spent the day in ED

[malorie]

woke up this morning feeling dizzy and unwell didn’t think much of it checked heart rate and it was 113-120. put it down to POTS syndrome coming back again went about my day attending a baby toddler group and doing some shopping all was good until boom heart shot straight to 160 managed to convert it with blowing into a tube that i now carry with me everywhere. Went to ED where it happened again where they helped me convert it. They were about to discharge me and boom it started happening again so back in the resus room. i have had 5 attacks today all with heart reaching 160 which isn’t as high as it previously went but still very uncomfortable and scary. being monitored now as i keep slipping back into the rhythm when i stand or walk. i have only ever had an attack every few months this is the first time that i am having recurrent episodes of svt one after the other. i am on ivabradine for the pots. had bad reaction to beta blockers before.

this has been a very stressful day but also it has shown me that i need to get this ablation done asap.

i can see a small light at the end of the tunnel. staying positive and facing this best i can.

[jeanjeannie50]

Sorry to hear that you're having this worry Malorie, wish I could give some helpful advice, but I haven't heard of this happening to anyone before. I wonder if you could have eaten or done something to trigger this? I've experienced dizzy spells twice, which kept me in bed for a few hours, but nothing like you're having.

Please post updates to let us know how you progress.

Thinking of you and wishing you well.

Jean

[malorie in reply to jeanjeannie50]

hi jean,

thanks so much for your well wishes.

i ate nothing out of the ordinary i had a decaf coffee but this usually would never trigger an episode for me.

i’m glad that i am getting my ablation soon as my episodes seem to be getting more frequent which is scary.

will keep you all updated on my progress.

thanks

malorie

[Courtneycox]

Hi malorie , first time commenter long time reader here! You story really resonated with me today. I too have been diagnosed and am waiting for an ablation procedure. Hopefully sometime this year or early next. frequently I too get these ‘clusters’ of SVT. The only trigger I can think off is emotional.... I have certain things that set me of..... ! I know how unusual. Jeremy corbyn is a particularly reliable SVT inducer as is anything BREXIT related. I also recall a particularly symptomatic day when the FRIENDS sitcom ended. I know how strange! Right now I avoid the news altogether and don’t get me started on crime call. Definite SVT provoking activities. My darling husband calls me an SVT waiting to Happen! Which reminds me- he is also a trigger. Can’t wait to get this fixed once and for all.

Let’s keep each other updated on progress.

All the best ,

Courtney (aka LILIAN!)

[malorie in reply to Courtneycox]

hi courtney,

thanks for your comment. i had my first svt episode in december never had anything like this before. interesting you talk about having clusters of svt as this is exactly what is happening to me now something that is new and even more frightening than the one off episode every month. i think i have two triggers my mentrual cycle being one and also like you stress or emotion.

that is so funny that your husband refers to you as an svt waiting to happen. my own poor husband spent today sitting with me in ED it’s not easy for those around us either to go through this.

how often do you get these clusters? what rates do you experience my highest was 240.

wishing u well

malorie

[Courtneycox in reply to malorie]

Hi malorie,

Not that often, maybe every three months or so. I’ve had SVT for a few years now but I was getting particularly symptomatic from it last year and hence finally decided to go for ablation.

I do joke about my emotional triggers but I genuinely am triggered by stress or annoyance. Perhaps they can do a Personality transplant at same time as my ablation.

Chin up my dear! We shall not be defeated. Here’s hoping they get the ablation done for me before Teresa May manages to ruin ENGLAND.

Thinking of you!

Lil

[CDreamer]

Oh dear, I had exactly the same experience and was admitted for 3 days, every time I lifted my head from the pillow - bang HR - 180-200. I had every doctor in the building come see - none had seen it before - asking me to sit up as soon as I tried I passed out and all the alarms on the monitors went off and scared the ‘sh..’ out of them.

I refused all meds, I was on a saline drip and basically slept for 3 days and did recover and it never has happened since. I learned a lot of lessons.

I would suggest it may have happened because you were doing too much and probably dehydrated. With POTS + AF you must drink a lot of water and increase your salt intake and rest a lot more than most other people - but not lying prone. If you can, elevate the head of you bed to 15degrees was good advice for me.

Hopefully the ablation will work for you.

Have you managed to see a specialist ANS cardiologist?

Best wishes CD.

[Shcldavies]

I have been through 2 days just like that, so have many others, so you are not alone and that should give some comfort. No one knows what caused it, probably a combination of things. What I can say is that your medication needs to be adjusted (I believe mine was too high a dose of Bisoprolol for my condition at the time) or your electrolytes/nervous system was unbalanced. I cannot offer advise on what to do other than take it very easy for a few days or weeks and try some magnesium taurate of citrate suppliments.

[MydogBrandy]

Hi, I ended up having clusters , mine were every couple of days. When I used to have svts every two months I talked myself into thinking I would just keep taking the meds. When the clusters came I made my mind up after 18 years to have an ablation. Best thing I did in January. Mine started when stressed, looking up quickly and perhaps working too hard. My kids used to say I got too involved with everything going round me lol. I hated giving up work at 67. Learning to relax is my new goal now .Good luck, Regards Ursula x