Ocular migraines and AF: I first had a... - Atrial Fibrillati...

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Ocular migraines and AF

8 Replies

I first had a migraine right at the end of 2017. I then had about 8 of them spaced about a month apart, then nothing for about 8 months. About 2 months ago, I started to get lots of them-about 15 over 6 weeks. My GP doesn’t seem concerned but said he could refer me to neurologist “if I wanted”. What prompted this post is the fact that I woke up with one this morning!

The migraines alsways have the same characteristics:

1. There is no headache, or a very mild feeling of tension (not serious enough to warrant a paracetamol) around the forehead *after* the migraine which lasts for about an hour.

2. The migraine is usually in one eye or the other. It starts as a blind spot- perhaps a letter is missing when reading a sentence. Then a sparkling zig-zag line develops and seems to move to the periphery of the vision.

3. It’s not usually very debilitating and I can continue what I am doing.

4. The duration is always about 15-25 mins. It stops suddenly.

I am wondering if this is AF related. Although I had migraines for about 6 months before PAF, I wonder if it was a sort of precursor.

The migraines are not that bothersome, but I am worried about there frequency and whether they might portend something more serious. I’ve seen two GPs and neither seems greatly bothered- possibly because there is little or no headache. Could this be caused by stress? Has anyone developed migraines in conjunction with AF or have this sort of symptom?

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8 Replies
BobD profile image
BobDVolunteer

The occular migraine you describe is typical of the ones people have after ablation. These are caused by the transeptal puncture when they move from right to left atria. I do wonder if migraine may be caused by "hole in the heart" problems which for most people go undetected. I have no medical training so this is merely a what if.? A very small hole in the septum may go undetected for years with no synptoms but become exacerbated by AF. is what I am thinking.

That said I had regualr migraines for several years in the early eighties which I believe were stress induced. I was holding down a full time job in banking whilst running a race team which was winning in British Touring Cars and only sleeping about four or five hours a night! Not had them since apart from after my ablations.

in reply toBobD

Thanks for this reply. I haven’t had an ablation yet (my assessment is at the end of July). As I said, the migraines preceded the PAF by about 7 months, but the frequency was not that great until 6 weeks ago. I have been more stressed than usual - but then again have been stressed on many occasions without migraines.

Ive had ocular migraines for years, way before a fib. I have the very same symptoms as you but only have them maybe a couple times a year. The first time I panicked as I didnt know what it was. The doc said nothing to worry about.

in reply to

Thanks. I’m worried about their frequency in particular. A bit odd to have gone from zero migraines to so many.

in reply to

I wonder if they are related to stress? Ive been retired almost 2 yr and have had one since retired.

in reply to

Stress is listed as a potential cause, so yes it could be I guess.

Jjda profile image
Jjda

I have had ocular migranes for years, long before the Afib was detected. My symptoms are exactly like yours, except that I find I am very tired after them. I started writing down when I had them and I can definitely tie many of the instances to stress, but some just happen. I find that I will have several within a week or two, then maybe a year between them. Since my ablation, I have only had one. Have you tried meditation or mindfulness training? It can be very beneficial for stress relief.

in reply toJjda

I tried mindfulness but it didn’t really work for me. I have found breathing exercises (4-7-8 breathing) is good for stress, so I may have to practice that more. Hopefully that will curb some of the migraines.

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