I had my first appointment yesterday with my EP, an appointment I feel I’ve waited 30 years for and for the first time ever someone agreed!!! He said trying to get information from the various cardiologists I have seen over the years has been interesting, difficult and provided very limited information. He had discovered that I had a firm diagnosis with ecg reading, of PSVT and PAF over 15 years ago but was pretty much left too it after being started on flecainide. He had really worked hard trying to pull together as much information about me as possible. A completely different approach from anything I’ve experienced before.
A few weeks ago I begged to have a holter monitor for a week to try and capture more information before my appointment. They agreed after a lot of begging and crying! On the 4th day I went into AF and SVT!!!!! So for the first time ever the entire episode was caught from start to finish. Rare as hens teeth with this horrible condition as many of you know!
So with this and the various other bits he had managed to find he felt like he had enough information and evidence. He asked lots of questions, was keen and positive.
I had my list of questions and he encouraged me to go through them, he answered them all with honesty and humour. He gave me tissues when I broke down and he talked to my husband about the impact of “30 years of suffering”.
Then he explained that he felt he could really help, he suspects my trigger for AF is SVT as I never have AF without the precursor of SVT. He did a little diagram and explained it all in detail but I couldn’t really understand, that’s where having my husband there really helped! He believes that if he ablates the SVT it will potentially be the end of all this. He was giving odds of between 80 and 90% !!
He was so confident and matter of fact. He then said do you want me to book you in right now, let’s put and end to all this and give you your life back! I agreed!!!!! He called through to his secretary there and then and asked her to rearrange a few things and booked me in for the 25th March for a EP study with mapping available and ablation under sedation!
So after 30 years I agreed to an ablation with a man I spent 45 minutes with, I really didn’t think that my appointment would result in me being booked in for an ablation in 3 weeks. I thought I would need time to mull it all over but I think after so long I just want this to move forward. I’m not sure if I would have agreed had I not read so many stories on this forum, to have all this patient information is a goldmine!
Sorry this is the longest post, I find it so helpful writing everything down here, It’s like a lovely supportive interactive diary.
I hope you are all having a lovely morning and I have a sneaky feeling I’m going to be needing lots more support from you all over the coming weeks.