Only out of hospital: I was diagnosed with... - AF Association

AF Association
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Only out of hospital

Cathy35
Cathy35

I was diagnosed with clots on lungs which put pressure on heart Im 34 and trying to get me head round it I'm on bishop 2.5mg and 2 5mg of apixaban and fluid tablets and while in hopo had to get 3 Orion infusion s and also blood pressure tabs I'm just tryna get me head round this as I was misdiagnosed first time in a@e and was sent home with antiflamitries so one doc said the blood thinners were out 10yr another doc said 2yr?? Anyone to help with information

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BobD
BobDVolunteer

This particular forum is for people with atrial fibrillation, a heart arrhythmia so maybe not too many people with knowledge to help. Have a look at the full Healthunlocked menu in case there may be a better fit for your enquiry.

Cathy35
Cathy35
in reply to BobD

Thks I also found out its called heart failure I need more info but thanks for your reply

Hi is there anyone diagnosed with heart failure that word frightened me at I'm only 35 but they said my heart wasn't given up its just its enlarged on left and muscle abit weak so the heart chamber is letting a lil blood flow back I'm on meds to strengthen muscle but don't no which forum to talk to I also had clots on lungs if anyone knows or experienced this can they reply please

Hidden
Hidden
in reply to Cathy35

I don't think many of us can help with the clots on the lungs. As Bob says, we all have an irregular heart beat.

Heart failure is a very silly term and in my view should be phased out. I don't know why doctors continue to use it. It sounds alarming but usually is less bad than one might think. We have discussed it before on this forum and agreed that the old fashioned word dropsy sounds less bad. As you say, the heart's chambers can enlarge - but if things go well, they can also go back to normal size.

There's a dedicated HealthUnlocked forum dealing with problems with the lungs, but as HappyJo says the Heart Foundation forum might be better for you.

Cathy35
Cathy35
in reply to Hidden

Yeah your so right about the word heart failure I said the same to the doctors because all I was told after heart ultrasound while in with the clots was so my hearts failing I'm going to die as it was done just precautionly cos of clots and I got that bad news its so frightening but thanks so much taking time to reply

Hidden
Hidden
in reply to Cathy35

You are welcome. There are a few medical terms that annoy (such as 'blood thinner' for anticoagulant) and I quite enjoy a rant about heart failure! It should be banned!

Cathy35
Cathy35
in reply to Hidden

Also they said my hearts working 30% and normal person is 60% so its the left muscle that's enlarged could yourself or anyone derect me to ppl that's experiencing the same it will be well appreciated:)

Hidden
Hidden
in reply to Cathy35

You may get more response from the contributors on the Heart Foundation forum. Having said that, many - or perhaps most - of us here have some degree of enlargement of the left atrium. It is very common.

HiddenThis reply has been deleted
Cathy35
Cathy35
in reply to Hidden

Thanks Jo your right as I only found all this out in December I'm still learning and dealing with it but what you said is right its the blood and oxygen but the muscle is also enlarged the doctor said that I'm on a tablet to strengthen the muscle and I need further tests also this was all a shock but I've accepted it is what it is and to do exactly what they say to improve my outcome thanks Jo wish you the best also

Hello Cathy

I think you might find more people with similar experiences to share on the British Heart Foundation community. It is still on HealthUnlocked you can join it as well as this one.

I’m sorry to hear you’re been so unwell. Hopefully now you have been diagnosed and started on treatment you’ll begin to see improvement.

I understand it can take a while to adjust drugs to optimise your heart function with heart failure. If you join the BHF community you’ll get more support. There is also BHF nurses you can call to talk to about anything to do with your diagnosis and treatment.

Take care and go well.

Jo

Xx

Cathy35
Cathy35
in reply to HappyJo

Thank you so much for that information cos honestly Jo I didn't no were or to to turn to or go wish you the best kind regards

Cathy

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