I was diagnosed with clots on lungs which put pressure on heart Im 34 and trying to get me head round it I'm on bishop 2.5mg and 2 5mg of apixaban and fluid tablets and while in hopo had to get 3 Orion infusion s and also blood pressure tabs I'm just tryna get me head round this as I was misdiagnosed first time in a@e and was sent home with antiflamitries so one doc said the blood thinners were out 10yr another doc said 2yr?? Anyone to help with information
Only out of hospital: I was diagnosed with... - AF Association
Hi is there anyone diagnosed with heart failure that word frightened me at I'm only 35 but they said my heart wasn't given up its just its enlarged on left and muscle abit weak so the heart chamber is letting a lil blood flow back I'm on meds to strengthen muscle but don't no which forum to talk to I also had clots on lungs if anyone knows or experienced this can they reply please
I don't think many of us can help with the clots on the lungs. As Bob says, we all have an irregular heart beat.
Heart failure is a very silly term and in my view should be phased out. I don't know why doctors continue to use it. It sounds alarming but usually is less bad than one might think. We have discussed it before on this forum and agreed that the old fashioned word dropsy sounds less bad. As you say, the heart's chambers can enlarge - but if things go well, they can also go back to normal size.
There's a dedicated HealthUnlocked forum dealing with problems with the lungs, but as HappyJo says the Heart Foundation forum might be better for you.
Yeah your so right about the word heart failure I said the same to the doctors because all I was told after heart ultrasound while in with the clots was so my hearts failing I'm going to die as it was done just precautionly cos of clots and I got that bad news its so frightening but thanks so much taking time to reply
You are welcome. There are a few medical terms that annoy (such as 'blood thinner' for anticoagulant) and I quite enjoy a rant about heart failure! It should be banned!
You may get more response from the contributors on the Heart Foundation forum. Having said that, many - or perhaps most - of us here have some degree of enlargement of the left atrium. It is very common.
Thanks Jo your right as I only found all this out in December I'm still learning and dealing with it but what you said is right its the blood and oxygen but the muscle is also enlarged the doctor said that I'm on a tablet to strengthen the muscle and I need further tests also this was all a shock but I've accepted it is what it is and to do exactly what they say to improve my outcome thanks Jo wish you the best also
I think you might find more people with similar experiences to share on the British Heart Foundation community. It is still on HealthUnlocked you can join it as well as this one.
I’m sorry to hear you’re been so unwell. Hopefully now you have been diagnosed and started on treatment you’ll begin to see improvement.
I understand it can take a while to adjust drugs to optimise your heart function with heart failure. If you join the BHF community you’ll get more support. There is also BHF nurses you can call to talk to about anything to do with your diagnosis and treatment.
Take care and go well.