Inspiration and hope.: I know what it... - Atrial Fibrillati...

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Inspiration and hope.

djbgatekeeper profile image
46 Replies

I know what it feels like when the black cloud of poor health appears in your life, it's a shock, it's worrying and it makes you think about the chances of overcoming the problem and returning to normal life.

This time last year my heart was doing a merry dance most weeks, I was suffering from paroxysmal AF and it was getting worse fast. I was having time off work and I was in a bad place. Then in September last year I had a Cryoablation and fast forward to today and I feel great.

I spent this morning riding around Wales on my motorbike and I feel blessed and thankful for having a second chance. I know this condition is a mongrel and can pop up again, but this post is for those of you who are experiencing the bad days I just want you to hang on in there and seek out the appropriate treatment, life can be good again. God bless you all and I hope you had a good bank holiday weekend.

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djbgatekeeper profile image
djbgatekeeper
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46 Replies
BobD profile image
BobDVolunteer

Alwaya good to see how some people pick themselves up and have a successful return to "normal " life although for me normal is not a road burning monster in green. Had a blast in my Orange BMW yesterday though but thwarted by grockles in motor homes and old aunties in Micras or Aygos. SW has been full these last few days .!

Thanks for the inspiration.

in reply toBobD

wasn't me in my motorhome you antisocial whatsname!!

BobD profile image
BobDVolunteer in reply to

Campaigning for a dot matrix at Bristol saying "South West Full. Go Home!" Total lunacy down yere this weekend FJ.

in reply toBobD

Look out for an awe inspiring email, may be tomorrow........

CDreamer profile image
CDreamer in reply toBobD

I have my pen at the ready to sign your petition. We ventured out to the beach for a walk on Friday - wall to wall people, children and the occasional dog (usually inhabited by dogs, horses and the occasional human which is how we like it!). We soon retreated and am only today venturing out again.

Morzine profile image
Morzine in reply toCDreamer

Ha ha I can imagine.....we get swamped by huge nests of skiers here in the tourist season.....it’s dead quiet now......and we have parking!!!

in reply to

Nor me!

djbgatekeeper profile image
djbgatekeeper in reply toBobD

The trick is get out on the road about 7am on a weekend or bank holiday and you have about 3 hours to party before the roads get busy .... Drive safe Bob 👍

BobD profile image
BobDVolunteer in reply todjbgatekeeper

IPSGA

great post djb…..can almost feel the passion!!!

djbgatekeeper profile image
djbgatekeeper in reply to

Its there mate 😉

Yes it’s nice to know there are some great outcomes.... I used to be a biker, good times!

djbgatekeeper profile image
djbgatekeeper in reply to

Once a biker always a biker 👍

Rebma profile image
Rebma

Great picture. So glad you are doing great. I have my ablation next Tuesday. Second one and I know this one will do the trick!!! We are a special group of people sharing our stories. Let’s hope we all become AFIB free forever!! Happy spring.

djbgatekeeper profile image
djbgatekeeper in reply toRebma

Best wishes to you 👍

Kaz747 profile image
Kaz747

Wonderful to hear you’re heart is still behaving itself and you are enjoying life again.

djbgatekeeper profile image
djbgatekeeper in reply toKaz747

Thank you 👌

Bmwpaul1971 profile image
Bmwpaul1971

Great message matey. Keep on keeping on 😁

I second all you have said, after getting out on Easter Saturday doing something I love I can relate totally. Even the OH said "You can tell your mood has changed" yesterday, she didn't mean it in a bad way but it did surprise me a little bit that my black cloud and feeling trapped had been more prevalent than i'd perhaps realised.

irene75359 profile image
irene75359

Terrific positive message and picture - well done. Have you tried the Hebrides? Well worth it if you are a biker and barely any traffic!

horizonsunlimited.com/hubb/...

jeanjeannie50 profile image
jeanjeannie50 in reply toirene75359

Thanks for that tip Irene. The Hebrides look wonderful and I think we'll all be there next holiday.

djbgatekeeper profile image
djbgatekeeper in reply toirene75359

I love Scotland so will add that to my list of to do's thank you 👍

CDreamer profile image
CDreamer

Of what a great post! Health issues do make you reevaluate what is important and good in life and makes us notice appreciate our beautiful world.

jeanjeannie50 profile image
jeanjeannie50

Great to hear you're feeling so well, long may that continue. I love the countryside of Wales. Where was your photo taken?

djbgatekeeper profile image
djbgatekeeper in reply tojeanjeannie50

Hi Jean, the photo was taken in Llangollen, horse shoe pass ... It's beautiful up there 😊 I hope you are keeping well 👌

jeanjeannie50 profile image
jeanjeannie50 in reply todjbgatekeeper

Ah yes, I know it - so beautiful! Used to have walking holidays for many years in North Wales, staying in a beautiful barn conversion at the base of Cadair Idris near Dolgellau.

Yes, keeping well thanks.

Rosemaryb1349 profile image
Rosemaryb1349

You could try the North Coast 500.

irene75359 profile image
irene75359 in reply toRosemaryb1349

My husband has done that too! Loves biking in Scotland, used to drop in and stay the night with my parents in Aberdeen.

Morzine profile image
Morzine

Warming post djgatekeeper......that’s just how we all hope to be....in keeping my fingers crossed 3 months post ab.

Sue

meadfoot profile image
meadfoot

So pleased for you enjoy life to the full now you have regained your equilibrium. Good on yer for grabbing life with both hands, enjoy and thanks for sharing.

avma profile image
avma

Such a nice post. Thank you for the positive message. Wishing you all the best!

djbgatekeeper profile image
djbgatekeeper in reply toavma

Thanks and you too 👍

missyf323 profile image
missyf323

So glad to hear you are well & enjoying life to it's fullest Dave! Great photo too.

djbgatekeeper profile image
djbgatekeeper in reply tomissyf323

Thanks Missy, how are you keeping?

missyf323 profile image
missyf323

Thanks for asking, Dave. AFIB wise, sadly still having episodes but they are less often, milder but longer in duration... Will go back for completion of what was started but waiting, if possible, until after my sons wedding in August. Been a rough couple of months with my Mom having to move to a skilled nursing facility and all that surrounds that sort of emotional and physical move. The stress has been overwhelming which, I am sure, is not helping the AFIB! Some days I feel confident and competent and others I feel more the a wrung out dishrag! Good news, I am strong and will weather this storm looking toward the blue skies and sunshine ahead.

All the best to you and the family!

Missy

djbgatekeeper profile image
djbgatekeeper in reply tomissyf323

Yes life can be a real rollercoaster sometimes, fingers crossed for you and take care 👍

sewingscissors profile image
sewingscissors

Hello Dave. What an inspiring post I have just read from you. It has made me feel better, having woken this morning feeling very low and tired. I won’t be going out on a motorbike or even a walk, just relaxing and realising how lucky I am! My David was very interested in your bike. He enlarged the photo and examined it carefully!! Take care of yourself 🏍. Best wishes Liz🙂

djbgatekeeper profile image
djbgatekeeper

Hi Liz, yes keep your chin up or the naughty step awaits! If David wants to know a bit more about my motorbike I did a review on YouTube so here's the link... Take care 👍

youtu.be/B31-jNADOlc

cat55 profile image
cat55

Sent wrong post to you, but great that you are able to live life to the full again. Best wishes Kath.

djbgatekeeper profile image
djbgatekeeper in reply tocat55

Thank you Kath 👍

AZMTBer95 profile image
AZMTBer95

Hi, thank you for your post. I was just recently officially diagnosed and yet to have a second opinion but I’m only 23 years old and I was diagnosed with paroxysmal Afib as well and right now I feel like I’m spiraling down into a deep depression. I feel like every treatment option is terrible and will leave me jobless and uninsured here in the U.S.

djbgatekeeper profile image
djbgatekeeper in reply toAZMTBer95

Hi there, I'm 54 and I had this condition from 28 years old, medication worked until last year so I opted for ablation which seems to have worked 100% for now.

I know what you mean about being worried but at 23 you can get well and have a long healthy life ahead of you.

Eat healthy, don't touch alcohol and seek out a good EP to address your condition. Don't let this condition get the better of you mentally as anxiety goes hand in hand with AF.

You are a fire fighter so now's the time to fight for yourself, you will look back in a couple of years and be glad you did.

Life is a rollercoaster, some ups and some downs, you've just got to do your best on the downs and keep your chin up. Take care and get that plan to good health sorted fast so you can and get on with your life 👍

AZMTBer95 profile image
AZMTBer95 in reply todjbgatekeeper

Thank you sir. Seeing how you lived with this since around my age, do you think it’s a condition I can work in the fire service with? Obviously our hearts are different and mine might be more progressive and less responsive to drugs than your case.

djbgatekeeper profile image
djbgatekeeper in reply toAZMTBer95

It would be a lot easier for you if you seek the right treatment from a good EP, you hit the nail on the head when you said we are all different, this condition is a real mongrel and one person's journey is only a guideline for you. One thing for sure though, if you let the condition progress without intervention (which probably means ablation) it will restrict your life. The good news is these days they can cure the problem especially when there are no other health problems to deal with and you are otherwise fit and young too, everything is in your favour 👍

AZMTBer95 profile image
AZMTBer95 in reply todjbgatekeeper

Are you on lifetime anticoagulants? I was wondering if the watchman device is a reality for me, the blood thinners are one of the biggest roadblocks for me

djbgatekeeper profile image
djbgatekeeper

No I was only on anticoagulant for a few weeks after the ablation. Have you seen or are you planning to see a EP ?

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