I usually sit on the sidelines here as I'm fairly new to AF and I am just learning about it all. I started with full blown AF last year (paroxysmal ) and after a terrible summer being medicated with sotalol giving me horrible side effects I eventually persuaded my cardiologist to give me flecainide pill in the pocket.
I've used this a few times quite succesfully and I've been taking it if the ectopics feel like they are revving up and it's been great.
But. ..(.there's always a but isn't there! ) last Thursday I went into an extremely violent AF where my heart rate was so fast and irregular that I really couldn't cope even having taken the flecainide so I phoned an ambulance. I know it sounds dramatic but I truly thought I was dying 😣
Of course soon after the paramedics arrived it reverted to NSR and normality resumed! They were really nice about it and the following day I saw my GP and we've decided that I'm to start flecainide 50mg twice daily. I've had 3 ectopics since and each one has been horrible. Really hard beats with a dizzy faint feeling.
I suppose my reason for posting this is that I'm frightened! I'm frightened about fainting anywhere. I'm frightened of the lack of control. I'm terrified of getting that really violent AF again. I'm in a constant state of alert which I know is counter productive but I can't seem to shake it off. Has anyone else been like this? I've got a re - referral to the electrophysiologist again although I suspect he'll say I'm not quite ready for an ablation again but I feel like a time bomb!
Some wise words from some wise folk would be good 😢
Thank you for anyone who reads this. X