free since the last ablation.

Knowing what I know from my own experience, I’d go for the ablation, or even ablations, if the first one does to fully resolve the problem. It is all worth not suffering the ghastly attacks.

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